• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. H

    Active management of chest infection post aspiration pneumonia

    I would look at whether you believe your mom has any quality of life or is she just existing? If so, providing medical intervention is prolonging her life when if nature was left to run its course then the inevitable would happen. Why are decisions being made to prolong her life? Is it the...
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    husband end of life, fearful of visiting

    So sorry for your loss Wilburdoo :( Virtual Hugs My husband too was only diagnosed in May 2017 (already moderate at that time) and has now been in a Nursing Home since Dec 14th and has been severe since at least the summer of 2018. He was diagnosed with Alzheimer's but I am convinced he had...
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    Time for Respite or Full Time Care?

    Thanks for your responses and support - we are not self funded so need to have the LA/SS on-board. Meeting on Monday should make things a lot clearer - have found a new Care Home locally that is ideal at the moment for respite but outside the cost SS will fund - thinking of ways to fund it for...
  4. H

    Day Centre.

    Yes - do preserver - being of opposite type (one needing space and quiet/ one needing people and social interaction) did not seem much of a problem when you were both able to manage your own time but once that changes.........oh how I crave my own space, it is my sanity but while he is at the...
  5. H

    Time for Respite or Full Time Care?

    OK - I think I know the answer to this one - I guess I really want my husband to go into full time care now. He started at a day centre in July and is now going 5 days a week. He initially resisted it, but spoke to the DC manager on Friday and she said that while he asked about myself or the...
  6. H

    Day Centre.

    You are almost there if he wants to go - grab it with both hands!! My husband did not really want to go - I never had trouble getting him into the car in the morning as every morning he thinks he is going somewhere. At first when he realised he was going to the day centre he used to object...
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    Is respite worth it?

    Yes, it is hard being away from family but I have been here for 40 years now so have become used to the distance and thank goodness for technology!! It does not seem nearly as far with messaging these days sooo much better than 40 years ago when I first moved to the UK!! One of our children...
  8. H

    Is respite worth it?

    Interesting reading everyone's posts and can say I relate to most of them. My husband was only diagnosed last year but has had it (well I first noticed it) in 2011. Over the years we have travelled a lot firstly both of us had jobs that involved a lot of travel and then after I retired, we did...
  9. H

    How to deal with OH's Delusional World

    My OH basically now lives in a total delusional world - virtually nothing he says or thinks is based in the real world and I really don't know how to deal with it. he thinks our cars are leased (they aren't) and keeps wanting to know when I am taking them back, have I arranged to return them...
  10. H

    Lack of research and any sort of breakthrough

    Hi @totallyconfused If you are interested in research into Dementia/Alzheimer's, there is a book that was published at the end of 2017 called In Pursuit of Memory: The fight against Alzheimer's by Joseph Jebelli that I would highly recommend. It is very readable even though it does have some...
  11. H

    Dealing with emotions...

    Hi @Elmo I am not going to be much help just to say this resonates with me as my husband has dementia and at times all 3 of my girls have been in tears over their father's illness - I struggle with my own emotions and then supporting them too - while I know they are trying to support me. He...
  12. H

    who are you

    While I certainly can't say if your mom has Lewy Body dementia, it does sound very familiar. My OH was diagnosed last year with AD but I think he has Lewy Body Dementia. He has been seeing people/animals and had hyper sensitive hearing for a couple of years now. It is an everyday occurrence...
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    Day Centre - How to get my OH to go

    Well we are coming to the end of August and while the 4 days a week is good for me, well sort of, not sure it is going to last. My daughters took him yesterday and today and both times he said he did not wan to go, although has gone. When I picked him up yesterday he seemed fine, we will see...
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    The next step...

    The other option would be to have 24/7 live-in care, it is cheaper than a care home and perhaps something more acceptable to your father? If it was me I would opt to go for respite as Selinacroft suggests as the first option as your father will need all his effort to be concentrated on his own...
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    Discharge from hospital into a residential placement

    Yes, will have to look into respite too as will definitely need some over the coming year/s. At the moment I have just started OH going to a day centre 4 days a week and that is such a relief! Good for both of us, as he sleeps much better when he has been to the DC even if he does complain...
  16. H

    Discharge from hospital into a residential placement

    Thanks for your response - wonder if they will support that option as I live here.....will have to do some investigation I guess.
  17. H

    At the end of my tether...

    How did it go with your MRI scan? My SIL has lots of aliens (so far benign) - has had to live with them for years and had various surgeries to remove them when they get too big, so has MRI's every 6 mths to ck on them. Has had one removed from her brain but has 2 more lurking...had a huge one...
  18. H

    Discharge from hospital into a residential placement

    The experiences listed here leads me to think that reviewing all the homes in the area before they may be needed is a good idea. While you may not know when or if you will need one, I like to be in control and plan ahead for all eventualities, so think this will be on my 'to do' list for the...
  19. H

    Further decline

    . My husband does not remember living in our home of 35 years - so know where you are coming from. He can not find his way around, doesn't know where any of the rooms are and can not follow direction, so you have to take him where he wants to go. He just microwaved a piece of bread (who...
  20. H

    Lack Of Sleep

    My husband is in the late mid stage but unlike your partners is still mobile and talks (total rubbish, as nothing he says is based in reality) but was up almost all of last night, getting up almost every hour and trying to get dressed. Putting on the light and took all my will power to not yell...