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  1. #16
    Volunteer Host Shedrech's Avatar
    Join Date
    Dec 2012
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    Yorkshire
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    4,255
    hello ariadne17
    and welcome to TP
    good to read that you now have a helpful team around and support available
    keep posting; it's so useful to share experiences
    best wishes
    And all shall be well and
    All manner of thing shall be well
    Julian of Norwich & T S Eliot

  2. #17
    Registered User
    Join Date
    Jun 2017
    Posts
    17

    6 months left

    Just been given a D1500 notice with the reason being, End of Life, Frontal temporal dementia,

    Time to live for the now

  3. #18
    Registered User Kevinl's Avatar
    Join Date
    Aug 2013
    Location
    Salford
    Posts
    3,590
    Quote Originally Posted by Cghrmu View Post
    Just been given a D1500 notice with the reason being, End of Life, Frontal temporal dementia,
    I've looked and I can't find out what a "D1500 notice" is, can anyone enlighten me?
    K
    If you're going through hell, keep going
    If a man speaks in the forest and there is no woman there to hear it..is he still wrong?

  4. #19
    Registered User
    Join Date
    Aug 2015
    Location
    North Gloucestershire, UK
    Posts
    99
    Quote Originally Posted by Kevinl View Post
    I've looked and I can't find out what a "D1500 notice" is, can anyone enlighten me?
    K
    Looks like it could be this http://www.gpnotebook.co.uk/simplepa...03153747160230

  5. #20
    Registered User
    Join Date
    Aug 2015
    Posts
    68

    Help

    Quote Originally Posted by Zana View Post
    In a word Yes...

    OH was given a formal diagoses of FTD last year only because he had been seen by specialists in 3 hospitals and had been scanned more times than we can count without anything showing up , hes had countless blood tests and several very painful Lumbar puncture tests which have failed to provide any concrete proof but his behaviour is consistant with FTD as is his loss of languge skills..


    We are lucky that we have a good dementia team at our local hospital but with FTD its always difficult because alzhiemers is the one everyone knows its the one there is some treatments for the one that day care and homes are set up to deal with and the one most doctors recognise...
    Sorry but thats the way it is.
    I was diagnosed with altzheimers 2 years ago,with MRI and SPEC scans,right side was shrinked.
    now because i actually did a little better on a test that i guessde on,as i didnt no the amswers so guessed.
    The consultant wants another MRI as said there should have been changes in the 2 yrs. My worl was turnde upside down and i was a nurse, lost my job, licence and husband and nearly my house, son had to sell his house and come home and look after me as i was flooding the house and leaving the cooker on and couldnt go out myself and much more.
    If there is no changes from prev scans he said i dont have altxheimers and its probably depression.... OMG i have never had depression and dont now know what to do.
    I couldnt go back to nursing as they took my registration off me, and to be honest i havent got a clue what i could do as i cannot even remember what dat or time it is. HELP ....... its going to be 6 weeks for MRI.

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