my mum went to the memory clinic yesterday and i was told she has cardiovascular dementia and was told there is no treatment what so ever, im devastated, cant believe there's nothing that can be done, night times are the worst for my mum shes terrified and cry s, but through the day she is confused but not to bad though i do see her going worse over the days, this disease is so cruel and sad i feel for any one that is going through this, its so hard but i need a bit of advice on how to help my mum the best way i can, she cant even complete a sentance now its so sad i wouyld be grateful for some tips thankyou for your time x
cardivascular dementia
- Thread starter debsybel
- Start date
Hello Debsybel, so sorry that you were told there is no treatment for mum, rather then being advised what can be done to help her in other ways, I am assuming they mean no medication help ? please do get to see mum's GP and tell him/her about the visit to the memory clinic and ask if there is anything the doctor can help with. You are helping your mum by being loving and caring, and I hope Talking Point will be of help as well.
Please keep posting, and a warm welcome to you for joining us.
Best wishes
Chris
Please keep posting, and a warm welcome to you for joining us.
Best wishes
Chris
dementia
thank you Chris , i cant believe i was told that's it there's nothing that can be done
it was a shock being told she had this disease im so sad to think she is just going to deteriate in front of me, he didn't even offer support in any way thank god this site is here to help people he told me to come back in 6 months but i didn't like him what so ever, so wont be going back there, i will most certainly be seeing my gp Monday thanks again Chris x
thank you Chris , i cant believe i was told that's it there's nothing that can be done
it was a shock being told she had this disease im so sad to think she is just going to deteriate in front of me, he didn't even offer support in any way thank god this site is here to help people he told me to come back in 6 months but i didn't like him what so ever, so wont be going back there, i will most certainly be seeing my gp Monday thanks again Chris x
Hi Debsybel,
The Memory Clinic won't be able to do anything as they're just focused on the brain and the kinds of dementia that they can treat. BUT your mum will possibly benefit from drugs that lower blood pressure and cholesterol to slow down TIAs (transient ischaemic attacks) and mini strokes. NHS choices has a lot of information about all this but I still don't really understand. It's something that you need to talk to your mum's GP about and don't be scared to ask questions if (in my case, when) it all starts going over your head
It's always worth getting in touch with your local branch of the Alzheimer's Society as they will be incredibly supportive and helpful about how to tackle what's happening to your mum and help you look after yourself as well.
Dementia isn't and never can be a good thing but you can have good days in amongst all the rubbish.
The Memory Clinic won't be able to do anything as they're just focused on the brain and the kinds of dementia that they can treat. BUT your mum will possibly benefit from drugs that lower blood pressure and cholesterol to slow down TIAs (transient ischaemic attacks) and mini strokes. NHS choices has a lot of information about all this but I still don't really understand
. It's something that you need to talk to your mum's GP about and don't be scared to ask questions if (in my case, when) it all starts going over your headIt's always worth getting in touch with your local branch of the Alzheimer's Society as they will be incredibly supportive and helpful about how to tackle what's happening to your mum and help you look after yourself as well.
Dementia isn't and never can be a good thing but you can have good days in amongst all the rubbish.
Hello debsybell , and welcome to TP,my husband was diagnosed with vascular dementia about 4 years ago even though I suspect he has had it for about 15 years , we were also told that nothing can be done and there is no treatment he will just get worse, , he was already taking medication for high blood pressure , a duiretic , aspirin,and other medication as he had a heart bypass about 8 years ago, the specialist said that scans were not needed and we were just left to get on with it , it is very sad he is only 65 but i have come to accept that nothing will help,you can just be a informed as possible about this dreadful illness ,
Best wishes
Jeany x,
Best wishes
Jeany x,
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Hi Debsybel, Im sorry you have had to join us but there again it's a great place for support does your mum live alone and can she manage ok? It's all soooo horrible this, my Dad has had to go into a carehome as Mum just couldn't manage him any more at home...it takes a lot of getting your head round....take care and keep posting!! Mary
does your mum live alone and can she manage ok? It's all soooo horrible this, my Dad has had to go into a carehome as Mum just couldn't manage him any more at home...it takes a lot of getting your head round....take care and keep posting!! MaryHi Debsybel,
We're a little way behind you because the memory clinic have said Mum has been out on an 8 month waiting list, but I know what they're going to say.
She's on medication for heart troubles and hypothyroidism and the doctor has already said that a lot of the treatment available wouldn't be compatible with the suite of drugs she already takes.
She's confused, keeps asking me about my Dad (died 1989) and her parents (died early eighties) and her brother (died 1992) has a load of issues, and is full on sundowning which is so hard for the rest of us when she gets up at 3am and puts the lights on - she lives with us you see.
I'm trying to get her assessment accelerated but so many people need help. It's very sad
She's just asked me what job my Son has.... he's five and at school
We're a little way behind you because the memory clinic have said Mum has been out on an 8 month waiting list, but I know what they're going to say.
She's on medication for heart troubles and hypothyroidism and the doctor has already said that a lot of the treatment available wouldn't be compatible with the suite of drugs she already takes.
She's confused, keeps asking me about my Dad (died 1989) and her parents (died early eighties) and her brother (died 1992) has a load of issues, and is full on sundowning which is so hard for the rest of us when she gets up at 3am and puts the lights on - she lives with us you see.
