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  1. C

    Slipping away

    Sorry to read this Emmajayne, as I have been in this situation too. My dad passed away in March.
  2. C

    Dols

    With Dad passing away last Sunday, we have an appointment to register the death on this coming Monday, and another with the funeral directors on Tuesday. But we had a call from the bereavement office at the hospital to say because of DOLS we could not register the death, and need to wait for a...
  3. C

    Sorry Another Plea for Help

    Thanks for the kind words. Mum's been telling people she's had a good day with me today clearing things out that dad wouldn't allow her to, and searching all his pockets for things he's hidden and lost, whilst waiting for them to call and let us know we can pick up the death certificate. We have...
  4. C

    Sorry Another Plea for Help

    Sadly Dad passed away in the early hours of this morning. Sent from my iPhone using Talking Point
  5. C

    Sorry Another Plea for Help

    Thank you everybody. It can feel a very lonely world going through this. Dad looked comfortable and settled last night. I've seen him a lot worse over the last couple of weeks, but when your told he's at End of Life it feels so much more painful to see him than before. I was telling Mum he...
  6. C

    Sorry Another Plea for Help

    Thanks for the support and the PM's I have received. Mum is staying with Dad tonight and I will spend some time with him tomorrow so she can try and get some rest. I'm ok. I think reading other people's experiences with this horrible disease has prepared me for this moment, unfortunately I...
  7. C

    Sorry Another Plea for Help

    Unfortunately Mum's been told Dad's reached the End of Life stage. Not sure what to expect when I go tonight. Sent from my iPhone using Talking Point
  8. C

    End of life decision

    Hi Helen I am in exactly the same position, so feel for you right now. Last night I thought I was improving things for Dad as I was able to give him liquids, and his mouth signalled wanting. He looked more comfortable after. He did cough too, but looser than it had been. He also spoke a few...
  9. C

    Sorry Another Plea for Help

    Thanks Annie. I don't know where things go from here. It sounded to me that they weren't going to continue with feeding him through a drip if things didn't improve. This is what's getting to me, I got him wanting fluids last night. They've told us he's give up, which wasn't what I saw, yet I had...
  10. C

    Sorry Another Plea for Help

    Thanks everybody, this place is where I find strength. I visited Dad last night, and he didn't look good at first, lay on his side against the bed rail. The nurse came in and let me know the next 24 hours are important I got him playing with my hands, and he was waving them about in a good...
  11. C

    Sorry Another Plea for Help

    I've come home from work to find mum in tears. On her exit from the hospital the doctor has said dad has given up. Getting mum through this is going to be my toughest challenge. Thanks for your support on here. I've learnt that sometimes that there are no answers to the problems we face as...
  12. C

    Sorry Another Plea for Help

    Dad's now into his 7th week in hospital, and not looking good at the moment. Reading the Society's fact sheet for the latter stages of Alzheimer's was probably not a good idea. On Sunday dad looked awful, and ticked all the boxes for the factsheet. He hasn't been drinking or eating much for...
  13. C

    Mother not eating

    Dad's been like this in hospital, and goes off food and drink for a couple of days, but starts again then. There are also times when he stops talking too, but makes strange hand signals
  14. C

    Sorry Another Plea for Help

    Thanks. The girl from the dementia team has said she'd like to see him out of the hospital environment as soon as possible and the reasons why, which is a lot better than the harassment mum got on Thursday. I just got to keep mum calm that it's not an emergency to get him out, and that it's...
  15. C

    Sorry Another Plea for Help

    Dementia team went to see Dad in the ward whilst Mum was visiting. He now has to have an ultrasound on Monday, which buys me a weekend to get some thinking done. But at the same time I'll be feeling I've hit a brick wall till then, with not being able to make any progress I don't whether...
  16. C

    Sorry Another Plea for Help

    After a number of phone calls it seems a lot of it is down to no communications from CHC. It's a bit sad when even the dementia team at the hospital can't get hold of them. Sent from my iPhone using Talking Point
  17. C

    Sorry Another Plea for Help

    Thanks for the replies. If I knew what to do I'd be fine. If they said go and look at some care homes when he was re-admitted we'd have gone ahead and done so in a better manner. But because the way they came across to Mum it seemed it was an emergency, and caused Mum to panic, and the way...
  18. C

    Sorry Another Plea for Help

    Well it just gets more and more tricky. Dad was discharged on Tuesday with a trial of having him back home with supposedly 4 care visits a day, but it failed miserably, probably partly to do with us waiting around for the carers to show up. They tokld us they'd be there at 11-30am with his...
  19. C

    My mum always wants to go home...

    I have a lot of problems with Dad wanting to go home. I wish I could give an answer to solve it for you, but I and many others haven't found the answer yet. I agree with the above poster that 'home' is a comfortable, safe place, but not anywhere specific. On Dad's last bout, I asked where home...
  20. C

    Sorry Another Plea for Help

    We have been informed Dad can't be discharged until he has an assessment, with either Mum, myself, or both present, and we had a choice of putting him in care for up to 6 weeks or bring him home, and have someone come in up to 4 times a day. We are opting for the latter as I think if he goes...