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  1. R

    Nonstop talking

    Yes I was willing to try any drug at one point, just to try and calm mum down a bit when she went completely out of control. One antipsychotic drug that had lots of side effects just made her very dopey and sleepy, another one made her worse. We settled on mirtazapine in the end, but she was...
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    Nonstop talking

    Yes its tough. My mum would get up every night, start packing into carrier bags usually, and get ready to go home. She would do this during the day as well and I would take her out for a drive and usually for a cup of coffee and cake at a supermarket, this seemed to take her mind off it and calm...
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    Dad needs a care home - it's a minefield

    Thats close to £140, 000 for 2 years, seems like such a lot of money, why is it so expensive these days?
  4. R

    Eating...not eating...drinking..not drinking

    So difficult, hugs from me too. When my nan had dementia and mum and dad were caring for her at the end stage, she was 97 and blind when she died, I had no understanding of any of this and would get very angry thinking that she was just a difficult and attention seeking old woman. I was a young...
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    Disgusting toilet habit

    I remember the time when I opened a drawer in mums bedroom and a terrible stench came out, inside was a parcel all nicely wrapped up with tissue paper and inside there was poo, I must say I was pretty shocked at first. It was a very difficult time with mum and a turning point when things started...
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    Mum's Artwork

    I have several of my mothers paintings that she did as therapy in the early/mid stages of dementia, and she always thought that she was rubbish, I mean they are no works of art by any means but have something special about them that I cherish now that mum has passed.
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    Eating...not eating...drinking..not drinking

    I'm sorry to hear that, it's so difficult to know what to do next and make the right choices/decisions, particularly when your dealing with this interior agitation and depression that arises in people with dementia. I know that there are other medications that you can try like memantine and...
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    Eating...not eating...drinking..not drinking

    Just one more tip from me that might help, remember that our loved ones sense of taste alters, I found that sweet drinks/smoothies/porridge worked best, I generally added honey to things, also cheese in food, like cheese in homemade soup. Oh and Mirtazipine calmed her down and improved her...
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    Eating...not eating...drinking..not drinking

    Indeed, I'm afraid it's just something that they do, refuse to eat and drink, as you say, it's the next stage in the illness. It also seems to me that this can be a rebellious stage, like a child that wants to be naughty, or a form of control that they want to cling onto, in a world where they...
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    RIP mum

    So sorry to hear about your mum Garfield, sounds very similar to how my own mother passed. My prayers are with you.
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    Home from hospital

    So sorry Sharin, my thoughts and prayers are with you.
  12. R

    Eating...not eating...drinking..not drinking

    It is so tough when they start doing this, can she still chew I wonder, is she having trouble swallowing? When mum was in this phase I got her on ensure drinks but then started making soups and smoothies myself and blasting everything in a nutribullet blender to make everything smooth and quite...
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    Should I go see mum in the Chapel of Rest next week?

    Strange as it may seem, my friend was crying and I was almost quite jovial, maybe because I was looking forward to seeing her and the relief that she looked so nice. Her clothes were very baggy though, made me realise how much weight she had lost in the final decline. Another thing, although...
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    Should I go see mum in the Chapel of Rest next week?

    Just to let you all know that I went to see mum today. She looked just like her old self and sleeping, in fact I was quite amazed to see her looking almost alive. Spent about half an hour there, I'm glad I went along to say my final goodbyes.
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    Care at later stage of dementia

    So sorry to hear that. You see I was on my own too but got lots of help in the last 8 months of mums life.
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    Difficult behaviour at night time

    My mother became very aggressive particularly in the later stages, we found that Mirtazipine worked very well before bed, its was a better option than the anti-psychotic drugs. She would fall asleep straight away, her mood improved and her appetite. This drug does not work for everyone but you...
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    Care at later stage of dementia

    It will probably become difficult though for you if you are on your own, do you have anyone else there that could help you?
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    Should I go see mum in the Chapel of Rest next week?

    Thanks there Marnie63, you have given me an extra boost in my confidence that I am doing the right thing. In fact I did view both my dad and uncle just after they passed away and was there when they closed the coffin, although I couldn't actually watch when it was being sealed up, their funerals...
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    Mum died today

    So sorry about the loss of your mum Dino, there really is no way of knowing with this terrible illness how much time they have left, it could be days, weeks, months, then days again, and that could go on for over a year as it did with my mother. Its torture all the ups and downs.
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    Should I go see mum in the Chapel of Rest next week?

    Hi Nina Yes I'm pretty sure that it will be an upsetting experience for me too, but it's still mum so it will be the last time that I will be able to see her and spend some time with her, I keep telling myself that and it sort of gives me a bit of extra courage. I had a dream last night, a bit...