• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. M

    Lost in a sea of red tape and bureacracy

    Thanks thanks for the replies,it does make me feel better. We will continue to do our best as that is what mom did all her life for us. I forgot all about the local Alzheimers office, they were very helpful when she was first diagnosed.. I'll be there in the morning !
  2. M

    Lost in a sea of red tape and bureacracy

    Mom fell down and broke her hip nine weeks ago. She has been in hospital since and her physical condition is as good as its ever going to be now, she can get around with a walking frame but scared of falling again. She has been on the point of discharge for two weeks now and we have had a...
  3. M


    Lost in a sea of red tape and bureacracy Sorry, move this to a new post
  4. M

    Frequent falls and balancing problems

    falls clinic Well, I can certainly identify with the issues you raised. My mom was diagnosed with postural hypotension, this causes a fall in blood pressure when standing up from a sitting or laying position. She fell several times but escaped any serious physical damage till Monday, she...
  5. M

    Sad Day

    Hi mypal , I think your mom maybe further into the illness than my mom but the behavioural patterns are the same. buying yoghourts that she doesn't eat and storing them in a cupboard.. cornflakes in the wardrobe... she has been " stocking up" since july in case the snow comes again ! We have...
  6. M

    Not copung seeing my father like he is, so hard

    Keep talking! Hi Spooney, Just to add to previous replies to your thread. Keep coming back to this forum, even just reading the other posts gives you some identification and makes you realise you aren't on your own with this cruel illness. it gives you a coping mechanism and the strength...
  7. M

    has been diagnosed, decided not to take medication

    medication side effects Hi Dunlin, we tried the medication with my mom but the side effects were too severe for her to carry on. moved the taking from night time to morning with breakfast etc but she was still very sick and nauseous. We are around 18 months into official diagnosis now...
  8. M

    Newly diagnosed with Alzheimers, where do we go from here....?

    Newly diagnosed Morning Handel, Sorry to hear about the recent diagnosis of your husband. It's always hard to offer words of comfort without giving false hope that somehow things are going to get better. All I can tell you is what's happened to us when my mom of 83 got diagnosed. ( briefly...
  9. M

    memory loss and confusion plus alcoholism

    Alcoholism and alzheimers... ! I am a recovering alcoholic myself and can empathise with the issues you are facing. My mom has also been diagnosed with alzheimers and is also drinking heavily now. You are faced with a mass of confusion with either illness but combined it's a nightmare to make...
  10. M

    Arranging a carer to visit- any hints?

    Agency carers Hi poppy5 We have had a "carer" for my mom for the last six or so weeks from a private agency. They suggested initially it should be just on a friendship basis as, just like your mom, our mom is very independent and proud. It was important to us that no uniforms were worn as...