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    Should public buildings have dementia-friendly toilets?

    Dear Sophie, Thank you for highlighting this issue. I can only speak of experience of caring for one individual (my mother) but I think that this is a very important aspect of dementia care. Short car journeys, e.g. to the supermarket, were a key part of our life outside the house. The most...
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    Lewy Body Dementia - what I have learnt - please share what you know about LBD.

    LBD and hallucinations Hi twin2, My mother also has a diagnosis of LBD based on her symptoms which are very similar to those you describe with your mum. Mum was at the stage you mention about 2 years ago, at the time her hallucinations were so severe that anti-psychotics were...
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    Sunshine and Dementia

    Effect of light Spot on "Winnie 10". A significant part of mum's dementia is her reaction to low light levels. We can manage the heat but in the winter with short days or during bad summers where the cloud lowers light levels we have all sorts of sundowning type problems. In the winter I...
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    Coping with aggressive behaviour

    Been there Hi I didn't finish the quotation out of courtesy. I truly sympathise with your predicament. I took early retirement as an emergency measure to look after mum who was on her own (widowed 10 years ago). Mum was wandering and unsafe to be left alone. Over the past 18 months I have...
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    The lack of grief

    A double edged sword? Dear Garnuft I have had a similar experience with my mum. Mum was diagnosed about 2 years ago and since then has experienced (or at least has only shown) a few emotions. There have been episodes of anxiety, fear and frustration but signs of sadness and happiness are...
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    How to cope with dementia patients

    Hi there, I understand your plight very well. As you say this is a psychological problem rather that a physical one. My mum has times when she behaves as you describe. Up to the toilet every few minutes throughout the night. As the night progresses she spends more time in the bathroom and...
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    anti pyschotic medication

    Hi there, My sympathies this is a really difficult one. What follows is a description of my own experience and my personal opinion. I would emphasize this is only one view and others may have more or different experiences. In particular close family care is not always possible. My mum...
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    Has anyone else experienced this?

    Hi, Yes I have had similar experiences with mum. In mum's not in any way related to diabetes medication but simply that mum does not know how to control an urgent bowel movement. Normal movements are no problem but if the urge is sudden she will simply pass stools wherever she is at the...
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    not wanting to go out

    dear Thom, Have you considered using a wheelchair. I had a similar problem with mum. As mum became more and more unsteady on her feet she became very reluctant to go out in case she had to walk. I was anxious for her to get exercise and delayed getting a wheelchair but when I did there was...
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    Variation on a theme of DZU (getting out of the house)

    Thanks Shark2, I am sorry that you are in the same position but your post is very welcome. As always it is good to know that one is not alone. There are many good ideas from others on this topic and I hope you find a way that works for you and your mother. It sounds as though your mother...
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    Variation on a theme of DZU (getting out of the house)

    Fiona and Jackie, Thank you for your advice, I really appreciate your replies. Unfortunately I have tried the tricks you mention. Even the prospect of being alone does not worry her, although she obviously cannot be left alone for safety reasons. I will take on board your comments about...
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    Variation on a theme of DZU (getting out of the house)

    DZU you have my sympathy and I hope the suggestions made by other respondents will be helpful. I have a similar problem. Mum will go out but only in my company. This obviously means that I am struggling to get time to myself. Mum was attending a small and very friendly day centre one day...
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    Moving home to accommodate mum

    Dear Sue and Janice, Thank you so much for your quick replies. I feel like our neighbours have come to our help. My partner and I live in West Sussex and my partner is originally from Lancashire. I am extremely grateful for your advice and I think it will be very helpful as it highlights...
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    Moving home to accommodate mum

    Mum is very fragile and after talking to my friendly Alzheimer’s society advisor we agreed that a care home is not the best option. My own home is not big enough or suitable for someone with Alzheimer’s so my partner and I have decided to buy a more suitable house and move mum in with us (mum...
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    Experience Required

    Been there, still there Dear mamarosa, I have had the same experience with my mum, she became dehydrated and her weight fell to a little over 5 stone. I agree with others when they say you should call in the doctor but would recommend that you ask him/her about supplements, these are...