• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. amy2512

    A view from the other side. Trying to care for a carer…

    Hello Keith and welcome to TP. I have read through your post a few times now and am so sorry for you and your poor wife. I have come up with no real answers or advice for you, I'm sorry. I totally understand it from your wifes perspective, she probably does feel like a useless daughter as...
  2. amy2512

    I am so young

    Hi Sally Welcome to TP. My Mum has a type of Early Onset Alzheimers. She is 51 and was 49 when diagnosed. I am so sorry that you find yourself in this position. I hope you can find some help and support by visiting this site. If I can help at all, answer any questions etc then please...
  3. amy2512

    Sexual abuse?.... what do I do?

    Hi Carol, You ask what can you do? Well I'm not sure, but you are starting off in the right direction! If I was you I would alert others to your worries regardless of if they are unfounded or not. If they are unfounded and you are wrong, you can stand tall and always tell yourself that you...
  4. amy2512

    Mum has PCA [Benson's Syndrome]

    Hi Kirsty, My Mum too when through a period of seemingly little motivation, I think it was a combination of things, the main thing being everything just became SUCH an effort for her and sometimes it was easier to sit and seemingly do nothing than summon the energy and effort involved to do...
  5. amy2512

    Mum has PCA [Benson's Syndrome]

    Hi Kirsty, Welcome to TP. I am very sorry to hear about your Mum. My mum has PCA and I am her carer, Mum is only 51 so this came as a massive shock to all when she started to get unwell. If I can help in anyway or answer any questions you may have please feel free to ask. I too couldn't...
  6. amy2512

    Mum might be pregnant

    Morning all, Well I hardly slept last night I am so anxious about Mum's appointment today. The thing is she has such a beautiful 'social face', she is so welcoming and polite and can seem so 'normal' for want of a better word. I am so worried that she will just give her bog standard answers...
  7. amy2512

    Mum might be pregnant

    Update: Mum is NOT pregnant, can't tell you how relieved I am about that!!!! :) Mum is having a capacity assesment done tomorrow and it depends upon the outcome of this as to what happens next. I have been told that while my concerns may well be justified and though it all sounds horrible...
  8. amy2512

    Mum wont accept diagnosis -

    I just had to reply, your post spoke to me on so many levels :( My Mum too sat their totally emotionless when her consultant broke the news. We left and as walking back to the car she said 'well it could be worse, at least I don't have piles' :eek: Mum has no grasp at all of what 'alzheimers'...
  9. amy2512

    Helen and Alan

    Helen I am so so sorry to read about Alans passing. I am crying for you and for him and for the terrible illness that you both endured. You write so beautifully, you are so compassionate and your love for your husband shines through above all else. You are an inspiration to me and I can only...
  10. amy2512

    what's happening to my mum?

    Hello and welcome to talking point, I hope you will find it a help, it is a great source for both practical and emotional help. It is often a great comfort to talk to people who understand what you're going through and the heartache that comes from caring for a loved one with this illness. Keep...
  11. amy2512

    Guilt after arguing!!!

    Hello Tracey, I totally understand how frustated and sad you must be feeling with this situation. I am so sorry to hear your poor MIL has both AD and cancer :( On a practical note we are going through the same problem regarding medication for Mum and her CPN recommended something like this...
  12. amy2512

    OMG how dangerous!!!!

    How awful for you all Bristolbelle and thank goodness you popped into the annexe when you did, it doesn't bare thinking about what would have happened otherwise :( That's a really good idea to get your husband to take out the fuse, and one I shall store away for the future. By making it...
  13. amy2512

    Emergency meeting with CPN

    Thank you to all those who posted on my other thread. I have read it over and over and the advice has been invaluable. I will go back to it in the next couple of days and update it properly. But I have read it time and time again and the support from everyone has really helped me through this...
  14. amy2512

    Mum might be pregnant

    Thank you so much to everyone who has replied. I can't tell you how much your support means to me and to know that there are people out there who also think that this is a horrible situation and are as shocked by everything as I am. Thank you. Sometimes I find myself doubting myself and what...
  15. amy2512

    Mum might be pregnant

    Thank you so much everyone for all your kind words and support, it was just what I needed! In answer to a couple of questions Mum is 51, so yes, chances are she is going through the menopause, but there's always that chance, and now I've thought of the small chance of her being pregnant I can...
  16. amy2512

    Mum might be pregnant

    Morning everyone, I haven't posted much about the problems that I am having with Mum, I'm not sure why, there's just so many I guess! But I really need to post this and get a bit of support. I am guessing that this is highly unusual but here goes... Mum might be pregnant :eek: It is...
  17. amy2512

    Any ideas????

    Hi Sal, It sounds like you are having a tough time at the moment. When I was reading your post I had all these great ideas, the first one being one of those lamp/alarms that lights up really brightly when it's day time and time to get up next to the phone. So if it's light then it's...
  18. amy2512

    Mums dislike of a specific carer

    Thank you for your advice everyone. See it really is quite obvious really what I should do :rolleyes: I think I sometimes feel a bit overwhelmed by everything that needs doing for Mum, it all starts to mount up and then even the little things that should be relatively easy seem like such...
  19. amy2512

    Mums dislike of a specific carer

    Hello to everyone :) I was after a bit of advice from someone who may have experience in this... Mum has three carers who come in over the course of the week. Two of whom she really likes and can't praise highly enough. The other however I hear nothing but criticism about. To the point...
  20. amy2512

    Trackers

    Hi Wiggy, I for one would really appreciate you keeping us updated to how you and your Mum get on with the buddi tracker. It is something that I have considered for Mum but the cost among other concerns is holding me back. Do you mind if I ask how do you ensure your Mum is wearing hers or has...