The Winds
Of Change
Changing times are ahead, and I must admit, sometimes change is difficult to deal with, especially when you have a diagnosis of dementia. In the last seven days I have been informed I have a new Consultant regarding my Dementia, and also, as a double whammy I had a letter yesterday saying my GP of twelve years plus is retiring. Normally this wouldn’t be a problem with most people but something like this can have a real adverse effect on people with Dementia.
I have found myself worrying about this so much, all sorts of connotations and thoughts have passed through my mind and it’s so unsettling. Things like this, that most people would take in their stride has made me so fretful. On top of which I have an appointment with my new consultant tomorrow along with my Community Phsyc nurse and the topic is going to be “Lewy Body’s”
Yes, you heard right, because of my intolerable nightmares, smelling things and hearing things that aren’t real I have also gone through a stage of thinking I have seen something that has never happened, that after a very long conversation between my “Angel Elaine and my CPN (Nurse) there is now a thread of thought that when I was diagnosed with early onset dementia it might actually be Lewy Body`s rather than Alzheimer’s!!
Some would say I have been miss-diagnosed, but either way I STILL HAVE DEMENTIA and there is still no cure (AS YET!!)
So, what now?? Why do I feel as if I have been set back four years!! Why does it still feel as raw being told this than it did four years ago when I was diagnosed with Alzheimer’s type Dementia, and why do I feel just as devastated now as I did then??
Because my friends, I know what the end result Is, I am seeing my friend`s who have the same diagnosis as me but are a little farther down the line, slowly disappearing in front of my eyes every week when we meet. The feeling of hopelessness and utter despair still feels as if it’s attached to me and never left me. This is the truth of this disease! This is how this disease drags you down and pulls you towards the depths of despair. It doesn’t matter how many times you are told you have dementia, the effect is just the same!! But I promise you this my wonderful friends, be it, Lewy Body`s, Alzheimer’s or any other type of dementia that may try to take me away from my family and friends, it’s got one HELLUVA fight on its hands!! This is one very Determined (Young LOL) granddad!!! And I for one intend to stay that way until the day a cure is found!!
All our love, Norms, Elaine and family xxxxxxxxxxxxx
Of Change
Changing times are ahead, and I must admit, sometimes change is difficult to deal with, especially when you have a diagnosis of dementia. In the last seven days I have been informed I have a new Consultant regarding my Dementia, and also, as a double whammy I had a letter yesterday saying my GP of twelve years plus is retiring. Normally this wouldn’t be a problem with most people but something like this can have a real adverse effect on people with Dementia.
I have found myself worrying about this so much, all sorts of connotations and thoughts have passed through my mind and it’s so unsettling. Things like this, that most people would take in their stride has made me so fretful. On top of which I have an appointment with my new consultant tomorrow along with my Community Phsyc nurse and the topic is going to be “Lewy Body’s”
Yes, you heard right, because of my intolerable nightmares, smelling things and hearing things that aren’t real I have also gone through a stage of thinking I have seen something that has never happened, that after a very long conversation between my “Angel Elaine and my CPN (Nurse) there is now a thread of thought that when I was diagnosed with early onset dementia it might actually be Lewy Body`s rather than Alzheimer’s!!
Some would say I have been miss-diagnosed, but either way I STILL HAVE DEMENTIA and there is still no cure (AS YET!!)
So, what now?? Why do I feel as if I have been set back four years!! Why does it still feel as raw being told this than it did four years ago when I was diagnosed with Alzheimer’s type Dementia, and why do I feel just as devastated now as I did then??
Because my friends, I know what the end result Is, I am seeing my friend`s who have the same diagnosis as me but are a little farther down the line, slowly disappearing in front of my eyes every week when we meet. The feeling of hopelessness and utter despair still feels as if it’s attached to me and never left me. This is the truth of this disease! This is how this disease drags you down and pulls you towards the depths of despair. It doesn’t matter how many times you are told you have dementia, the effect is just the same!! But I promise you this my wonderful friends, be it, Lewy Body`s, Alzheimer’s or any other type of dementia that may try to take me away from my family and friends, it’s got one HELLUVA fight on its hands!! This is one very Determined (Young LOL) granddad!!! And I for one intend to stay that way until the day a cure is found!!
All our love, Norms, Elaine and family xxxxxxxxxxxxx
