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  1. K

    Family photo albums hidden

    We had the opposite. Every photo she owns was out on display and every surface covered with photos of the past. The kids (they are 37 and 38) exercise books from school are out too. They are in the kitchen, the living room, bedrooms. These are not in frames just out so she can look at them all...
  2. K

    recently diagnosed

    There's some great people on here who have lived with dementia over 10years. They appear to be still of good mind and living healthily. I would say do tell people as it raises awareness and you won't ever be alone as long as people know and understand. Enjoy your life and do all the things...
  3. K

    Mil dementia ruining my marriage

    Once again you people are awesome. Reading these comments are making me feel better. I've suggested he sees someone about this. We have talked today and he said if he thinks about his mum it takes him to a dark place. I've been sitting out banking dramas with her today and he's just avoiding...
  4. K

    Mil dementia ruining my marriage

    I've not posted on here for a while simply because I'm starting to deal with the other problems. My mil is 58 and has dementia and she's getting worse. She's still ok to live on her own and I know it's not going to get any better. My husband is incredibly depressed and won't talk about it...
  5. K

    donepezil

    Mil on something that sounds like mematine. She is slightly better on them but they are giving her indigestion which she can't cope with so may have to be taken off them. You sound reasonably rational so I'd give them a go and and persevere. My mil won't persevere and keeps calling 999 to...
  6. K

    Another drama

    Good idea! I'll try but can't get her out of the house (other than in an ambulance). I took her to local group a few months ago and she said it was full of old biddies not really her type of people. She's a nightmare and has no friend left as all her friends are working and don't really have...
  7. K

    Another drama

    She managed to get herself back from the hospital (although it take her 4hrs) by bus and taxi. Today she is saying she needs an operation she is so bad and has forgotten even going to hospital yesterday. I'm going to ring social services to see what they can do
  8. K

    Another drama

    I know it's a waste of tax payers money. Poor people over here are having cancer drugs stopped due to lack of funding.
  9. K

    Another drama

    Now I have a degree in dramatic arts and always steer towards the dramatic but my mil could win an Oscar. Over the past month we have had 9 visits from the paramedics after she's called 999 on many occasions with various illnesses. This weekend has taken the biscuit and she has had them out 4...
  10. K

    Life expectancy

    Tony I think you are amazing and keeping yourself fit is the key to longevity. Unfortunately in my mil case she has vd too. Her diet is poor and she has never been one to go out socialising. She sits at home all day (but always has) watching or staring at the TV. If I suggest doing anything...
  11. K

    Life expectancy

    My mil was diagnosed aged 56 at Christmas. My husband hopes for her sake (and I suspect his) that she dies quickly. I can see her declining daily but not bad enough to say she's on death's door. It is such a selfish disease that has come at a time when we are starting our lives with families...
  12. K

    Wife is just 54

    My mum in law was diagnosed last Christmas aged 56. It has been a learning curve and I had find out about benefits and medication myself by searching the Internet. If you want a hand understanding the minefield of benefits and support send me a personal message and I'll give you a hand. The...
  13. K

    Diagnosis difficulties and delay

    Firstly I'd say you are on the right track getting tests done. My mil who was 56 but showing signs from about aged 53-54 it took 6 months to get a diagnosis. When we did it was still a little inconclusive (mixed dementia Ftd and Alzheimer's) they rediagnosed her last month they say she now has...
  14. K

    Omg

    By the way before this I'd never claimed a benefit for me or anyone in my life so this was a whole new experience and became a full time very frustrating job. Please don't do it alone and if you want to apply for a carer allowance you can but you choose how you spend it and who you spend it on...
  15. K

    Omg

    Apply for pip you will need to go for a medical assessment with atol and also apply for ESA. We had 2 lovely people come round from benefits care team to fill in. Appoint someone as your appointed person too (they will need to be interviewed). Once these have gone through you can also apply for...
  16. K

    Dealing with watching the Illness

    Fashion design? Now you've really got our interest. How about a catwalk show or some form of showcase for charity that will keep you focused. Good luck on being the next Stella Mcartney
  17. K

    donepezil

    My mil has just been taken off them for the same reason. They are going to try a different medication next week.
  18. K

    Dealing with watching the Illness

    Aw sweetheart I read your post and cried. I really feel for you and your family and know it's going to be a rocky road ahead. You must live your life and go on to do wonderful things at university. You can Skype and call all the time and also see your mum as often as money and distance will...
  19. K

    What a sad afternoon!!

    We are not as young as your daughter but in our mid 30s. My mil is 57 and has dementia and we are coping ok. Every day is a learning curve and we have some fun times too. I think the best advice I could give her would be to do fun things with dad like a drive with his favourite music on the...
  20. K

    Is doing nothing an option ?

    It is really difficult to get a diagnosis but glad we did for my 56 yr mil. It made benefits easier to get and she was happy to go along to the tests but is oblivious of having dementia. It is tough when they are so young. Not sure what attendance allowance is as my mil is on ESA and PIP...