Hi, I am new here
Mum has had Lewy Body Dementia for almost 5 years, and is now in care.
My StepDad was her carer, but he died a week after she entered the nursing Home.
He could no longer care for her at home, as she had lost the ability to move herself, could not walk, stand, and could only just sit in a chair.
Since moving to the Nursing home, she has gradually declined, which seems a natural progression.
The Nursing Home and staff are fantastic, and really caring.
3 weeks ago, Mum was no longer able to pass urine, and a catheter was inserted. She got an infection, and was put on antibiotics.
She had lost interest in food, but was drinking quite well.
This was the second lost of antibiotics, and she is bedridden.
She seems to recognise me, but doesnt realy talk, perhaps the odd word here and there, mostly she just stares at me.
I have asked for palliative care only, as she was taken to hospital after her legs started swelling, and it was not a good experience for her. Medically, the Docs said there was nothing more they could do.
My dilemma was that I was not sure what type of intervention I should allow. She is not eating at all now, and hardly able to take fluid, maybe a tiny spoonful, dribbled into her mouth.
She has passed motions several times in a day, which the staff inform me is not 'nice', and really, as she is not eating, obviously she is passing body fluids. Her Catheter is colelcting fluid that looks not normal, and I believe that Mum is coming to her last few days
The Hospital told me that Mum was dying, that was 6 weeks ago, and poor Mum has been in this bad way for all of that time.
I feel I am making decisions that Mum would want, but its such a hard thing to say 'no intervention'
Yesterday when I visited, she was semi comatose most of the time, but when I leant over her, her eyes partially opened, and she 'kissed' me, then just kept staring before closing her eyes again.
As I say, I feel she is 'at the end', but would like to hear from any of you that have experiences of this time.
I am finding it so difficult and cry most of the time I visit. I feel guilty because I want the end to come swiftly for her now
Mum has had Lewy Body Dementia for almost 5 years, and is now in care.
My StepDad was her carer, but he died a week after she entered the nursing Home.
He could no longer care for her at home, as she had lost the ability to move herself, could not walk, stand, and could only just sit in a chair.
Since moving to the Nursing home, she has gradually declined, which seems a natural progression.
The Nursing Home and staff are fantastic, and really caring.
3 weeks ago, Mum was no longer able to pass urine, and a catheter was inserted. She got an infection, and was put on antibiotics.
She had lost interest in food, but was drinking quite well.
This was the second lost of antibiotics, and she is bedridden.
She seems to recognise me, but doesnt realy talk, perhaps the odd word here and there, mostly she just stares at me.
I have asked for palliative care only, as she was taken to hospital after her legs started swelling, and it was not a good experience for her. Medically, the Docs said there was nothing more they could do.
My dilemma was that I was not sure what type of intervention I should allow. She is not eating at all now, and hardly able to take fluid, maybe a tiny spoonful, dribbled into her mouth.
She has passed motions several times in a day, which the staff inform me is not 'nice', and really, as she is not eating, obviously she is passing body fluids. Her Catheter is colelcting fluid that looks not normal, and I believe that Mum is coming to her last few days
The Hospital told me that Mum was dying, that was 6 weeks ago, and poor Mum has been in this bad way for all of that time.
I feel I am making decisions that Mum would want, but its such a hard thing to say 'no intervention'
Yesterday when I visited, she was semi comatose most of the time, but when I leant over her, her eyes partially opened, and she 'kissed' me, then just kept staring before closing her eyes again.
As I say, I feel she is 'at the end', but would like to hear from any of you that have experiences of this time.
I am finding it so difficult and cry most of the time I visit. I feel guilty because I want the end to come swiftly for her now