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    Palliative care assessment

    Thank you:) I am probably worRied more in case it upsets R. She is terribly scared of dying and often talks about how scared she is when she is a bit down. She is deteriorating much quicker lately and I contacted GP to see what things need to be put in place just in case. I just hope they will...
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    Palliative care assessment

    Hello My friend has been referred for palliative care assessment and the nurses are coming next week to carry it out. What can we expect? We spoke to GP about having a DNR form completed, but not sure what else will be involved. Can someone please advise? I am a bit nervous to be fair...
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    101 and counting...

    Thank you for the reply:) We did have a little party. I try to navigate those situations as they come and if they are not distressing for her I try to go along with them whenever possible, so yesterday we ended up with several cups of water around the room, just to make sure the guests had a cup...
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    101 and counting...

    I just realised I have not posted in this thread for over a year and now it should be 102 and counting:) Looking over last few posts I realised it's been that long and we are still battling UTI after Uti every few weeks. But luckily R. still seems to have good days at times, although they are...
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    Hearing noises

    Hello My friend has been diagnosed with vascular dementia few years ago. She also hear singing sometimes. Usually with her few hours after she starts hearing that she also starts seeing invisible people, luckily their usually her friends who passed away so in a way they are not disturbing...
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    A book, a park bench and rain!

    What a nice way to spend some free time:) When i came to UK 12 years ago I moved to a small town and rented a room very close to local park. I didn't know anyone but I used to go to the park with my book every days and sit on a bench for few hours and read. Dogs would tun up to say hello every...
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    Altering the clock?

    Thank you for your replies:) We don't really watch much tv anymore. I have to be careful to choose programmes without violence etc, as they can sometimes influence her hallucinations, so we mostly watch old comedies on youtube on our tv. 'I love Lucy' and such like. She struggles to follow new...
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    Altering the clock?

    Hi all. I need some advice and opinions please. I look after a friend who's got VD. She does get very tired and down in the evenings. She is used to going to bed around 10pm and doesn't like getting up before 9am and the later in the morning the better usually. She usually spends the last hour...
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    What does the council allow you

    My friend used to have 30min visits 4 times a day. As she is not a morning person at the best of times the carers would often have to stay over that time and because the agency was billing the council for the extra time ( I think it might have been another 30min added to the bill, but not...
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    I am so stressed by my bullying brother over our joint POA it is making me ill

    Is it not possible for the person to revoke POA if they still have capacity? I thought that is an option but I don't have any experiece of POAs in practice. Sorry if this is not terribly helpful but you did mention that your mum still has capacity and has been assessed as having it. I do of...
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    Antidepressants - do you take them

    Hi. I am sorry to hear you are feeling unwell and that you are struggling so much. I've been having problems with depression on and off for 18 years now and I have been on antidepressants several times in the process when things got unmanagable. They do take a little while (2-3 weeks) to kick...
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    Suggestions for Christmas presents

    My friend loves lap blankets, they give her comfort. Also if someone can knit/crochet maybe a twiddle muff? they can be cute. I made a few as xmas presents for several of my older friends and people with dementia I know and they have been a great success in all cases. They don't take very long...
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    New to caring/being a Companion and need advice and support

    Hi. Maybe you could ask her to teach you how to play bridge? Even if she does not remember everything it could end up as a completely new game with rules constantly changing. If it was such an important part of her life maybe it would make her happy to try and pass that knowledge on to someone...
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    Food

    Oral thrush might also be a possibility. When my friend had it after a long course of antibiotics she was complaining of everything tasting salty even whet it was very sweet stuff, so that might be worth checking
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    Charges for domiciliary care

    The agency my friend uses charges about £26 per hour privately. LA pays £18.75 or something around that figure, so there is a bit of difference. This is in Hertfordshire
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    101 and counting...

    Thank you for this link. I certainly don't see you as a harbinger of doom. This has crossed my mind on several occasions, especially that last week she was diagnosed with chest infection on top of UTI and I was very worried how and if her body is able to fight both of them with so little food...
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    101 and counting...

    The UTI continues. 4th lot of antibiotics now, if those don't help she will be referred to hospital Gp said. Full hostess mode on display during GP's visit of course and conversation started with : I am not going to hospital, I don't want to. Because she was scared she might be send to hospital...
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    101 and counting...

    Thank you for your reply. We've been talking to gp couple of times last week. they just prescribed more antibiotics. Just took another sample to the surgery for testing. Waiting for a phone call now. In the meantime i keep trying to get her to drink with mixed results.
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    101 and counting...

    I have not posted for a while, as life is getting on top of me and sometimes trying to put a lot of thoughts in a sentence is beyond me. I'm having a tough time at the moment as R is having a UTI. She's been on antibiotics for a week, but getting her to drink enough to flush it all out is a...
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    101 and counting...

    Mark Twain - quite a handsome chap, but I wouldn't like to kiss him with that moustache. It must be horribly ticklish - R's reaction to seeing a portrait of M. Twain on a kindle screen saver last night:) Must remember that one for more difficult days:)