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  1. Z

    Other people with the genetic form in their family

    Wow Suzanna what a difficult choice to make. It is a pity that there is no one on this forum who has gone for the test. There is a type of dementia called Pick's disease than mainly affects people in their 50s and 60s, and is often genetic. There is an account on the Pick's Disease Support...
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    I can't stop thinking about it being hereditary

    oh yes I worry too! Yes this is something that has worried me since my mum was diagnosed aged 57, when I was 26. I believe there is a test you can get to see if you have the gene, but I don't know whether the results are clear cut or not. You could ask your GP to refer you for genetic...
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    "Driving" me crazy...

    You did the right thing Kate. I had to tell the DVLA about my mum and she was furious with me for ages. I tried to convince her it was a good thing as she would save money not running a car, and she wouldn't have to worry about driving (she was never a good driver!!) However she quickly got...
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    Concerned about my memory/could it be dementia

    You asked if there are other conditions that can cause memory problems. They include: depression stress underactive thyroid infections sleep aponea hypoglycemia You said you suffer fatigue - that can be symptom of underactive thyroid. I have an underactive thyroid and this causes some...
  5. Z

    personality disorder

    Hi Scarlett My situation is very similar to yours. My mother has had mental health problems all her life. She was then diagnosed with dementia aged 57. Her previous mental health problems have nothing to do with getting dementia - it is just bad luck. Her mother also had dementia...
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    Need to discuss Really Early Onset Dementia

    Dear Unklekev Are you sure that you and your sister have a 50/50 chance? Did one of your parents have it? Has a doctor told you this? I thought with that type of dementia you could only develop it if one of your parents had it, but I might be wrong so don't take my word for it. My mum has...
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    Why is there so little provision for younger people with dementia?

    I agree with everything that has been said. We are looking for a suitable day centre for my mother who is 60, the choices are either going to a dementia day centre where she'll be the only younger person, or a mental health day centre where she'll be the only one with dementia. There is a...
  8. Z

    another husband

    Dear Enilo I am so sorry to hear about what you and your family are going through, it must be difficult for you all. No one here is in a position to diagnose, I really hope you get some answers soon. Usually the way demenita is diagnosed is a GP will do some blood tests and other health...
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    Worried young man here

    I really think you should go back to your GP. Don't say you are worried you have dementia - your GP will just dismiss this as it is so so rare at your age. Instead say you noticed you are having problems with your memory and communication, and say that you know these can be caused by...
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    worried about my husband

    You said your husband had a bad knock to the head. Was he diagnosed with a head/brain injury? Some types of brain injury can cause memory problems or problems such as repeating yourself. Alzheimer's is usually not hereditary/genetic. It can be hereditary if there is a family history on...
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    Has my mum got alziemers?

    No one here is able to tell you if your mum has Alzheimer's, only a doctor can tell you that. However if your mum is drinking a lot even if it is beer, I expect that could affect her memory as drinking affects the short term memory. There is a type of dementia called Korsakoff's symdrome...
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    Worried young man here

    What a shame your GP was so unhelpful. In answer to your questions it is possible to get early onset dementia even if no one else in your family has had it. If there is a family history of early onset dementia then you have a greater risk of developing it. However, at your age it really is...
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    early symptons

    Hi Jaysc Your boyfriend's family are very unlucky. With such as strong family history, there seems little doubt that those family members who had young onset dementia had the genetic type. However, this does not mean your boyfriend will definitely get it, but of course it does mean there is a...
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    to move to sheltered or not?

    Gosh Angie that sounds tough. There is something you can do about your mum's money: You can apply for Power of Attorney (POA) or Receivership. For POA it might be tricky if your mum has had personality changes and is now suspicious of you. She has to show in front of a solicitor or an...
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    to move to sheltered or not?

    It is so tough getting mum to accept anything! She refused to have meals on wheels, doesn't want strangers coming in to her house. We tried a couple of suport workers visiting but she wouldn't accept the help, and kept going out when they were coming! The only thing she will accept is her...
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    Stopping driving

    Hi Hannah Sorry to jump to conclusions that you hadn't been in touch with the DVLA. It is great that he passed his assessment previously. It really sounds like you are doing the right thing. When I declared mum's condition to the DVLA they took her licence away following a letter from her...
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    to move to sheltered or not?

    We have a dilemma: Mum has had Alzheimer's for coming up to 3 years now (she's 59). She lives in her own home but we (family) had thought it would be a good idea to move to a sheltered flat where she could be more supported, which she was happy with. But now we are not sure if this is such...
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    only 51

    to AMI2YOUNG Dear Ami2young I would recommend calling the Alzheimer's Society helpline on 0845 300 0336. They can send you lots of information on living with dementia, including a great book called the Memory Handbook which gives lots of tips of coping with the symptoms. They can also...
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    Frontal Temporal Lobe Dementia

    Hi Jaydon The Pick's Disease Support Group website is www.pdsg.org.uk They have a helpline and meetings in London every few months. I really recommend getting in touch. When we found out my mum had dementia (aged 57) we were originally told it was Alzheimer's, then Pick's, then...
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    Stopping driving

    Hi Hannah It's a tough one. But you have a duty to the DVLA that he has dementia, and it is more than likely he will revoke his licence. My mum was furious when I did this. We got a letter saying she shouldn't drive while thye investigated, but she refused to stop, and her boyfriend kept...