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  1. #31
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    Aug 2013
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    I really don´t think that every person with relatives with certain decease should worry and just continue worrying. Just enjoy the games in online casino united kingdom - Spin Palace and that´s it.
    Fist thing to do is to visit a doctor and ask all the questions you have and make all the studies the doctor says. And if everything is ok, then enjoy life.
    If you worry too much you will finnally have another condition.

  2. #32
    Registered User carpe diem's Avatar
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    Nov 2011
    Location
    Bristol
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    Does my family have FAD

    This is the toughest question I face every day. Does our family have FAD?
    My mum has dementia, my gran had it and my great gran had it, all in their 50s. All the women in the last 3 generations have had it. Me and my sister both believe it is inevitable we will get it.
    We have asked about tests but the consultant said "I'm not worried about it", what a joke but they don't know everything about genetics and even if it's not FAD it doesn't mean there is not still a genetic disposition. There obviously is.
    How do I cope? Well I live life for now, seize the day. Try and make sure my hubby knows what I want for my future care and make provisions to provide that.
    I've grown up with dementia being part of every day life since I was a little girl, it just seems like a normal progression that I have to accept and I can't change it.
    I have not had children so it stops here.

  3. #33
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    Jun 2011
    Location
    Gloucestershire
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    28

    Fad

    My Mum in law had vascular Dementia and Alzheimer's
    My Hubby is 60 and has been diagnosed with Dementia
    Now his 62 year old brother is showing signs of it
    Our children are 35 and 36 , would it be wise to raise the question of testing for it ?
    It is such a hard decision, is it better to know ?
    I think I will research the topic further

  4. #34
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    Sep 2009
    Location
    Lowestoft, Suffolk
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    74
    In general there is a very strong family history e.g. Parent & Grandparent having early onset AD. In my family and the other families that I know with FAD there are so many involved - patents, aunts, uncles, grandparents and their siblings and cousins too. Do you know of any other family members affected? My understanding is that FAD can't start sporadically, it can only come from a parent which is why there is usually lots and lots of family members affected. You could speak to your GP about genetic testing - it takes time as you have to have time to speak to a counsellor and be sure of the consequences and the impact that knowing would have on other family members. I do hope that it isn't FAD that is affecting your family. X

  5. #35
    New User
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    Jan 2014
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    Illinois
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    1
    Quote Originally Posted by supernurse View Post
    I am having a bad day today as my husband said his life was not going in the right dirrection and wanted a divorce, is it common for sufferers who have other health issues to say things that they regret later and how does their spouse or partner copes with that. Advice needed for a distressed carer of a FAD Sufferer

    supernurse


    I am so sorry to hear this. I am 59 and have EOAD. I have said those words to my husband. I don't know why this happens. Sometimes I feel scared, overwhelmed, sick of being sick! There are times like this, when I am clear minded. Should I remember some of the mean things I said, I apologize to my hubby. He is a very patient man. He puts me at ease when he says, " That's okay. I don't know what your world is like and how you can be at your best when your life is falling apart". I was and sometimes still is resentful because of my dementia.

    Your husband does not know how to express what he feels. His brain is literally scrambled. The only way I can describe it (in my case) is this brain is screaming but but it can't get out. I don't know what stage your husband is in. Really, who on earth knows until the end stages. He might not remember what he said. I am sure he would feel so remorseful if he knew what he had said. This is hard for me to say to you, but he is now a different person. I am thankful that I still have the skill to communicate though I have no recollection of time, numbers, dates. I have a volunteer who helps with computer once a week.

    Again, I am sorry ...my mind gets very tired after I write as much as this. I am drained. Hugs. Please take care of yourself.
    Last edited by CatAnn; 02-12-2014 at 02:48 AM.

  6. #36
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    Oct 2015
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    1
    I am 46 years old an both my mother and my grandmother developed AD age 50. I don't know anything about my grandmother's family I think she was an only child....my mum was an only child, her father died when she was young, I never knew him.

    I could never have my mum tested for the early-onset-familial-alzheimer's disease gene (or one of its mutations PS1/PS2/APP...) when she was affected, the doctor said he'd give me the 'kit' to test her but the kit got 'lost' somewhere and my mother died and was cremated..fast forward 12 years and I have just had my blood drawn this friday gone for a full 'dementia genetic screening' (to screen 'predictively') to see if I have inherited the AD familial early onset gene (well, one of the mutations known).

    As they are screening for all known mutations so far I will have to wait 6 months for the results.

    Although I am of course 'anxious' I am also 'very relieved' as I feel I 'have to know' if this 'cloud' is hanging over me or not, especially as I am approaching the age of onset for both my mum and grandma...

  7. #37
    New User
    Join Date
    Dec 2015
    Posts
    6

    Fad

    Hello, I have just joined TP and am looking for support and information on helping a family member who has had a blood test which was positive for FAD. She is now in her thirties and I think she is showing early symptoms. How and when do I break this news to her sibling. I am having many sleepless nights.

  8. #38
    New User
    Join Date
    Feb 2016
    Posts
    1

    Hello everyone!

    Hi there,my dad has been diagnosed with early onset Alzheimer's,he is nearly 58. We are all upset and I'm struggling with it to be honest,I've joined here in the hope of getting some advice and being able to chat to people in the same position.

  9. #39
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    Aug 2015
    Location
    Anglesey
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    Quote Originally Posted by josoap80 View Post
    Hi there,

    This is kind of difficult so please bear with me. We have familial alzheimers in my mothers side. It was all confirmed and the like while she was alive. She died 10 years ago and we have all pretty much ignored the implications, just getting on with life and not worrying about the future. Problem is that afew weeks ago my sister turned the age at which Mum became ill.....and to be honest, I am struggling. I have no one to talk to about it as my mums family have all but deserted us. I cant talk to my sister about it because I know that she is terrified and if she knows what's going on in my head, it will make it even harder for her. All my friends turned tail and bolted a long time ago and my partner doesn't need to hear the things that are going through my head!! I was hoping that there may be someone around that can understand some of how I feel and maybe lend a friendly ear?? Or at least point me in the direction of someone that can? Thanks
    Hi, are you still on here?
    Quote Originally Posted by carpe diem View Post
    This is the toughest question I face every day. Does our family have FAD?
    My mum has dementia, my gran had it and my great gran had it, all in their 50s. All the women in the last 3 generations have had it. Me and my sister both believe it is inevitable we will get it.
    We have asked about tests but the consultant said "I'm not worried about it", what a joke but they don't know everything about genetics and even if it's not FAD it doesn't mean there is not still a genetic disposition. There obviously is.
    How do I cope? Well I live life for now, seize the day. Try and make sure my hubby knows what I want for my future care and make provisions to provide that.
    I've grown up with dementia being part of every day life since I was a little girl, it just seems like a normal progression that I have to accept and I can't change it.
    I have not had children so it stops here.

    Sent from my Moto G (4) using Talking Point mobile app

  10. #40
    Registered User
    Join Date
    Nov 2015
    Posts
    69
    How would I find out if my mum had the one that could be passed onto my sister or I? My mum haw early onset frontal lobe dementia she's 58 now x

  11. #41
    Registered User
    Join Date
    Jan 2012
    Posts
    427
    It's done by means of a special blood test - you have to ask your GP to set the ball rolling for this to be done. Giving a blood sample can be done at your GP surgery but it has to be sent off to the one hospital in the UK that can do the actual test.

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