• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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    Rules for buying a sheltered accommodation flat post diagnosis

    Hi All Five years ago I moved my mum in to a sheltered accommodation flat near to me. At that time she had problems but we hadn’t had a diagnosis so we were able to buy her flat with the proviso that if she was diagnosed with dementia and the time came where she was a danger to herself or...
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    Working Whilst Caring - The Rules

    Thanks Lynne, that all makes sense. I'm intending when I go along for an interview, to ask for hours that keep me within the £116.00 a week. I really don't want too many hours. I'm just concerned about being asked to work more hours which will put me over. I've never had a private pension that...
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    Working Whilst Caring - The Rules

    No I think you’ve misunderstood. I’m not in work, I gave up a few years ago to care. I’m trying to get back in to work part time so I can continue caring but get out of the house for a few days a week. The salary on offer is neither here nor there, I just want to ensure I stay within the rules...
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    Working Whilst Caring - The Rules

    I understand now, it doesn’t apply to me as I’m not in work, I’m trying to get back in to it. Although it seems very complicated and is enough to put people off but I know I would feel much happier if I could get back to work for a few days a week.
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    Working Whilst Caring - The Rules

    Thanks Beats for your reply. This is taken from Carers UK:- “if you earn £120.00 a week (after tax and NI) you will not be entitled to Carer’s Allowance. However if you put £8.00 a week into a pension, half of the £8.00 can be deducted from your earnings. Your earnings for Carer’s Allowance...
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    Working Whilst Caring - The Rules

    Thanks for your reply. I’m already receiving carer’s allowance. I’m trying to get back in to part time work so need to check the rules on earnings. The above is out of date, for your own info it’s now £116.00 per week.
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    Working Whilst Caring - The Rules

    Thanks for your reply. I’m not sure what you’re referring to when you mention salary sacrifice? I’m not in employment so not a high earner, I’m looking for employment.
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    Working Whilst Caring - The Rules

    Hi Everyone I have asked about this before but I just want to check I’m doing the right thing, as the rules may have changed. I get carer’s allowance as I care for my mum and I’ve been trying for a while now to find a part time job that fits in, to get me out of the house and earn a bit of...
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    Loss of Confidence After Givibg Up Work To Care

    Private Pension Thanks for the info Canary, that is really useful to know for the future.
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    Loss of Confidence After Givibg Up Work To Care

    Confidence Hi Tammy5 Thanks for the reply. Can I ask, did you inform the Benefits Agency when you took up your new job? Was there any problem with that or was it just a quick phone call to them/form to fill in? That's probably something else that concerns me, being pushed in yo more hours...
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    Loss of Confidence After Givibg Up Work To Care

    Thanks Thanks to everyone for all of their comments, it sounds as if it's a common problem. I think for me part of the problem is that I already felt isolated before my mum was diagnosed as I'd moved from up north down south to be with a new partner and struggled to make new friends. I went...
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    Loss of Confidence After Givibg Up Work To Care

    Hi All I'm wondering if anyone else has experienced my situation and I'd be interested to hear how others have coped. I gave up work two years ago when my mum was diagnosed with early stage Alzheimer's. At the time I was working full time and had been doing so for over thirty years. When...
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    Heating Problem

    Hi Can anyone help with a problem I have? My mum lives on her own in sheltered accommodation and is in early stage Alzheimer's and generally gets on well with my support. However I have one big problem I'm struggling to solve. My mum has Economy 7 heaters in her living room and...
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    Concessions for Carers

    Hi All I live in Buckinghamshire and I gave up work in the summer to care for my mum who has early stage Alzheimer's. I've been reading bits and pieces on the internet about concessions for Carers and wondered if anyone has any experience of this? Having given up work I'm only receiving...
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    Council Tax Exemption

    Hi All Thanks for the replies. My mum receives attendance allowance and we have had the lasting power of attorney in place now for both her financial affairs and medical matters for some time. At this moment in time my mum can carry out a reasonable conversation, although recollection of the...
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    Council Tax Exemption

    Hi My mum has early stage Alzheimer's and I take care of her on a day to day basis and take care of all of her paper work. I've read on the Council's website that customers who are classed as mentally impaired which includes Alzheimer's, are entitled to an exemption from their Council Tax...
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    Giving up work to care

    You can say that again Vicky! We're just at the start of the whole process and I try not to think too much about what the future holds as it's too difficult/stressful to dwell on. It's good to have others to chat to who've had experience for some time. Jacqui xx
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    Giving up work to care

    Thanks Lindy, I'll take a look xx
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    Giving up work to care

    Thanks. That's one thing we're blessed with being from Liverpool, we laugh about things constantly! It's a good way to cope. I don't know where we'd be without the internet, the forum is a great way to get information and you can't beat people's personal experience.
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    Giving up work to care

    Hi Lexy Does the above apply if I have savings would you know?