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    To visit or not?

    Hi Maud, Like yourself I am a long distance carer so I do understand exactly how you feel. You obviously need to see your dad and I don't think you will get any peace until you make a decision. Even if that is organising a trip for later in the year when your husband is free to accompany you...
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    Feel Lost!

    Hi Snowy, My heart goes out to you. I know exactly how you feel! My dad has been in a home for about the same time as your mum and we are waiting for their decision today about whether dad can stay. He has only had a couple of outbursts but as he was in a EMI unit with a specialised dementia...
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    Normal to go back to assessment from NH?

    Hi Peapod, Glad to hear that dad is staying put for the time being. This is strangely like the situation at my dad's EMI nursing home. When he has an outburst the head nurse tell's us he will probably have to be moved and then we are told by the manager "no he can stay". I am hoping that this...
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    Normal to go back to assessment from NH?

    Hi Peapod, My dad also has LBD and is at the moment in a EMI nursing home. Because of his challenging behaviour I think they are going to ask for him to be moved. There is a meeting on Thursday and we are all very anxious as to the outcome. I don't think that the majority of nursing homes can...
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    New to this site

    Hi Coast, We are having the same problem. My dad who has LBD has been having more frequent agressive outbursts. He is in a EMI placement and as they have a dedicated dementia floor we thought they would be able to cope but apparently not. Even though he is dosed up to the eyeballs! They have...
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    Hello there! My dad is hearing voices

    Hi Scrufy, Just wanted to say I know how scary the whole hallucination thing is. None of my family realised initially the extent of the problem and I think we tried to 'rationalise' what dad was saying rather than admit there was a problem. Dad started seeing things and he used to call them...
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    Where next?

    Just an update. I did ring the Assessment & Care Management Team and got the following information. I spoke to the duty person but she would not give me the team leader's name. She advised that they had information about dad on computer but didn't know whether his records had been...
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    Where next?

    Hi Alfjess Lots of questions so here goes: The team is called Assessment & Care Management Team and I am ringing them to find the name of the team leader on Monday morning. Wouldn't think so. As far as I know there hasn't been a Cpn involved. The last person he saw was in hospital a year ago...
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    Where next?

    Hi Alfjess, I have contacted the person who was dad's social worker and he said that dad's case is on review to another team ( i wonder when we were going to be told that). Dad is actually on the floor dedicated to dementia patients and so I feel staff should have had training how to deal with...
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    Where next?

    Hi Alfjess, Thanks for your positive slant on things and I am very glad that things worked out well for your parents. I do feel that my dad is in the wrong place. They obviously can't cope with his outbursts and are not trying to find out the underlying cause of them, only to use the 'chemical...
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    Where next?

    Hi Connie, Thanks for your response. Dad is funded by social services so I will contact the original social worker as a starting point. The home has not made a decision yet but it has unnerved us all that dad might be uprooted again. I will certainly ask my sisters to speak to the home...
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    Where next?

    My dad has been in a EMI unit for nearly a year and for the most part things have gone as well as they ever can in the circumstances. Unfortunately, he has recently had sporadic violent outbursts which were treated with upping the dose of his medicine (not something the family were happy...
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    An outpatients' appointment

    Hi Sammy, Glad to hear that your husband is improving. To allay your fears could you speak to the neurologist before the appointment and tell him how you feel. Have you been told how the assessment will be conducted? Try and get some more information and it might become less worrying for...
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    Comments Please Seroquel - Anti hallucination drug

    Seroquel (Quetipine) Hi Chris, My dad was diagnosed with L.B.Dementia and prescribed Quetipine. Like yourself I researched the drug and was very worried when I found that it was not supposed to be prescribed for the elderly who had heart problems (my dad was waiting for a pacemaker because of...
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    what do i do?

    LBDementia Hi Poppet, My dad was diagnosed with LB Dementia when he went into hospital after suffering mini strokes while living alone at home. Prior to this we all knew something was up but it was like we were all frightened to face up to it. Dad used to see family members who we knew could...
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    crying

    Hi Jan, It's good to blub! How could our minds cope with all that emotion if we didn't have a release. I cry when I'm sad, I cry when I'm happy, I cry when I'm angry so that's about all the time since the start of this horrible journey into dementia. I am lucky in that my dad still knows who...
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    Tarnished memories

    Hi Kate, I think it's a great idea to get together the photos and family memories. Something positive to do. My family are in the process of doing just that for my dad. He does still recognise people but gets confused with names and who is related to who. Do you have any video tapes of your...
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    Family Discord - can anyone relate to this?

    Hi Misty and welcome, I am so glad that your mum is having a good period at the moment and that you are managing to get her 'out and about'. I wonder what an 'average family' actually is? I am lucky in that I have a large family to spread the load but I have had to bury two hatchets in...
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    Dad's Staying Put

    Hi All, What a difference a week makes! Dad moved into a new NH last Friday and he was put into the physically disabled unit due to someone totally messing up. Basically my sister saw the room in the dementia wing and that is where we all thought he was going. That room was allocated to...
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    future is bleak...

    Hi Jane, I read your post and it could be me writing it. I would just say to your words "there is no light for dad anymore" that the light for your dad is your love and visits to him and the light for you is the precious moments when you see your old dad for a moment. I am not able to be...