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  1. Mudgee Joy

    New research

    News this morning in Australia - there is a break through potentially for those with Alzheimer’s firm of dementia : Flinders University Professor Petrovsky said the team of researchers had completed successful testing on mice, which had been "genetically programmed to get dementia and...
  2. Mudgee Joy

    Two years to get this bad. What now?

    Happy new year to you all - we are over here in extreme drought with raging fires and smoky air - so enjoy you cool damp weather and appreciate it !!! We would so love a rain storm. And yes New York is a great choice. I long to travel but not quite yet - Happy New Year
  3. Mudgee Joy

    Hearing aids and dementia

    Just had to add a note about hearing aids. My husband bought some quite expensive hearing aids just before he was diagnosed as having dementia. he could not manage the batteries or the cleaning of the wax etc I went with him for a check up and the audiologist checked his hearing again . He told...
  4. Mudgee Joy

    And so it goes on...

    Hello all - not reading in here much at present - I seem to be slogging along - but my husband had good results with another procedure on his oesophagus- he ate a bread roll for the first time in 9 months ! So almost anything might go down. Unlike your husband @Grahamstown - mine lives to...
  5. Mudgee Joy

    And so it goes on...

    Dear @Grahamstown - Hope you are really relaxing and have some very pleasant times on your break. In a way you are doing it for all of us !! Certainly for me - you give me heart. I only think of respite as leaving my husband at home while I go away. I guess it’s a softer option for me - in a...
  6. Mudgee Joy

    And so it goes on...

    Oh dear - @Grahamstown - don’t let his talk of going home get to you. I’ve had 2 years of it and now when he says “can we go home” - or “I want to pack up and go” I try to hear “can I go to bed “ - or another tactic is - “we just moved here and it’s so nice !! See that picture of.... “ But...
  7. Mudgee Joy

    And so it goes on...

    Hello all - just catching up with posts again. I am hibernating a bit. I notice how much more alert my husband is when he manages to eat enough. It makes a huge difference- but sometimes he can’t manage the food. Tonight we went to the pub for dinner with friends - I try to keep up a...
  8. Mudgee Joy

    And so it goes on...

    Hello all you lovely carers!! None of this is easy. Seems as we manage one level - they go to the next level! But I had a night off and feel better for it. My niece is keen to help and is studying nursing so I pay her to help care - works for both of us. But it can’t be often as she has three...
  9. Mudgee Joy

    And so it goes on...

    Dear @Grahamstown - I am sorry to read your entry above. It’s been about 6 weeks since I had Norm in hospital as he couldn’t keep any food down. He was melting away and it was impossible not to be very distressed as you probably are often. The Dr was able to open his oesophagus a little. It’s...
  10. Mudgee Joy

    And so it goes on...

    I have had my husband on fluids , soft food etc for months now - I just sort of cook veges then purée them add beef or chicken stock and it’s soup ! But it’s so tiring not being normal - tonight we went to the local pub. Norm felt sure he could eat fish and mash. About 2 mouthfuls and we had to...
  11. Mudgee Joy

    Help with showering

    Maybe this won’t help but perhaps Japanese style wash - lather dad up with basin and soapy water outside the shower and then just pop him into shower or bath to rinse !? We washed like that in Japan.
  12. Mudgee Joy

    And so it goes on...

    Thanks - it’s really surprising to me - I didn’t know he still had the capacity . I guess I normally do so much for him that he can just take it easy
  13. Mudgee Joy

    And so it goes on...

    I really have something interesting to report. My husband had his oesophagus procedure and has been progressively eating better - still soft foods but greater variety and nutrients !! Last Thursday I fell over running and broke a tendon in my right hang.:( My husband - bless him - has tried...
  14. Mudgee Joy

    And so it goes on...

    I like the story about the little boy x
  15. Mudgee Joy

    Anger at loss of driving licence

    I didn’t really understand the comment !? I have always driven - and it will be another 10 years before I have to do a new test (Australia) . Carers allowance is pretty low here - $60 per week. MJ
  16. Mudgee Joy

    And so it goes on...

    And I should say every day has its own weirdness !! Today my husband wanted reassurance that we had enough dog food ! We have a very fat whippet / 3 ! No 4 times he asked - I lost it - got all the dog food out and showed him - “but can’t we just be friends?” He said in retaliation o_O
  17. Mudgee Joy

    And so it goes on...

    Dear @Guzelle I think you should find s care home somewhere and book him in for a weekend and just don’t tell him anything - Just take him there and say you have a medical appointment and will be back ASAP in a few days - I did it once and worked as he was looked after - I have treasured my few...
  18. Mudgee Joy

    Anger at loss of driving licence

    A book I have on Alzheimer’s called “creating moments of Joy” suggests you get a friend or relative to dress up in a uniform and visit the person with dementia and tell them they are no longer allowed to drive. Might work!? My husband had let me drive the car more and more and it was a fairly...
  19. Mudgee Joy

    And so it goes on...

    Well thank heavens for friends on TP . We are all a bit crazy . A geriatrician said to me last week “what is your line in the sand? When you would consider a care home “ I didn’t answer but sometimes I think some of you good people have passed “my line in the sand”. I do love my husband but...