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  1. Jonny1

    Alzheimer's and Asperger syndrome

    My dad had Parkinson's disease which became dementia. My mum has Alzheimer's. Both of my sons are autistic. I feel for you - any of these conditions are so difficult - together the combination is verging on the impossible. I will have a think tonight about some of the coping mechanisms we have...
  2. Jonny1

    My boyfriends father has Alzheimers

    I'm sorry about your boyfriends Dad. My Dad was diagnosed with young onset Parkinson's disease in his 30's - you are doing the right thing by reaching out to this group for support. I wish you all the best
  3. Jonny1

    advice needed on home help/care costs

    Hi - I've tried 2 different private care companies in the last year. I started off with one that was about £10ph - can't see how that do it for that price given the minimum wage etc. But I found that the carers were not staying very long as: 1) They weren't paid for travelling and their patch...
  4. Jonny1

    Heaven has gained a true Angel xx

    I'm so sorry for your loss, my thoughts are with you
  5. Jonny1

    In need of a virtual hug

    Happy New Year exhausted! Try to take is easy in the next few days. It's impossible to think straight when you are tired and sleep deprived. You are doing so well - they don't teach you how to cope with life experiences like this at school!
  6. Jonny1

    Just feeling very low

    Take it easy on yourself - you are doing amazing
  7. Jonny1

    Helping Mum keep her independence ...

    I have a solution that can help you We have exactly the same problem with our mum. She lives independently with the help of carers and a fall detection system. I was so frustrated that I could not remind her about her diabetes and other medication as I spend a lot of my day in meetings. So I've...
  8. Jonny1

    Benefits available.

    I'm going through this myself. There is some great practical and anecdotal information on privately employing carers in the book "Where Memories Go: Why Dementia Changes Everything" beautifully written by Sally Magnusson - broadcaster daughter of Magnus, who presented Mastermind. Sally and her...
  9. Jonny1

    Mum won't accept help from carers

    Mumps being diagnosed for dementia and lives in a sheltered housing bungalow. She has limited mobility and balance, so finds household tasks and washing herself difficult. Three months ago I arranged for carers to come 3 times a week. At first she just sent them away when they arrived so I had...