Thank you for your reply
Indeed it is breathtaking and not uncommon, and it heightens the isolation and lack of support as a Carer
Like a fool I imagined "end of life" care would involve a more sympathetic and professional approach from District Nurses, Social Workers. GPs and all...
My Uncle has been in poor health for 5 years now and I have been his Full Time Carer throughout - He became markedly weaker and unsteady just prior to Christmas last year - I got the GP to visit and he took Blood and Urine Tests - the results of which showed no major cause for concern - His...
Havent posted since Sept - My Laptop was stolen on a Saturday in Sept when my Sister looks after my Uncle and i go home and "relax"
Both my Sister and Uncle were in the House when it was stolen
I was relieved that this was the extent of my hardship
Its currently in the hands of the "safeguarding adults" team
Legally I am wary of the vultures that circle "no win no fee" etc Mps I tried with no response - I have a contact in the press which is my last resort
Im just tired of trying to get this sorted
Im not after money or exposure...
No show from Nurse this morning - they are due at 9
No phone call No contact
4.30 this afternoon got a call saying they would come tomorrow
As an example of the delivery of this service the past five days have consisted of
Mon 8.35 - phone call at 9 from 2nd...
My situation is exactly the same - after the complaint
Nothing has improved - Nothing has changed -
I pity the people who receive this service and are alone without anyone to complain on their behalf
Thanks to those who replied
9 months of emails, phone calls, letters, 5 different Advocates and it all comes down to nothing...
I realise the system is flawed but, boy what a sorry state of affairs
Worthless in the final outcome - and to top it all i went through the "formal process"...
9 Months into a formal complaint
Along with a trip to the Ombudsman for good measure
And everything remains the same - Nothing Resolved - No further forward
Complaining to "Pals" is a waste of time
Complaining about the NHS is a dead end
I feel worthless as a Carer
9 Months since my Formal complaint through Pals was sent
2 Responses later and a final try through the Ombudsman
and I am right back where I started
Nothing has been done - No Issues have been discussed - No contact whatsoever from the Nursing team - The Service is as poor now as when...
I spend 6 days a week in almost total silence - my Uncle makes no effort to talk at all despite constant urging on my part - I arranged a Goodgym volunteer to come weekly but even she struggles some weeks - basically he makes no attempt after he knows somebody
You are urged to go the formal route and you know before starting that its a waste of time
Im in the hands of the Ombudsman and i still have very little faith
That people should go through life and end up in this mess is beyond depressing
Went through "everything available" and decided "real help" wasnt available
The memory clinic are just ticking boxes and filling in forms
Meanwhile people are passing with little or no help at all
Irs Very sad - but its true
Had a visit from the "memory clinic" today - spoke to my Uncle like he was 6 years old and told me i was doing a fantastic job - They will now check in on a yearly basis
This is the reality of "dementia care" 2016
Ive had 2 replies to my Complaint via "Pals" - both of them are similar in tone and address none of the issues i have with the service delivered - It has now gone to the Ombudsman but i am now lost in this process and am considering Legal action
Why does it have to be like this?
Ive used Dementia advisers, Carers Centre staff, Advocates,Social services, Ageuk, Mind, Community matrons etc....Support is so fractured and random that a Carer has to contact as many people as possible in order to get decent help. If only all these agencies actually spoke to each other - Oh...