• Expert Q&A: Rare dementias - Tues 3 March, 3-4pm

    Our next expert Q&A will be on the topic of rare dementias. It will be hosted by Nikki and Seb from Rare Dementia Support. If you have any questions about rare dementias, they will be here to answer them on Tuesday 3 March between 3-4pm.

    You can either post your question >here< or email them to us at talkingpoint@alzheimers.org.uk and we'll be happy to ask them on your behalf.

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  1. Plymum

    Ready meal suggestions

    WFF delivered to Mum with no problems. Female delivery driver also had my phone number and was an extra pair of eyes keeping watch.She phoned me a couple of times when a) she smelled gas in Mum's house and b) she found Mum in the street. Mum is now in a NH but I would recommend the WFF ready...
  2. Plymum

    The effects of a Dols order on me

    Thankyou everybody who replied to my question. I feel sad that we are even having this conversation. One never imagines that caring for a loved one will come to this tragic situation. Love and strength to you all. Sent from my iPad using Talking Point
  3. Plymum

    The effects of a Dols order on me

    Could anyone tell me if I ( her daughter and POA) should be involved in the DOLs application? (My Mum is in a Nursing Home) Sent from my iPad using Talking Point
  4. Plymum

    CCTV to keep an eye on Dad

    I had Canary Care too and although my Mum is now in a NH I would thoroughly recommend the system. Sent from my iPad using Talking Point
  5. Plymum

    Carer Timesheets and CCTV Cameras - your thoughts please

    Just wanted to let you know of the system I have installed at my Mums house which is brilliant! Canary Care UK . Website is www.canarycare.uk. Basically ... movement sensors fitted around the house send immediate signals to an app I have on my iPad. I can see exactly what time anyone arrives and...
  6. Plymum

    Coping with parents as an 'only-child'

    Mrs Terry N a huge hug to you and much strength to get through this difficult stage xx Sent from my iPad using Talking Point
  7. Plymum

    Coping with parents as an 'only-child'

    I have been the only one caring for my Mum as her dementia has worsened over the last twelve years. With no siblings, no aunts ,uncles or any relatives at all I've just had to get on with things. After five hospital admissions over three years and a year of carers going in to help four times a...
  8. Plymum

    Full CHC funding awarded today. Hooray!!!!!

    I know what you mean about feeling anxious. But what you are doing for your Mum is praiseworthy. I'm sure you'll be passionate because you know her needs better than anyone in the room. Think positive and feign confidence for the duration of the meeting. Let us know how you get on. A virtual pat...
  9. Plymum

    Full CHC funding awarded today. Hooray!!!!!

    Good luck tomorrow Timeout!
  10. Plymum

    Full CHC funding awarded today. Hooray!!!!!

    I found that having dated evidence for every point I made helped. I cross referenced everything and showed how all her conditions were complicated by dementia. Yes definitely bring everything together in the final domain. I filled in a blank decision support tool at home to help me get my...
  11. Plymum

    Full CHC funding awarded today. Hooray!!!!!

    Just wanted to give hope to members... Mum has been awarded full CHC funding today. If I can give any advice to help you if you are applying - please ask.
  12. Plymum

    Visit to A&E

    I've just filled in a Friends and Family Test at the hospital my Mum is in. Despite posters everywhere telling me "This Is A Dementia Friendly Hospital" why are the staff on the ward surprised she cannot retain in her mind a) the exercises the physiotherapists give her b)that she is in...
  13. Plymum

    Hospital stay

    Thankyou la lucia and beetroot x
  14. Plymum

    Hospital stay

    No there's nothing to move to. No cottage hospitals or smaller convalescent homes. Hospital is under "requires improvement" rating from CQC - if this is the hospitals idea of improvement , heaven knows how bad it was before!!! I asked to have the catheter removed but was told that because Mum...
  15. Plymum

    Hospital stay

    Thanks for the hug Sue x
  16. Plymum

    Hospital stay

    To update. I have made a formal complaint in writing and am awaiting a reply. The NHS advocacy service agreed to help me but when they had heard the details of the incident they said they had a duty to inform the local council because this was a safeguarding issue. The local council reviewed the...
  17. Plymum

    Hospital stay

    Thanks Nicoise I will keep going. I will post what happens in today's meeting.
  18. Plymum

    Hospital stay

    For those following this nightmare incident. On Monday I was invited to attend a meeting with the Ward Sister. Being an organised type I wrote out a list of questions ... the first of which was "I presume you have read the notes written by your colleague?" The answer was "No" How on earth did...
  19. Plymum

    Hospital stay

    Thankyou everyone for your helpful replies and advice x
  20. Plymum

    Hospital stay

    Thankyou to you all. It has helped so much to know that other folks have shared with me and thanks so much for your advice. I'm so upset by everything this morning I am tearful and haven't been able to leave the house. I feel exhausted by it all let alone complaining and letter writing. I've...