I'm trying to get her assessment accelerated but so many people need help. It's very sad
She's just asked me what job my Son has.... he's five and at school
dementia
thankyou jeany so sorry for your dad also its a dreadful illness, iv never felt so depressed in all my life,,,,,,,,,thankyou to all that replied, am thinking about you all that are going through this hugs to all. xxx
dementia
thankyou also mary my mum lives with my dad who is also ill but i do most of the caring for my mum, as he cant cope much, we just keep crying its a very cruel illness, its just unbearable to watch, im not alone and your all going through it my heart goes out to everyone who is going through this xxx hugs to allHi Debsybel, Im sorry you have had to join us but there again it's a great place for support
awww your poor mum so feel for you its horrible isnt it, so sad hugs to you xxxHi Debsybel,
We're a little way behind you because the memory clinic have said Mum has been out on an 8 month waiting list, but I know what they're going to say.
She's on medication for heart troubles and hypothyroidism and the doctor has already said that a lot of the treatment available wouldn't be compatible with the suite of drugs she already takes.
She's confused, keeps asking me about my Dad (died 1989) and her parents (died early eighties) and her brother (died 1992) has a load of issues, and is full on sundowning which is so hard for the rest of us when she gets up at 3am and puts the lights on - she lives with us you see.
I'm trying to get her assessment accelerated but so many people need help. It's very sad
She's just asked me what job my Son has.... he's five and at school
dementia
my heart goes out to all who are careres for there loved ones with dementia it truely is a very sad thing to have to go through, i have never felt so sad in my life and dementia is the cruelest thing ever, the last time i wrote was in dec 2012 up until my mum has deteriated, constantly on her feet all day and night to, she is 72 and is weak and nearly falls all the timei have to constantly watch her, my blood pressure is sky high, thankfully her anxieties have lessened due to antidepressants, she hardly sleeps, she cant form a sentence, goes to speak and its all muddled up, she thinks im in the telly she calls me mum, but im her daughter and ses ok mummy when i tell her to do things to encourage her, she doesnt even realise what going to the toilet is, or what to do with her medication she puts it into her drinks, its heart breaking i truely believe the doctors side want rid of people like my mum, theres no help no medication, it makes me laugh because my mum needs diazipan of an evening but the doctors say she cant continue on them as they are addictive,,,,,,,,,halo shes got dementia shes dying why cant she have these tablets, theres definetly not enough being done, i think if it was one of there family members it would be a different matter, she cant read or rite, she cant remember anything, and has no understanding at all, i have heard people with this desease in care homes take a tablet of an evening for dementia, but when you tell doctors, they just say it wont work, i told my doctors a few things i have seen on the net and she said dont believe everything what you see on the internet, i have noticed also that she is having toilet probs as well and now i have to put pads on her, wich is realy freightning because i feel as if her organs are slowly going or the brain is going worse, she asks for her mum all the time or sometimes thinks im her mum, i took my mum in the car last night for a little drive and we sat out side the shop and just out the blue she said theres our berny, her brother i said no its not berny mum and she cried, i was sobbing but had to turn away, sorry to go on but thankyou for this site just think if we had no one to talk to at all, sometimes i think im going to crack its scarey,x
my heart goes out to all who are careres for there loved ones with dementia it truely is a very sad thing to have to go through, i have never felt so sad in my life and dementia is the cruelest thing ever, the last time i wrote was in dec 2012 up until my mum has deteriated, constantly on her feet all day and night to, she is 72 and is weak and nearly falls all the timei have to constantly watch her, my blood pressure is sky high, thankfully her anxieties have lessened due to antidepressants, she hardly sleeps, she cant form a sentence, goes to speak and its all muddled up, she thinks im in the telly she calls me mum, but im her daughter and ses ok mummy when i tell her to do things to encourage her, she doesnt even realise what going to the toilet is, or what to do with her medication she puts it into her drinks, its heart breaking i truely believe the doctors side want rid of people like my mum, theres no help no medication, it makes me laugh because my mum needs diazipan of an evening but the doctors say she cant continue on them as they are addictive,,,,,,,,,halo shes got dementia shes dying why cant she have these tablets, theres definetly not enough being done, i think if it was one of there family members it would be a different matter, she cant read or rite, she cant remember anything, and has no understanding at all, i have heard people with this desease in care homes take a tablet of an evening for dementia, but when you tell doctors, they just say it wont work, i told my doctors a few things i have seen on the net and she said dont believe everything what you see on the internet, i have noticed also that she is having toilet probs as well and now i have to put pads on her, wich is realy freightning because i feel as if her organs are slowly going or the brain is going worse, she asks for her mum all the time or sometimes thinks im her mum, i took my mum in the car last night for a little drive and we sat out side the shop and just out the blue she said theres our berny, her brother i said no its not berny mum and she cried, i was sobbing but had to turn away, sorry to go on but thankyou for this site just think if we had no one to talk to at all, sometimes i think im going to crack its scarey,x
Hi Debsybel,
Do your mum and dad have carers going in to help? They should do, you know. It's usually arranged by social services
Do your mum and dad have carers going in to help? They should do, you know. It's usually arranged by social services