Search results

  1. D

    What do i say?

    Hi All I have looked after my friend ,who has Lewy bodies, for 2 years and because it is up and down all the time i have never had respite as i have felt it would take so long to get him back on track it wasn't worth it. He has been very confused and very jealous of me of late and i feel he...
  2. D

    Dealing with guilt

    Hi Everyone, My LO has lewy body dementia and is up and down like a rollarcoster. He doesn't know sometimes where the toilet is but other days has a better recall of days than me. He is going through a bad patch at the moment, he's lost time, day, year and thinks things are normal. I haven't...
  3. D

    Who else is coping with Lewys Body Disease patient

    Hi Everone i haven't been on for a while but am still reading. I look after my friend who was diagnoses with LBD after alot of nagging and paying to go private.It is a rollercoaster- no two days the same-some days nothing wrong, other days hallucinations, and some days in a long sleep. The...
  4. D

    Lewy Body

    Thanks for your replies, The doctor prescribed Quetiapine which we started, and for the first three days i didn't sleep. Yesterday and today he is back to normal i can't beleive the difference.We went out in the car today ,had a laugh, got lost, came home and have been in such a good mood its...
  5. D

    Lewy Body

    Hi Geraldine When you say the later stage how bad was she .My friend is hallucinating on and of every fortnight and gets confused. but is ok in between for a few days. He was described with quetiapine for this, did your mother have this ??did it help.He has been diagnosed with parkinsons for 5...
  6. D

    Lewy Body

    Hi Every one We went to the hospital yesterday and was diagnosed with Lewy body dementia.I am glad that i now know what i am dealing with but am frightened of the out come. The info i have read give the average of 7 years for the disease from the start of the symtoms. I can't remember how long...
  7. D

    Crawlies

    Hi sorry i only seem to post when i am having a bad day but thats when i feel you guys are there. Last few days have been going down hill with sundowning etc but we now seem to have a problem with food. Yesterdays dinner of liver and onions turned into a crows head and giblets, the icecream...
  8. D

    Personal Slave

    hi happy new year everyone. I am very down at the moment as i seem to be a personal slave for my friend. Every time i sit down he want something trival i think its just for attention but he seems to be at me all the time. The nights are as bad and he calls me 3-4 times every night for nothing...
  9. D

    Alzheimers ??

    Hi could you pls give me you experiences of AD, as i am not sure if the symptoms my friend has are AD. He has alot of the symptoms that are described on this site but he seems to get better for a week maybe more before having another lapse. When he is ok he is quite normal, short term memory...
  10. D

    I am so confussed

    We haven't had a diagnosis yet. Been for MRI and other tests but am still waiting for a follow up appointment after being told if was anything serious we would of been informed! My friend suffers with paranoia and sees people in the corner, won't except that this is his house, he thinks somebody...
  11. D

    going home

    Can somebody help me. My friend wants to go home, how do i convince him that he IS HOME He believes that some one has moved him and all his furniture and put him in this place. I can't convince him that this is his home , he does get very upset and verbaly nasty.Any suggestions Thanks Doris
  12. D

    Bad Head

    Hi everyone Has anyone had the symtoms that my friend experiences as non of the doctors that have been here can help. I don,t know if it is connected with AD or another problem completly. He complaines of a giddy head which effects his eyes (blurred) ears (but a bit deaf anyway) and speach...
  13. D

    Is It Just Me

    I rang the consultants secretary again today to be to that my friend has been referred to another doctor but we don't know how long that will take. He is having a 'sleep day' today where he does sleep all night and has difficulty awaking in the morning. Does any one else experience this, it...
  14. D

    Is It Just Me

    Hi every one, Things are not too bad at the moment and we are going through a good period (only one all nighter) this week. I still haven't recieved any results from the specalist so i rang. The secretary said that we would recieve the results shortly with a copy going to the doctor. The same...
  15. D

    speach problems

    Hi Has anyone got experiences of their loved ones voice changing and having difficulty getting their words out. It sounds like he is short of breath but his chest is fine. Whilst i am on can anyone tell me how i can convince my friend that i am not going to leave him or put him in a home. He...
  16. D

    look for a home?

    Hi my friend whom i look after is coming out of hospital on Monday after an infection and is physicaly well but he does not of seemed to come back mentally. He is still hallucinating and very confused, living in the past. I have no experience of this disease am am still waiting for the results...
  17. D

    Hallucinations are back!

    Hi Kathleen May i ask why they are weaning the drug. My friend is on these tablets and has recently had a bout of hallucinations but they have passed now. He talks to his dead father and his sisters whom he hasn't seen for years. Are these tablets supposed to help with this? I get very...
  18. D

    lewy bodies

    Hi Blue sea A lot of people say look after yourself but its easier said than done. Did your father have normal days? I went to the hospital today and had a good sane conversation with my friend although he can't remember yesterday or this morning or anything before that moment. One of his...
  19. D

    lewy bodies

    Thanks Geraldine Your mothers symptoms are very similar to my friend who has been taken into hospital this weekend for an infection. Previous to this he was only sleeping for 2 hours at a time and dreaming, and shouting whilst sleeping. I am finding it hard to keep my patience as i can't go...
  20. D

    lewy bodies

    Thanks for that Geraldine I have been assessed by the ss and have toileting help 4 times a day but restbite is more trouble than its worth as he get so confused being in a different place that it can take a long time to settle him back down. Did you find that lewy body has stages like AD if so...