Hi, I've just registered and thought I'd see if anyone feels the same. My 82yr old mum has severe vascular dementia and Alzheimer's and has been in a care home for the last 3 and a half years. She's forgotten how to talk, walk, eat, she's double incontinent, she doesn't know if it's day or night, what day it is and barely who myself and my 3 sisters are - the only thing she manages to do is cry, holding her head in her hands, pleading with her eyes, searching for something that makes sense to her.
This horrific disease has coursed it's way through my mum and robbed her of any quality to the last years of her life - it's consuming us, it's taken over mine and my sisters lives. One of us visits everyday filled with dread and with a heavy heart, longing for a visit where she is smiling or even better sleeping - they are the best visits when we can't see her empty eyes that once were so bright.
She has no idea her beloved family home has gone, we've sold it and took away her possessions and boxed up her memories into a box which she can't understand - she doesn't know anyone in the photos, she doesn't know her partner has died, couldn't attend his funeral, missed her grand daughters wedding, doesn't know her great grand children.
Every night I pray for the same thing ... That one call where the care home says " I'm sorry but......"
I won't be sorry, none of her girls will ... We will be relieved, thankful that this disease cannot hurt her anymore, she can't beat this, Alzheimer's won the fight 3 yrs ago.
All I want is to be able to remember her as she was beautiful, caring, funny, the best mum anyone could ask for but the longer this goes on the harder it's becoming.
Sorry for the long post ... Really struggling to find any positives at the min.
This horrific disease has coursed it's way through my mum and robbed her of any quality to the last years of her life - it's consuming us, it's taken over mine and my sisters lives. One of us visits everyday filled with dread and with a heavy heart, longing for a visit where she is smiling or even better sleeping - they are the best visits when we can't see her empty eyes that once were so bright.
She has no idea her beloved family home has gone, we've sold it and took away her possessions and boxed up her memories into a box which she can't understand - she doesn't know anyone in the photos, she doesn't know her partner has died, couldn't attend his funeral, missed her grand daughters wedding, doesn't know her great grand children.
Every night I pray for the same thing ... That one call where the care home says " I'm sorry but......"
I won't be sorry, none of her girls will ... We will be relieved, thankful that this disease cannot hurt her anymore, she can't beat this, Alzheimer's won the fight 3 yrs ago.
All I want is to be able to remember her as she was beautiful, caring, funny, the best mum anyone could ask for but the longer this goes on the harder it's becoming.
Sorry for the long post ... Really struggling to find any positives at the min.