I've been browsing this forum for a few weeks now and started to wonder just how unique our situation is ie, carers of early onset dementia sufferers. I raise the question as i note relatively small numbers of threads on the younger people section compared to the main body of the forum. It worries me to see that increasingly the organisation growing in terms of presence in the field of dementia provision is AGE UK, and as this is set to continue who realistically is going to be interested in the more complex needs of the younger sufferer? Having looked at the Alzheimers Society factsheets they estimate over 16000 sufferers under the age of 65, but think this could be an underestimate by a factor of 3. Taking the population of Britain at 60 million that suggests 0.026% of the population are early onset sufferers. I doubt we'll get much support for our cause/problems in the corridors of Whitehall or many other places for that matter. Early onset support is patchy across the Country, funding is harder to attain, and our local Alzheimers Society "locality" is facing staff cutbacks/hours reductions etc. As the minority i think we could be facing a bleak future. Comments/Views?