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  1. maryjoan

    Not been on here for weeks... thought I was doing OK ...but...

    No, he cannot as he is a key worker with people with disabilities....
  2. maryjoan

    Issues with Mail Order purchases

    Not alone at all..... my PWD recently won some money on the Post Code Lottery and it went straight into his pocket money account over which I do not have control, as it usually has no more than £60 in. Suddenly it had £2000. He started to order stuff when I was in bed asleep - some of you might...
  3. maryjoan

    Not been on here for weeks... thought I was doing OK ...but...

    His son lives 200+ miles away - he is in touch more than the daughter - who we never hear from... I am speaking with the social worker again this week.......
  4. maryjoan

    Not been on here for weeks... thought I was doing OK ...but...

    I have joint PoA with his son, who up until now has been extremely caring and helpful. But he had a conversation with the social worker the other day - then phoned me afterwards, to say that there was absolutely no way he would allow his father into a home where he would have to be quarantined...
  5. maryjoan

    Not been on here for weeks... thought I was doing OK ...but...

    Yes, that is exactly where I am at....... but, my question is 'when will we get back to normal?' - and I know the answer to that is:- We will never get back to normal - not as we remember it. Slight lockdown easing last week or so, and here in the south west ( and other areas) the 'R' is...
  6. maryjoan

    Not been on here for weeks... thought I was doing OK ...but...

    A week later and I am back! Hit a real low yesterday. I will not bore you with the details but it involves rapidly advancing dementia and a stoma bag. I rang the specialist stoma nurse for suggestions, and his main thought was that I had reached the end of my tether at least a year ago, and...
  7. maryjoan

    When is the right time for carers to say enough is enough?

    Well done, you! A very imaginative solution and such an excellent idea for those whose homes and means can accommodate an au pair. Perhaps more people will try it now the idea has been brought forward....... this is such an upbeat idea that I don't want to spoil things, so I will go elsewhere...
  8. maryjoan

    Not been on here for weeks... thought I was doing OK ...but...

    When you feel you are coping, or you have your head in the right place.. then covid19 comes along.... I really have been OK, but now when I wake up the first thought in my head is my daughter and her broken marriage and two small children, followed by the hugeness of Covid19, then reality hits...
  9. maryjoan

    There are plenty of comedy sketches about pianos - this is a new, true, as it happened one!!

    This is an email I sent to my kids...... He is out on his bike when the PIANO arrives. It is enormous. Full size piano key board weighs a ton! It has a stand which needs assembling. 3 hours later he is struggling and I offer help. I notice the book of instructions has not been opened. So - I...
  10. maryjoan

    How's everyone coping?

    I am not coping - simple as!
  11. maryjoan

    Clapping For Paid And Unpaid Carers And Those Without PPE

    I don't get to see my grandchildren any more - but 8 year old Olivia and I have a weekly date at 8pm on a Thursday. I phone her on her Mummy's phone at 5 to 8, and she tells me she is ready with her pan and wooden spoon. She batters her pan at the front door and 30odd miles away I batter my pan...
  12. maryjoan

    It's What I Do!

    Thanks, one and all, The plan to move him is all in place - we are awaiting a vacancy in the council lists....... I was doing really well for a short while, but everything has been put on hold now because of Covid 19. He no longer, like all our PWD's goes out, so the 24/7 syndrome is really...
  13. maryjoan

    It's What I Do!

    OK, so I have adjusted, put up with, sympathised with, cared for, learnt about, tolerated, loved, felt sorry for etc etc etc ..... BUT In these dark days for our country when I am trying to keep him safe, and trying to increase hygiene, and spread of virus, and realise he has no understanding...
  14. maryjoan

    I laughed out loud at this!

    We live next door to the Doctors surgery in our small village.......... Today, OH, who is mid stage dementia, put on his outdoor clothes, and told me he was going to the Surgery. I asked him what for...... He told me he had seen on TV that one should be using hand sanitisers ( yes, I know this...
  15. maryjoan

    How do I know if he would still be considered to be in early stages?

    Get a carers assessment done - you are entitled to one by law and they will make recommendations. Good Luck
  16. maryjoan

    Can someone please explain how funding works?

    They have said 'Assisted Living' but my partner is moving 200+ miles and that Local Authority uses the terms I listed in my earlier post.....
  17. maryjoan

    Can someone please explain how funding works?

    Thanks one and all for your explanation - I really feel I am beginning to understand this minefield...... One other question , if I may.... On the council website where one can look at council properties to bid for there are the following criteria SHELTERED LIVING SUPPORTED LIVING EXTRA CARE I...
  18. maryjoan

    Can someone please explain how funding works?

    We are looking at my partner moving back to where he comes from ( 200 miles away) to be nearer to his family. I have been assessed as having come to the end of my tether as his carer.. He is unable to fund himself, but has income of about £280 per week excluding AA. He has no savings and we...
  19. maryjoan

    Drastic Moves ahead...

    I have discovered that my life has come to an absolute standstill. I am horribly unhappy and seeing him as he is makes me more and more unhappy and sad. He seems not to care who looks after him and seemingly has no regard for me. Very strangely, on the occasions when I have been able to take a...
  20. maryjoan

    Drastic Moves ahead...

    My PWD stayed with his son at Christmas. Afterwards the son, who is a wonderful person whom I respect, phoned my local Social Services and said after experiencing caring for his father alone for a week, he felt I should not have to do this anymore, and it was time I had my life back. His father...