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  1. S

    Levelling with Invisibles

    Carers allowance I think Carers Allowance is a joke for the amount of work involved. I work full time, my Mum lives with me and has AD so we don't get CA. I think AD is a really expensive disease. Most Carers I come across are living from week to week, it's a national disgrace when you think...
  2. S

    What a misery!

    Yes, and if they could make some biscuits as well I would be seventh heaven!!!!
  3. S

    What a misery!

    Oh please, so she thinks only fat people get dementia? I don't think so. Home made cake, you really can't beat it!!
  4. S

    Obsessed with stealing

    Love lies didn't work with my Mum, I tried, but cracked after a particularly hard episode and just told my Mum that 'Nan is dead, she died of lung cancer and you nursed her' She just simply accepted it . However Mum lives with me and her sundowning is really bad some days.
  5. S

    Entered into the dementia world

    My heart goes out to you, please take care of yourself - it's dreadfully hard with one, I don't know how anyone could cope with two.
  6. S

    Cancer care vs dementia care

    Completely true, and they are going to be curing people with cancer that will, in the future go onto develop dementia - that has no cure and has had very little funding .
  7. S

    Cancer care vs dementia care

    I think the care for people with dementia is dreadful. As for us carers all we have are people that 'sign post'. I've had my fill of 'signposting' and nice shiny leaflets. I understand it's because of funding - but don't they realise that a lot of those people that are cured from cancer will...
  8. S

    Heartsick Over Mother's Cruel Comment

    I just want to give you a virtual hug xx
  9. S

    Heartsick Over Mother's Cruel Comment

    I have always had a fantastic relationship with my Mum. My Mum was diagnosed with AD last Christmas, but she's had it about 5/6 years. The last 4 months have been the worse. She says awful things to me. She calls me everything from a pig to a goat. I believe it's not her, the mother I loved...
  10. S

    In need of advice

    Ring Social Services and ask them for a Carers Assessment. You are entitled to one, you can then ask to be referred to a Social Worker - if the GP won't give your Mum something so you can have sleep you will get Carers burn out.
  11. S

    In need of advice

    Why is her GP reluctant to give her something to sleep? If you have constant broken sleep how can they expect you to be able to continue to care?
  12. S

    She's FINE - so we the authorities don't need to do anything but YOU should...

    After everything I've experienced with AD I will never judge those people that put their mum in respite care and then said, sorry, she's not coming back to the house and didn't go back to pick her up, even after being contacted by Social Services. I think when people get to that point it shows...
  13. S

    She's FINE - so we the authorities don't need to do anything but YOU should...

    This is completely right - and I think it's one that social services forget - we don't have to care - they can't make us care. I think we are our own worse enemies sometimes, I adored my Mum, but after living with AD for 6 years I feel I've done my bit. I feel Social Services now need to step...
  14. S

    They don't tell you these things...

    I'm sorry Mal2, I'm just in a really rubbish mood this evening. Thanks for your advice xxx
  15. S

    Pull ups

    Thanks for that. I was thinking I'll have to have her assessed by the Continence Service because she's constantly having accidents - but I've heard they don't use very good pads.
  16. S

    Sleep and Alzheimer's

    That is so interesting, my Mum is starting to really wander now at night
  17. S

    Someone is possibly stealing from my mother in law

    My Mum is always putting stuff away and not being able to find it. This includes her false teeth, she's also done it with money, and my money, books, papers, anything
  18. S

    Pull ups

    I think I'm going to have to start my Mum on pull ups - she's quite a big lady - does anyone have any suggestions - or experience on what one's to use?
  19. S

    They don't tell you these things...

    It's a horrible lonely disease. Today my Mum fell again, and has broken her wrist - again. This morning I found the toilet covered in poo, the floor, mat, basin. Her bedroom door was open, she was sat in her chair whilst her bed was covered in, yes, you've guessed it poo. So before I had to...