Search results

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    Toilet troubles

    Hi.. After going through everything mentioned.. Up every hour during the night and taking my OH to the loo 9 or 10 times during the day.. Finally totally exhausted I had a incontinence nurse call and talk us through sheath cathatars... Life changing.. Might be worth looking I to it xxxx
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    I was moved to write this..

    In tears and at the same time comforted.. You're words mean so much.. and I know my OH would love to express the same... Xxxxxxx
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    Lewy Body Dementia

    Hi cheslinl... My OH just getting over another bout of UTI which makes hi more anxious... But on the whole the meds are doing well.. Sleeping till 5or6 in the morning and coping with the hallucinations and not getting too anxious.. Sometimes askes me where I am... But on the whole not bad... The...
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    An ode to sufferers of dementia

    Absolutely.....
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    An ode to sufferers of dementia

    Nina Simone.. "I wish I knew how it would feel to be free" I wish I knew how it would feel to be free I wish I could break all the chains holding me I wish I could say all the things I should say. Say em loud say em clear for the whole world to hear I wish I could share all the love in my heart...
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    New Lewy Body Dementia

    Hi so sorry your OH has become worse... Its terrible how we never know when the next stage will happen... But we know it will come... And will have to cope somehow... My thoughts are with you and hope you find strength to keep going.. We're going through a managable period.. We'll compared with...
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    New Lewy Body Dementia

    Hi @Banabarama and Tea and toast .. We're all at different stages of this awful LBD illness.. And no idea when the next stage will start... My OH was diagnosed last February via referral to memory clinic.. After symptoms which I now think have been there for a few years.. On social service list...
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    New Lewy Body Dementia

    Tea and toast I feel for you so much.. Its such a strain... We've had a few falls where I have had to ring one of our sons to help get him up.. Balance such a problem.. Like you so far no major injuries but its worrying.. We now have walking aids..walking stick and zimmer.. But he will resist...
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    New Lewy Body Dementia

    Hi tea and toast... I really hope you get to the choir.. You must try to take any break you can.. For your sanity.. Just been to my sons house to try to get his son to go to school.. He's having a bad time at the moment at school.. And it gives me some fresh air and exercise as they live near...
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    New Lewy Body Dementia

    Hi Tea and Toast.. Music is a must... One of our children got my OH an 'alexa' for his 80th birthday last week.. Its so good for him.. Playing music whenever he wants... For me it's a mood changer whenever I feel the pressure.. Your choir will be the same for you.. Hope you can continue.. I've...
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    New Lewy Body Dementia

    Dear tea and toast.. You have my dearest sympathy.. Dealing with L B D is the hardest thing.. Watching you're loved one going through the horrendous hallucinations is unbelievably difficult.. In another world which to us is unseen is so upsetting.. And their distress when they remember what they...
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    New Lewy Body Dementia

    Hi.. You should talk to you doctor.. My OH also takes revastigmine tablets the memory clinic prescribed.. The doctor from the mental health team prescribed Quetiapine...
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    New Lewy Body Dementia

    Hi banabarama.. My OH has Quetiapine one at bedtime.. From being anxious and demanding I ring the police to tell the men in the house to go... He was afraid they were there to hurt me.. And we had to sit in the bedroom from 4 in the evening till bedtime. (they never appeared in that room).. He...
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    New Lewy Body Dementia

    Hi everyone.. My OH has LBD. And have gone through really tough times with the hallucinations.. Especially due to urine infections... Some respite now as meds prescribed by syciatric doctor from mental health team from local authorities are really proving helpful.. Don't know how long this will...
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    I

    Hi @Chalkie.. Read your post to my OH who has Lewy body dementia.. When he feels down it helps to reinforce that there are good moments to cling to.. Thank you and love xxxxx
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    And so it goes on...

    Hi @jenniferjean.. That's good I'm sure it will help... All the best xx
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    Lewy Body Dementia

    Hi @cheslini..we were recommended to a member of the elderly mental health team from our local authority.. My OH has Rivastigmine daily but now has Quetiapine and that has.. So far.. Made a great difference.. The hallucinations happen but he is so much calmer and happier.. Sleeps better also...
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    And so it goes on...

    Hi @jenniferjean..I was in just the same potion.. My OH needing the loo every hour during the night and 9 or more times daily.. Could nt keep it up through exhaustion.. and the doctor recommended a visit from the incontinence nurse who said he had 'urge incontinence and we now have sheath...
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    Lewy Body Dementia

    I am also dealing with my OH with Lewy body dementia... It is really soul destroying to watch a loved one going through the terrible effects of hallucinations.. At the moment we have it under control... But I feel it won't last like this... I feel so much sympathy for all who are going through...