Search results

  1. P

    Just don't know what to do

    I sympathise with your situation as I have experienced this in the past. When you say he is in respite was that for a specific time? What type of care home is it and what was the long term plan? Are social services involved? I suspect not as you are self paying. I know that lockdown has...
  2. P

    Lock Down at Care Home

    I was certainly not advocating lots of visitors being allowed into care homes. We know they were under the radar initially as far as Government was concerned and discharging patients from hospital without testing to care homes is inconceivable but it happened. Some care homes have managed...
  3. P

    Lock Down at Care Home

    I speak to my OH, on the phone, every day in his care home and have been visiting once a week under Covid rules . Prior to lockdown I visited every day, did washing, sorted clothes and replaced as necessary, checked his catheter and politely voiced any concerns to nursing staff. These Covid...
  4. P

    Nervous

    No you most definitely are not. I feel very much the same about my other half. I speak to him on the phone daily but he is very confused and is now going through a phase of wanting to go home and packing up all his pictures, etc. He says he is Imprisoned against his will and wants to report...
  5. P

    Korsakoff Dementia

    I so agree Palerider. It’s very easy to be judgmental about alcoholism and I agree that living with an alcoholic must be absolutely devastating. But it is an addictive illness that is stigmatised and goes untreated most of the time. Korsakoff’s is missed all the time in A and E when it should...
  6. P

    Edge of danger

    I too feel like this and expect, like you, I always will. My OH has been moved several times one one year and after seven months in an NHS mental health unit preceded by two failed residential places, and admissions to hospital, he has now been in his new nursing home for two months. All...
  7. P

    Colonoscopy? No thanks!

    I think this is a tricky problem. My OH was bleeding, blood in the stool, and the consultant and I felt the source should be investigated even though surgery would not have been undertaken had a malignancy been identified. The hospital undertook a virtual CT colonoscopy which did not involve...
  8. P

    What's there, when there appears to be nothing left ...

    I am so sorry to hear about Keith. You grief must be intense but I hope you will take comfort from knowing you did everything you could and were never found wanting. You have the caring gene and I think Keith’s nursing home will miss you so much. Or perhaps you will continue to visit? I...
  9. P

    CHC (Continuing Healthcare) support thread

    My OH underwent DST CHC assessment in March 19 instigated by his NHS unit and scored 1 severe 1 high 5 moderate 2 low 2 no needs I represented my OH at the meeting which was properly convened. My strategy was to complete the DST myself and use my typed domain assessments to argue the case. I...
  10. P

    Care home to care back at home - LA funding/cap

    Wanting to go home is so common in dementia. Does she really mean her bungalow? Also who knows if the carer has been woken up more than twice a night? Has she been assessed for CHC? What happens when the carer doesn’t show up, less likely if LA is organising, but it happened a lot when we...
  11. P

    Council Tax Query.

    I have a dilemma in that my OH is in hospital and is unlikely to come back home. We are long term partners but each have our own properties with 25% single occupancy Council Tax discount. For the past two to three years I have spent the majority of time looking after him in his home with a...
  12. P

    Care Home funding

    Thank you for your valuable advice. I’m finding this very difficult. My mother died of dementia in residential care and I didn’t feel the same pressure but my father had died and the family home was sold so there was nowhere else to go. Perhaps it’s the difference in relationship or the fact...
  13. P

    Care Home funding

    Thanks Nitram. I ‘phoned the OPG and the chap I spoke to was very helpful. He said despite having registered the EPOA it was still possible to set up a LP for H&W if the PWD is able to sign. There are times when my other half will do this “in the moment” having explained it to him. I expect...
  14. P

    Care Home funding

    Thank you for all your help and advice especially as you must be busy and sad dealing with your late father’s affairs. I have seen a newly available room in the only residential home accepting challenging behaviour recommended for my OH by the NHS unit where he has been for three months. The...
  15. P

    Care Home funding

    Thank you Elle3. I have gone off point here as this thread is about care home funding. CHC would have helped eek out funds for his next residential placement even for three months. The home has agreed to two years using my EPOA but I will seek advice as Nitram suggests about the longer term...
  16. P

    Care Home funding

    Thank you Nitram and responders! My OH was not sectioned. Since I posted I have made it clear to OH’s next placement that I will not sign any of their contract other than to say I will as EPOA give an undertaking to guarantee there funding for two years of fees. Having just done a CHC MDT and...