Search results

  1. L

    what do I do all day.....

    All the above , plus if you have a 'spare' half an hour - trying different ways of engaging/ entertaining/ stimulating the PWD e.g. Finding repeats of Antiques Road Show on TVs, singing along to old songs on You Tube, colouring , painting, looking at picture books. NONE of which are how you want...
  2. L

    The speed!

    This is exactly how dad 'escaped' twice from CH! He usually needs a wheelchair for anything more than a few yards, so how on earth did he slip through a door and zoom half a mile downhill? I m glad his 'blue badge' isn't due for renewal , wouldn't know how to answer the question about how far he...
  3. L

    Home versus home

    Hi Northern Like all of us on here, some of our situation is like yours, some different . All people with dementia are unique - but oh do we understand the stresses and worries! We looked after dad for 18 months in our house, with a complicated pattern of family , carer and daycare in a care...
  4. L

    Carer's Assessmnt .... what's the point?

    It was the same for us - became obvious straight away that anything offered by our local authority was going to cost £20 per hour. We didn't bother to fill out the (very long!) forms to start the assessment. To be honest I was too worn out to bother ! We paid a local ch for one day a weeks...
  5. L

    Is it wishful thinking?

    Congratulations! We had 2 PWD at my daughters wedding last summer. My dad ( grandad of the bride) and the gran of the groom. Neither were able to be involved in any planning , but they really enjoyed the day Dad was well looked after all day by uncle of the bride ( including dragging...
  6. L

    Having problems maintaining hygiene

    Dad was on iron tablets and started having toilet 'accidents'. He was just too slow moving to get to the loo quickly enough, and the iron was causing diarrhoea day and night. We talked to his GP about quality of life versus ideal medical treatment ( and that included life for us cleaning up the...
  7. L

    How to cope with hallucinations

    Sorry I have no first hand experience of DLB , but someone more useful will I'm sure be along soon! Meanwhile I hope you have a peaceful night x
  8. L

    Pets at Home

    Still hoping to bump into the reindeer
  9. L

    Pets at Home

    Dad , in his CH, solemnly informed us that 'the trouble with this place is they don't take any notice of the reindeer' We have no idea what he meant, and as far as we know there are no reindeer in residents room, lounges , or even in the garden !
  10. L

    For carers worrying about their own memory

    You have all cleared up something for me . Don't know why I didn't think of it before! The past 2 years of caring for dad I have felt my memory was not as good as it used to be. Resorted to notebooks for important stuff, and if something wasn't written down, then it was likely to be in one ear...
  11. L

    The day I have been dreading....

    Definitely agree Shedrech, when dad wandered out of his first care home it was so tempting to bring him home ( the guilt!) but we stayed firm & found a safer place .
  12. L

    5 days to to and feeling upset and anxious

    Oh it's a horrible decision to have to make, and we have been there recently . But now we have made the move, and dad is in his care home. When he was living with us ( and doesn't that sound good ' living with his family, being cared for 24/7' ) the reality was that he was often confused, asking...
  13. L

    The day I have been dreading....

    Thinking of you today. We were at the same point a month ago, then again last week because the first care home didn't work out ( not secure enough, our Houdini managed to escape !) . But you will hopefully find it positive in longer term. Dad is settled now, chats to other residents , tells us...
  14. L

    Calmer times

    Dad lived with us till Christmas, with steadily progressing Alzheimers. With daycare and carer it was just about OK for all of us. At Christmas things took a difficult turn with Dad waking dozens of times a night, getting dressed, wandering , falling. He was oblivious, perfectly happy the next...
  15. L

    Leg and foot pain with dementia (PCA)

    Hi I haven't really got any answers, but Dad sometimes asks ( either dramatically, or frightened, depending on his mood) what is the matter with his legs, he can't move properly etc etc. When we try to find out more, it seems to be because he thinks he's about 20, and can't understand why his...
  16. L

    Dad sadly passed away November 2014 and Mum constantly asks where he is.

    Mum died in November and Dad asked for her constantly for months, and cried off and on all day, every day. In the end he was prescribed anti depressants, and it has really helped. He is more confused as the AD is progressing, but at least he is happier. He still asks for mum, but not so often ...
  17. L

    my mom thought I was a friend

    It does hurt, it's one of the hardest things to accept. My Dad confuses all relationship words. At different times I may be his sister/ daughter/ friend, but he still knows me as Liz. So maybe your mom knows you by your name, someone she loves and feels loved by, even though she has 'lost' the...
  18. L

    Struggling

    Like College girl , we use a care home for day care for my Dad, once a week. He goes mid morning, and stays for lunch & tea. They are lovely with him, and it's cheaper and more flexible than the local day centre ( which was full ). Also has the advantage of being all year round - he went one...
  19. L

    Self Pity

    Hi It's a grim life isn't it ! Some days ( well most days really!) I dread going home from work and back into carer role . So you are not alone, and I am not surprised you are feeling down. Being unwell yourself must be the last straw. Do you usually enjoy your work ...
  20. L

    Puréed food

    It's just so unfair ( as with everything to do with dementia !), it's a symptom which we were not expecting for years yet - but of course everyone is different. He is still mobile, still talking , does not get infections, looks fit for his age, but is losing the ability to swallow safely...