My husband is currently on respite with a view to full time care. The last few months have been horrendous for me to cope with as he has Parkinson's with Lewy body dementia and has been a nightmare to deal with. Mainly as he has hallucinations centred around me that have made my life a misery.I have not had a rest while he has been away as I've had so many things to sort out regarding continuing care which has been difficult as my social worker is sick and no one else is familiar with the case. He has settled a lot better than I thought he would but has been very delusional, the home had to ring me today as he thought I'd been kidnapped and talking with him made very little sense.
I suspect like many others I feel very guilty about him going into care as it is not an easy decision to make. It is a lot harder as when I look around at other residents they are a lot further advanced than him and I wonder if it's the right place for him. I know how much he misses home, our pets and his freedom and I find it very strange without him.
I have thought of many scenarios to try and make a better solution. As the possibility of full time care loomed I have decided to go back to work as I would be unable to support myself. I have considered having him back at home with a full time carer while I'm at work. I don't know if anyone has experience of doing this and pitfalls if any. My concern is what he will be like at night as the hallucinations start then and I won't want to get up if I have to go to work. Am i better to live with the guilt and the feeling he is not quite ready for full time care as that is the best option at the moment or should I be looking at something else. I have spent the last few weeks in turmoil, agonising what to do for the best. I know there is no magic solution but ideas and help are very welcome as I'm just about at my wits end knowing what to do.
I suspect like many others I feel very guilty about him going into care as it is not an easy decision to make. It is a lot harder as when I look around at other residents they are a lot further advanced than him and I wonder if it's the right place for him. I know how much he misses home, our pets and his freedom and I find it very strange without him.
I have thought of many scenarios to try and make a better solution. As the possibility of full time care loomed I have decided to go back to work as I would be unable to support myself. I have considered having him back at home with a full time carer while I'm at work. I don't know if anyone has experience of doing this and pitfalls if any. My concern is what he will be like at night as the hallucinations start then and I won't want to get up if I have to go to work. Am i better to live with the guilt and the feeling he is not quite ready for full time care as that is the best option at the moment or should I be looking at something else. I have spent the last few weeks in turmoil, agonising what to do for the best. I know there is no magic solution but ideas and help are very welcome as I'm just about at my wits end knowing what to do.