• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. J

    joH's blog

    adventures in life? Hello Heather, What a lovely post. To answer it, I guess I've had a pretty rich and blessed though mixed life. Three lovely kids and now teenaged and grownup grandkids are included in the blessings list, together with interesting work and now a satisfying retirement. On the...
  2. J

    Merry Christmas to all xxxxxxxxxxxxxx

    Very best wishes to you both, Norms. Have a good Christmas.
  3. J

    Threatening to Leave

    don't feel guilty IMV it was probably quite a good thing to do; it might get her away from pointless threats and back into proper conversation about what's wrong and what could improve things.
  4. J

    I've Had Good News

    That's so good - well done for persisting!
  5. J

    Do people think you're crazy?

    I've had a similar day, aprilbday. SO demoralising! I woke with a pain in my calf muscles, rang the osteopath, then missed the appointment, fell asleep in front of the TV, and generally went downhill. ...I'd like to keep my mind if you please. I'd surely like to keep it. That's so true of me...
  6. J

    Concerned about actions of the social worker

    What a horrible situation for you, and for your Mum too. One thing you could do is put your 'legitimate concerns' in writing, in the most brief and matter-of-fact way that you can, not blaming anyone etc (so that you can't be described as "over-emotional" and all those disparaging things)...
  7. J

    dementia and depression

    You're so smart! I have dementia and I love the way the kids don't to mind when I repeat myself; they just carry the conversation on from what I say and make it interesting.
  8. J

    Actions? Answers?

    It sounds as though you're doing amazingly well, Motherof3. I had a marvellous counsellor when my adult daughter died of leukaemia years ago. One of the things she said about work at the time that stayed with me is "Good enough is good enough". We shouldn't even try to cope perfectly, just be...
  9. J

    Welcome to Talking Point - introduce yourself here

    Hello Becky, This must be so tough for you. You're so right about the general feelings of upsetness. I have Alz, recently diagnosed, and my kids (in their fifties) were just about as upset as me when I got the diagnosis. In case it's of any use, I'm writing a few of the things that my kids...
  10. J

    joH's blog

    Thanks, Wayne. (btw It's OK to use my name...)
  11. J

    joH's blog

    Hi Chick1962, I hadn't realised that about the Alz. Thanks for the info. I seem to be back more or less in my right mind this afternoon, well enough to feel bereaved,or actually cheesed off to be accurate, about my loss of intelligence - (Yes I know, and I'm trying to let go of such...
  12. J

    questions and/or suggestions please

    That's so important, Gwendy1. People with dementia, including me, are still real people, just "loaded with a disability"as someone described it. Our lives before the Alz struck are still real and part of us.
  13. J

    joH's blog

    Hi there chick1962. Had an attack of mini-flu, which seems to make the Alz worse. Sweet Sophie came round, took a look at me and decided to stay over. Dave her husband brought her clothes etc and was also v. supportive. I do feel blessed, I must say. She's just gone home, having sorted out...
  14. J

    Early onset dementia.

    So tough for you, being the spectator of this, NickYO1968. I have Alzheimer's dementia and I certainly have times of feeling spaced out, but not of feeling sick. I think the trouble is that once a person has dementia some medics etc don't really pay attention to symptoms of "normal" illness...
  15. J

    Alone, abroad and in despair

    admiration from here. I'm so impressed with what you're doing, and so shocked that you've no support. Sending wishes and good vibes from here and wishing we could do more.
  16. J

    Contented Dementia

    I agree - I read the book when I was doing life-story work with people in the early stages of Alzheimers and found it really useful; now that I have Alz myself, I still find it helpful.
  17. J

    Long distance caring challenges: mum's 'pocket money'

    Would it be worth writing a short "how to " list on a postcard that could fit into her purse?
  18. J

    Need to get a Stair Lift - Fast

    I found two companies local to me who sold a variety of lifts and other helpful kit. They were very knowledgeable and helpful, helped me to choose then installed it, and have been great in maintaining it since then. It's worth looking locally if you can, I think.
  19. J

    No one to talk to or ask

    It's worth getting a diagnosis, as there are meds which can improve things and slow down the progress. But I agree it's pretty scary (not to mention infuriating!) I have had a struggling kind of day, seeing old friends for lunch, picking up meds from chemist - all of which began to seem too...
  20. J

    joH's blog

    The day improved a great deal - friends turned up an hour late, really apologetic (got lost in the little roads of the Sussex countryside) and daughter Sophie rescued me from email and bank dramas. She really has such an amazing touch of common sense and kindness, it's awesome.