• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. K

    Trust my instincts?

    Thank you everyone for your much valued advice x sorry can't reply at this moment tomeach of you. Today we visited again ( after trying to yesterday). In the space of an hour two men visited my mum's room on five occasions. No one saw this and my brother had to escort them out on each occasion...
  2. K

    Trust my instincts?

    Just wondering what others think please? My mum has been in a care home for around four months now. I chose this home because I believed mum would be encouraged to join in activities ( downstairs). I have found out now that there are no activities at all upstairs in the dementia unit where mum...
  3. K

    Mum in CH diagnosed with Staph foot infection - is this how it goes?

    Hi you sound like you are already doing so much. I don't know the answer to you question but I can say that an infection in my mum's foot (caused by her dropping heavy glass on it) led to my mum being ambulanced to hospital and then straight from that stay into a care home. I do wonder about...
  4. K

    Live in care

    Thanks but just from the heart. 24 hours later and I am still overworking my brain thinking I can get mum out tomorrow and bring her to stay with me. If I DID do that I am sure I would be back on this forum within two hours saying "what HAVE i done"??? X
  5. K

    Live in care

    Hi not been on here for a while but your post compelled me to write. I don't know if it will help but we tried everything to keep my mum in her own home with live in carers. Sadly she became too much for all of them. She could not understand why there were strangers in her house. She constantly...
  6. K

    Desperation. Repeated phone calls and mum so unhappy

    Mum has been home since July with a carer. Every single day without fail she begs me to tell carer to leave. She can't do much for herself. She has to be reminded to eat, wash etc. Moods are extreme. Weepy then aggressive. Still thinks she shops, drives cooks etc. She hasn't for two years or...
  7. K

    "Do I like her" Mum asked me about her new carer day three of being home

    Well day two was a disaster. Can you believe Mum didn't want to leave the home. She said she was happy there then chaos finally descended. The first day mum woke up back at home she was angry and confused. Typically on repeat "who is this person in my house? Why is she here? I don't want...
  8. K

    Count down to D Day. Mum comes HOME after four months in nursing home

    nerves and stressing fear of unknown when mum comes home Continuing to bore you all sorry. Tired and stressed. Met new carer for mum today and saw her into the house. She has suggested going to see mum but she doesn't know the area. I have now offered to take her to the care home to meet mum...
  9. K

    Count down to D Day. Mum comes HOME after four months in nursing home

    Thank you to everyone who has taken the time to comment. I do appreciate it. I'm afraid I don't hold out much hope of it working out to be honest. Only because my mum is much more badly behaved on her own terrortory. I hope I am wrong. Visited mum tonight. She still says she is fine to...
  10. K

    Count down to D Day. Mum comes HOME after four months in nursing home

    Here we go again. I know we are on a path and I can't get off it. I am just eaten up with worry. Mum is due home Saturday week. Carer moves into her house a week today. Brother who has arranged all this has left the country for a month. Saw mum yesterday. Had to leave as she got so angry...
  11. K

    The Cross Roads concerning mum's care. To Move or Not to move

    Thankyou. I am so sorry you had to go through all that. I am powerless. My brother's mind is made up and the the arrangements made. I am going to keep out of it. I fear the worse. Once she is on her own home ground she will revert to type. Who is this woman in my house. Where am I , I don't...
  12. K

    The Cross Roads concerning mum's care. To Move or Not to move

    Hi,was just thinking how grateful I am for this forum. I tried to go to sleep but as usual awake again. Everyone is so helpful. It's a lonely place to be. You have a person there you can feel them and touch them but they are not there. It's evil and horrific and cruel and I'm angry. You can't...
  13. K

    The Cross Roads concerning mum's care. To Move or Not to move

    Thank you for your valid points. I have pointed some of these out. I agree. No one person can do it all. If she does then she won't be doing it well! I shall raise all the points you raise again and out in writing. Thank you. If I am honest I feel sorry for the carer too! No agency involved. No...
  14. K

    The Cross Roads concerning mum's care. To Move or Not to move

    Dear Amy hello again. Thank you for your wise and valid points. I think mum will be miserable where ever she is. There has been no social service involvement at all. The home say it is up to us. My brother signed papers transferring her to permenant resident last week as respite time ran out. I...
  15. K

    The Cross Roads concerning mum's care. To Move or Not to move

    Dear Fizzie thank you once again for your help and support. I fear all that you say will happen and I think my brother takes what mum says literally. "I want to go home". She thinks lots of people are at home! There's no one. I am so,grateful for the help from this forum. As people said she will...
  16. K

    The Cross Roads concerning mum's care. To Move or Not to move

    Not been here for a while. Mum fell on Easter weekend fortunately I had just walked in. She broke her shoulder and was ambulanced to hospital. After various hospital moves we transferred her to a nursing home as she is unable to use her right arm and can do nothing for herself. She thinks she...
  17. K

    Feeling guilty whateverer I do

    Thank you. I am glad you are getting a break. I don't know what my mum realises and does not. I don't know how or why she can turn on and off her pleasantness to others. Will that go or stay? Anyway while you have a break enjoy some quality time with your OH and get some rest xxx
  18. K

    Feeling guilty whateverer I do

    Thank you for replying. You certainly got the ball rolling for me! I don't know what will happen none of us do. She might forget home and be okay but I fear the worse. I agree time will tell. While she has been away over Christmss her long standing neighbour has moved away. She is even more...
  19. K

    Feeling guilty whateverer I do

    Amy thank you again. So much in common with these postings..... Really helpful xxx