• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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    Two years to get this bad. What now?

    Hi everyone. Hope all well went with your new year celebrations. All my doubts about coming here to New York alone have been well and truly kicked to one side. It’s been an excellent week. I’ve met some lovely people from all over the world. New Year’s Eve went well, the river cruise out by the...
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    Two years to get this bad. What now?

    Hi. I know exactly what you mean, I too often have those same thoughts. But I realise now that she’s out of my reach and drifting further away. The only solace I get from this is the thought that wherever she is she’s happy there. There’s nothing I can do to change things so I carry on , doing...
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    Two years to get this bad. What now?

    Hi I couldn’t agree more. I went for a walk through Chinatown last Saturday. I’ve never seen so many people, all just going about their daily business. I walked through a park and it was full of people sitting around park tables playing cards, all wrapped up to keep warm in the late December...
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    Two years to get this bad. What now?

    Hi. It does get better but it’s never the same. Think that sums it up. Enjoy your evening with friends, it’s the best thing you could do. Have a good new year, Al.
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    Two years to get this bad. What now?

    Hoping all goes well for you and you get that much needed rain sooner than later. All the best for new year Al.
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    Two years to get this bad. What now?

    Hi. I’m getting regular pupdates from home, looking forward to getting back refreshed and ready to take on the world .happy new year
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    Two years to get this bad. What now?

    It’s a fine line between bravery and foolishness. There have been times when I wondered if I had made the right choice. On the whole I think I did. If it’s a distraction you want, this is the place .
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    Two years to get this bad. What now?

    Hi. It’s been quite a while now since last posting. I’m in New York now for the new year celebrations, I’ll be staying away from Times Square, that’s for serious revellers . I’ve booked a cruise ana meal for myself on the night. I’m trying to enjoy myself but as time goes on it’s like I’m...
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    Two years to get this bad. What now?

    His. It's hard to believe that it's over a month now since my last post. I must be feeling better. I was out earlier with friends, not a care in the world, well, barely a care. I came home shortly before midnight and spent an hour with those two lovable pups before bed. At twelve thirty...
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    Two years to get this bad. What now?

    Hi. This is my second attempt at a post over the last couple of days. The last one was deleted barely into the first sentence. Not because of upset or depression or any negative reason but purely because it was so similar to my last post. Why then am I here tonight then? I said I'd keep you...
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    Two years to get this bad. What now?

    Hi again. I had intended to post roughly once a month from here on in but I feel that there are a couple of things worth sharing. Yesterday, Saturday, I reluctantly went to visit the care home. I say reluctantly only because it has such a negative affect on not only me but also my wife So...
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    Two years to get this bad. What now?

    I certainly will. Al
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    Two years to get this bad. What now?

    Hi. It may be apparent that my posts are getting further apart. Please don't read anything into this other than I'm now quietly getting on with life. I'll never stop posting updates on here but as time goes on they will get further apart. It's impossible to carry on with life worrying about...
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    Two years to get this bad. What now?

    Hi. It's only been a couple of weeks since my last post on here but it feels like a lot longer. It's a month now since I returned from my trip to Florida and the post holiday feel hasn't gone away. After a couple of visits to the nursing home nothing had really changed, still the shouting...
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    Two years to get this bad. What now?

    Hi dementia is a very strange disease indeed, it affects different people in different ways. I'm certain if my wife was calmer and less aggressive she would be still at home with me as tha sole carer. However, in our case with the aggression and threat towards myself and my daughter the...
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    Two years to get this bad. What now?

    Hi. It's nearly three weeks since I last posted on here. I can't believe how quickly the time has gone! I'm still feeling good about life in general so that Florida sunshine break wasn't wasted. It's so easy to get carried away and make all kinds of plans while you have the time to relax and...
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    Two years to get this bad. What now?

    Hi again. It's ten o'clock on Wednesday morning. The temperature is approaching 90 again, I've got three full days left of my holiday and I'm ready. Ready to come back, fully recharged and refreshed. Holidays for me have always been a time to relax and reflect on the past year and to make...
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    Two years to get this bad. What now?

    Hi. Dare I believe summer has finally arrived back home. If it has I'm definitely coming back next Sunday. The sunshine down here is great for oranges and tourists but give me the soft kiss of the gentle summer rain of Cheshire any time. But for today, anyone for the beach?:):):).
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    i feel very lonley , just need a hug

    Hi. Your post could so easily be mine and I'm sure many others on this forum. The loneliness can be crushing at times but trust me, on here you're never truly alone. You have more friends than you realise, all in the same mind, For me it's not just the loneliness, it's the guilt and the...
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    Two years to get this bad. What now?

    Hi again. I had my doubts about taking a holiday but one week in and I've decided it's the best decision I ever made. I left the guilt at Manchester airport and have thoroughly relaxed since I got here. We've had our fair share of rain but at least it's warm rain. I could quite easily cope...