Today is Sharon's 58th birthday. No cake, balloons or silly hats this year. I wondered if she would make it this far, and she has; although she won't make it much further.
She has been in bed since the week before Easter and is fading more day by day. It is now over a week since she has eaten anything at mid-day, only having a spoon of yoghurt and one or two strawberries for breakfast, and some days she will have the same in the evening but other days she just wants a sip of water. She is very peaceful and content which is a blessing for both of us. She is sleeping (or resting with her eyes closed) for 23 hours a day for the past couple of weeks, but when she is awake she will still interact with me. Yesterday morning she stayed up long enough that I was able to wash her hair and get a new gown on her, so she is looking nice and fresh today.
Our daughters have all called asking me to give Sharon a hug and kiss for them. Sharon's mum came for a visit this morning and lay beside Sharon and cried for awhile, it is so difficult for her.
It is more than 9 years since Sharon was diagnosed, at that time we were told to expect 5 to 6 years - so she has bested that estimate by more than half!
For her birthday I wish her continued peace and comfort, I don't want to lose her - but I don't want to see her slip into pain or anguish. She is so calm right now, if she can pass on this way it will be good.
She has been in bed since the week before Easter and is fading more day by day. It is now over a week since she has eaten anything at mid-day, only having a spoon of yoghurt and one or two strawberries for breakfast, and some days she will have the same in the evening but other days she just wants a sip of water. She is very peaceful and content which is a blessing for both of us. She is sleeping (or resting with her eyes closed) for 23 hours a day for the past couple of weeks, but when she is awake she will still interact with me. Yesterday morning she stayed up long enough that I was able to wash her hair and get a new gown on her, so she is looking nice and fresh today.
Our daughters have all called asking me to give Sharon a hug and kiss for them. Sharon's mum came for a visit this morning and lay beside Sharon and cried for awhile, it is so difficult for her.
It is more than 9 years since Sharon was diagnosed, at that time we were told to expect 5 to 6 years - so she has bested that estimate by more than half!
For her birthday I wish her continued peace and comfort, I don't want to lose her - but I don't want to see her slip into pain or anguish. She is so calm right now, if she can pass on this way it will be good.
