• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. K

    Is grief normal while Dad is still alive?

    I am sorry to hear that and thank you for taking the time to reply. It is so hard to stand by and see the effect this has on the sufferer and their families.
  2. K

    Is grief normal while Dad is still alive?

    Hi, thank you for taking the time to reply. We have tried to get Mom to talk to someone and will continue to suggest that. I think she is afraid of what she calls, giving in and sees that as failing when we all know that it isn't. Talking to us is not like talking to a professional but it's all...
  3. K

    Is grief normal while Dad is still alive?

    Thanks for your kind words. Sadly there so many of us in this awful position. Will keep posting.
  4. K

    Is grief normal while Dad is still alive?

    Me too! Isn't it heart breaking? I miss so much of him, for instance, I look around my home and remember him helping me to decorate it. He was a brilliant painter/ decorator. Now he has no idea what to do. I feel your pain too Cat.
  5. K

    Is grief normal while Dad is still alive?

    I am currently off work due to stress some of which is due to work related stuff. However, part of my problem is due to the issues we as a family are struggling with. My Dad has mixed dementia and while he looks quite well, he is slowly slipping into his own little world. Mom is is full time...
  6. K

    Supporting someone caring for partner with mixed dementia

    Been to see parents today. My husband is very good with Dad and took him for a walk while I had a chat with Mom. She had a weep and said she is frightened which of course she is. She doesn't like to keep bothering us she said. We had a good heart to heart and I think she feels better for...
  7. K

    Supporting someone caring for partner with mixed dementia

    Sorry to hear about your husband. Again, I am grateful for your help here. I did not realise how much help she could get. I will ensure I get her in touch with them asap. Thanks and take care.
  8. K

    Supporting someone caring for partner with mixed dementia

    I appreciate your advice thank you. If I can get the practicalities sorted, then the rest will be dealt with as and when.I am trying hard to protect her from the tedium of form filling and phone calls but there are times when she feels we are all getting on at her poor love. Difficult times...
  9. K

    Supporting someone caring for partner with mixed dementia

    thank you Thanks for the good advice. I suppose deep down I know what I have to do and in some ways I am just trying to come to terms with it too so confirming my feelings is helpful. I am bracing myself and my family for what is to come but I guess this is difficult to predict. Thank you for...
  10. K

    Supporting someone caring for partner with mixed dementia

    Hi, this is my first ever posting. My Dad was diagnosed with mixed dementia just over 6 weeks ago. My mom is struggling to come to terms with it and there are days when she accepts the diagnosis and other days where she refuses to. She is 74, Dad is 77. They have a house and a mobile home which...