• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. D

    Driving

    This is a really difficult one. I had the same problem with my 90 year old mum who refused to give her car up. The gp and psychiatrist both assessed her and felt she was safe to drive as long as she only did short familiar journeys!! As if that makes you safer!!! This was so unhelpful and I...
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    further testing?

    I would definitely get her referred if possible. It helps with other services, although these are limited, but also in addressing yours and mums needs at an early stage. GP's are often reluctant to refer and leave it to families to make the decision which is wrong. Even if the memory clinic...
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    Mums care home have given her notice after 2 and a half weeks

    Thanks for that advice Kevinl. i'm starting to get a feel for what I need to be looking for. And I am hopeful that if e get it right it will be a better experience for her
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    Mums care home have given her notice after 2 and a half weeks

    Hi Chemmy, Its interesting that the home have told me that she is disrupting the other residents, but I've seen no sign of that yet! I visited tonight and she was upset but nobody else was bothered, except the staff. The good news is I've had 2 homes assess her today and both have said they...
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    Mums care home have given her notice after 2 and a half weeks

    Hi Caroleca, thanks for taking the time to post. I hope I haven't offended anyone by saying that the residents were much more advanced than mum. I didn't intend to sound derogatory. She is still so aware at times, to the point that she talks about other people as if she's completely together and...
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    Mums care home have given her notice after 2 and a half weeks

    Update on care home Just to update all you lovely people who showed me so much love and support yesterday. Mums been assessed by a care home today but they also cant take her as she's a high falls risk apparently. It wasn't the best place to be fair so I cant say I was that upset. But the...
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    Mums care home have given her notice after 2 and a half weeks

    Morning Anne. Not yet but I've taken the day off and am ringing round then visiting quite a few today. Fingers crossed x
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    Mums care home have given her notice after 2 and a half weeks

    Thats just what I thought to be fair. I think when mum went to daycare she was a nice, placid cheerful lady who they all over and so were happy to take on. The whole process of losing her home, going into care and then getting a UTI was bound to impact on her, but they don't seem to be able to...
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    Mums care home have given her notice after 2 and a half weeks

    Thank you so much! I'm welling up wIth all the lovely replies and support on here. Much more than i've had from both my sisters, who are abroad, who just seem to think we can bung her in the first place that has a bed! They try and support from afar but they don't get how stressful it is...
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    Mums care home have given her notice after 2 and a half weeks

    Hi Beate Great advice thank you. It is a lovely looking place and to be fair the staff have been very caring, but I wonder if they can only deal with someone who isn't challenging. although a lot of the residents also have dementia, many of them are quiet and compliant and don't appear to be...
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    Mums care home have given her notice after 2 and a half weeks

    This how i feel too and everyone i've spoken to says the same. They should have given her more time to settle down. she only finished the antibiotics yesterday! Great advice about the incident book. They have put everything in pace to be fair after each fall. My mum isn't the easiest of people...
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    Mums care home have given her notice after 2 and a half weeks

    They take people with dementia, physical disability and mental health problems. I appreciate your advice and am going to call the home today and ask for some honest answers. I've got some homes on the radar to be fair but they're not the best in terms of CQC reports or generally how they feel...
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    Mums care home have given her notice after 2 and a half weeks

    Mum finally went into a care home on 7th July. She'd been going to day care for 7 weeks and loved it, not wanting to go home at the end of the day! When I moved her in she was happy, had a lovely room and was not at all bothered about leaving her home. I was told by the staff that the 4 week...
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    Mum now loves her day care and doesn't want to come home

    Hi Shedrech Yes I've considered sending her on more days. Transport is a problem some days but I think I may have found a good taxi company who will see her door to door. I love your advice. Hadn't thought of that to be fair. But its definitely worth a try. Thanks for that. I'm praying there...
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    Mum now loves her day care and doesn't want to come home

    Morning everyone I posted a couple of weeks ago about my mum not wanting to go to day care. We'd found a lovely home she really liked which I was happy with too. No permanent spaces but she's on the waiting list. After a couple of visits she said she no longer wanted to go which threw me...
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    I don't trust myself any more ....

    Marnie i've just been reading your posts, (coming in a bit late here) and my heart breaks for you and what you've been through in the last week. Stay strong and rest assured you are doing everything you can for mum. Its so hard to find a good CH. We found a lovely one for my mum, aged 90, but...
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    Delay

    social care is rubbish The social care system is terrible. But I agree that you have to shout very loudly and call daily and generally make a nuisance of yourself. I enquired about a carers assessment. They sent me a form to fill in, which apparently constitutes as " an assessment". I filled it...
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    Forget my name

    This awful disease DOES dominate your life, but I'm learning that its ok to feel resentful sometimes, so please don't feel guilty for feeing like that. We're all human after all and can't always do what the books, websites and well meaning professionals tell us we should do for people with...
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    Lasting Power Of Attorney signature run-a-round

    Same problem with mums GP I had the same problem with my mum. Her GP wanted to charge £120 and wasn't keen to do it anyway. He told me I should see a solicitor or if I really wanted him to do it I'd have to go back at a later date and book a longer appointment. I really didn't feel he was...