• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. D

    Mum at 'stage 7' aged 62 and I am lost

    Thank you all for your kind words. I really appreciate it. X
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    Mum at 'stage 7' aged 62 and I am lost

    Please help. I don't know what to think or do. Mum is unable to walk, feed, toilet, talk smile, hold her head...pretty much everything. Feeding is a nightmare and I feel like there is nowhere that supports the younger people with dementia and understanding what may happen next. I know it's...
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    Not sure what to do...

    Thanks for all your comments and advice. I went to the doctors and she reckons I am depressed. She has taken blood to do loads of tests, suggested anti-depressants (which I am thinking about) and also referred me to the Memory Clinic for a full review. Please she is taking my concerns...
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    Not sure what to do...

    Hi, Thank you so much for your reply. I took 4 months off earlier in the year and am a little worried about saying...'I can't cope' again. I am trying to breathe deeply and go at a slower pace but sometimes it feels like my life doesnt allow for that. I am also currently the main earner in the...
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    The Forgotten??

    RAMONJKD, I completely understand everything you say. My mum is 58 and in a care home with advanced AD. It's just me and dad that visit now. 'Too painful' for others so they say. All mums friends are long gone and extended family don't seem to care. it's been an eye opener for me and I trust...
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    Not sure what to do...

    Hi, I've not posted for a while. My mum is now 58 and living in a care home with AD in the late stages. I took some time off work earlier this year as I was struggling to cope with everything....mum's decline, the decision to move her to a care home, settling her, recognising mum's...
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    Unsure what else may happen

    Thank you Sylvia. I guess you are right, no one will be able to tell me. I just find it hard....in my day job I plan, know what it going to happen and I can fix things that go wrong. With this illness it is all such an unknown and I feel so unprepared. I just want to be there for my dad. D x
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    Unsure what else may happen

    Hi Jan Thanks for your message. Life just ain't easy sometimes is it? Sending you an e-hug. Mum is on meds and PRN lorazepan and it has been increased recently. They are reluctant to change much more or she'll become sedated...something she never wanted and we don't either. We'll all...
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    family heartbreak

    Pete, My heart goes out to you. You sound so like my dad and I am immensely proud of how he supports my mum. My mum is at the same stage and it is scary and you can feel helpless at times. We have learnt to ride the hallucination out with mum by reassuring her that it is only us int he...
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    Unsure what else may happen

    Hi, It's been a while since I have posted. My mum is 58 with Alzheimers and just over a month ago we had to finally put mum into a care home. One of the hardest decisions we have ever had to make. Still feel guilty and struggle with every visit usually ending in tears. The thing is, I just...
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    Early onset dimentia - Alzheimers and Frontal

    Hi Kirsty, Well done for posting on this forum. Be brave and you will soon find some great support in fellow posters on this site. My mum is 57 with Alzeimers and I am constantly battling the same emotions as you. I'm afraid I dont have the answers but I do try to walk away take time doing...
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    Mum got sectioned and now in psychiatric ward

    Thank you all!! Means a lot to have people I have never met take the time to reply and comment. x Mum was really bad yesterday. The enw drug made her really doppy and she was slurring her words one minute then grabbing and pushing me the next. She didnt understand it was my birthday but I am...
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    Mum got sectioned and now in psychiatric ward

    Hi thanks for all your replies. Sorry I have not logged on sooner. It's been a bit mad trying to be a mum and be with mum at hospital as well. Just about to head in to the hospital to spend today with my mum - it is my birthday - not sure whether to tell her or not. Things are moving along...
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    Mum got sectioned and now in psychiatric ward

    Thanks for taking the time to reply Sylvia. Good advice and we are trying to find medication that helps do just that. Trouble we have is mum doesnt want medicationa nd is refusing it. We are being creative and eventually getting it into her but not yet found the right combination. May I ask what...
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    Mum got sectioned and now in psychiatric ward

    Hi It's been a while since I have been on-line. I used to post regularly but life got a bit crazy and I stopped and just got on with things. My mum is 57 with AD, she was diagnosed about 3 years ago but started to decline about 8 years ago (although we didnt know what was wrong). Mum and...
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    Please somebody help me - I am scared

    Hi Yes we had a carer's assessment but that was Christmas time so need to do it again I think. I go to the Memory Clinic as often as I can. It is hard as I work 40 miles from home (in the opposite direct to the memory clinic) and my job takes me away from home a lot too. In this climate I...
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    Please somebody help me - I am scared

    Oh Vonny, just the fact you took the time to reply to my thread has me in tears (sitting at my desk in work). I hear you though - everything you say and you are right. I guess I am avoiding having these kind of chats with my dad. He is a proud man, stubbon and doesnt show his feelings much. I...
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    Please somebody help me - I am scared

    Hi, I have not logged on or posted on this site for some time. I thought I could cope with everything but not sure anymore. My mum is 57 and has Alzheimers. She was diagnosed about 3 years ago after a few years of not having a clue what was wrong and endless tests. She is currently taking...
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    Taking mum a wee holiday

    Hi, Thank you for making me remember WHY I was doing it. It brings perspective back, something I think I lost along the way there. Diane :)
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    Diagnosed with AD then what??

    Jan, Thank you for your lovely note. I just wish I felt like I was doing the right thing by mum and the right thing by me. All we can all do is keep trying and keep talking I guess. At least on TP people really understand our thoughts and emotions and it feels safe to safe such things...