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  1. R


    Hello BeckyJan My husband (now aged 62), with Alzheimers for 10 years or so, has been in an NHS Assessment unit for 2 years as he has multiple problems including aggression. Some 3 months after he was admitted there was a 3-monthly Care Policy Assessment meeting which I attended, and I...
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    Let's hear it for the Met

    It may be worth looking at - it is a way of tracking the mobile phone by locating its position relative to mobile phone masts. It was originally for tracking truck and other commercial fleets. It is not a GPS system. It is more accurate in towns with lots of masts...
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    When are you taking me home?

    Dear Carol We moved to our present house over 5 years ago, (had to downsize when I had to give up work to care for my husband). At first he was able to go out and come home again, but after a couple of years he had deteriorated and would say "It's very nice here, but I think I will go home...
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    Oramorph?? update too

    Dear Jane I can tell you about Oramorph both from my own experience and from what I have seen with my husband (who has dementia). I was given Oramorph when I was admitted as an emergency with an obstructing Colon Cancer over a year ago, (a month before I was booked for elective surgery)...
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    My Minds Spinning

    Dear Sara-Jane Can you imagine hearing your mother saying "Please keep me here as long as possible by whatever means" - or can you imagine her saying "Please allow me dignity and peace"? I can't think that any of us would want our lives to be extended artificially in this situation. I...
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    Grief that defies logic

    Dear Nat I understand what you are saying, but it is not a matter of logic, it is what is happening in your heart that counts, and you are not overreacting to your father's condition. . When a neighbour's husband died suddenly with a cerebral haemorrhage I must confess to being "envious" -...
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    Skin and bones, is this normal?

    My husband was 6'3" tall and well built before the AD set in ten years ago. He is now in an NHS unit, and eats well (the nurses delight in telling me how he nearly always has second helpings of main course and dessert, and if I am there during mealtimes I can see that he is eating well) but he...
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    Continuous exhaustion and permanent guilt

    Dear Hugh I don't know whether you are getting any help or support from other sources - have you got a CPN (Community Psychiatric Nurse) and/or Social Worker allocated to your mother. I looked after my husband for some years, and the CPN was a great source of practical and moral support and...
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    Saw Mom Today; No Big Change

    Dear Karen I hope that everything works out for the best for the comfort of your mum and for your peace of mind, and that she will at least be able to get a little pleasure out of life for as long as possible, and will not be in any distress or suffering. Will be thinking about you. Ruthie
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    Something Difficult to Think About

    Dear Karen Thank you for posting on this topic. Also thanks to all the people who have replied, it has been very interesting to hear people's thoughts on this. I have had to think a great deal about all these issues lately. When my husband was first referred some years ago to the...
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    Why Us

    What about men who get Alzheimers? Don't think we can lay the blame on HRT, can we? Ruthie
  12. R


    Hello Allan My husband was quite a clever man (he was an architect), and so many people said to me that it seemed to be the intelligent people who got Alzheimers that I asked his Consultant if this was true. The consultant said that it struck people with all levels of intelligence...
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    Sneaks up on you

    I can feel for all of you! I have this syndrome in spades, as my husband's brother, who, with his partner, has been an absolute tower of strength throughout the ten years of my husband's illness and then since I was diagnosed with cancer last year, is my husband's identical twin! People...
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    Guardian article

    Thanks Sandy for drawing this to our attention - I had actually read it and cut it out as I felt it covered a lot of issues that concern us all. Ruthie
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    Dehli Belly if we go out

    Hi Suzy Perhaps the stoma and district nurses should be made aware that people with Alzheimers just aren't able to take on board the need to eat in a regular controlled way, and that the idea of her understanding the need to "train" her colostomy is just not possible. I sympathise with your...
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    Dehli Belly if we go out

    Hi Suzy Not sure about colostomies and how Loperamide/Imodium would affect things - I know that usually colostomies produce more "formed' output, and can be quite regular ie once a day in the morning, whereas ileostomies are loose and work about 90% of the time - but if your mum is eating...
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    Dehli Belly if we go out

    Do not read this if you are squeamish! Hello Rosalind and Chrissie I didn't have this problem with my husband (or only once and we were just taking a walk and managed to get home just in time!) But I can advise you about medication to slow down the action of the gut, as I have colon...
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    any advice please

    My husband was taken off Aricept after being on it for about 15 months, as the Consultant thought it wasn't doing much good any more (it helped quite a lot with communication initially), and he felt that it was only making my husband more restless and prone to wander. I agreed at the time, as I...
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    help needed - junk mail

    My husband used to pick up the mail and hide it or destroy it if I didn't get there first! We live within a few minutes walk of our local sorting office, so I went in and explained the situation to the manager and asked him if he could hold our mail for me to collect. He and the other staff...
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    What stage?

    My husband seems to be worse than Stage 6 but not quite as bad as Stage 7 in this staging - but have marked the poll as Stage 6. Ruthie