I need advice from you all in how to word express something.
What it is as some of you may know , I am moving in to a house OT said on phone they can do all the adaptation to the house they my mother may need , as in putting a hand rail so my mother can go upstairs , where the shower is and the adaptation to the toilet that is downstairs where my mother is going to sleeping.
What it is I have been told by the housing manger that he has another priority, house that has already been adapted and even has a life in the house to get upstairs. But the council have to authorise it . He says he can show me this house on Monday when we meet up with OT with my mother on Monday.
My OT is going to meet me on Monday to view the house to see what adaption need to be done for my mother , mum has to come with me ; I did not want to take my mother angina , as she had a fall the other day , after viewing it with my daughter and I .
My issue is that when I spoke to OT on phone, told her about other priority with life in house , she says that when she needs to write a report on my mother needs for the now , the other house has been adapted for someone that need a wheelchair to get around inside a house, that people with AZ can walk for around inside the house they have the ability to walk forever .
,
Now sorry this is where I get frustrated angry, Confused , sad , so trap , in no one understanding where I am coming from, that they are stereotyping, decimating my mother disability, we understand that when you see one person with AZ you only seen one.
The system does not understand , my mother going to end up laying in bed all day , if I don’t motivate her , need a Zimmer frame , yes she going to need a wheelchair to get around near her ending of life , who know no one , but why can’t they give me that type of property that is already adapted , so I can care for her as long as I want to, I want that choice I’ll be saving them so much money , rather then putting mum in a care home.
I want choice , I just want that choice they can give me it , but they have rules .
My daughter say , don’t just say it’s the AZ , that my mother has other disability can’t spell it , something that make her bones swell up and it hurts her knees,
Mum just gone to daycentre, was telling a worker about it, he say that the hear now is important also, as long as the house can be adapted that also important, and should take the house anyway. I am going to take it that was not my point I have sigh for it. Sometime I feel I am losing a wining battle. can't even get that saying right now
anyway does anyone have any idea in what to tell OP to try to get my point over, sorry but I hate the system in how they stereotype people with AZ its llike saying my mother needs are not so high , other people have greater needs , god my mother got AZ what does she need to be on her death bed at home with me before they listen to me , seem that way to me .
Just don't want to bottle it all up cry , because I feel so angery and don't want to lose my temper when I try to explain it to them, so I share it all with you xx
What it is as some of you may know , I am moving in to a house OT said on phone they can do all the adaptation to the house they my mother may need , as in putting a hand rail so my mother can go upstairs , where the shower is and the adaptation to the toilet that is downstairs where my mother is going to sleeping.
What it is I have been told by the housing manger that he has another priority, house that has already been adapted and even has a life in the house to get upstairs. But the council have to authorise it . He says he can show me this house on Monday when we meet up with OT with my mother on Monday.
My OT is going to meet me on Monday to view the house to see what adaption need to be done for my mother , mum has to come with me ; I did not want to take my mother angina , as she had a fall the other day , after viewing it with my daughter and I .
My issue is that when I spoke to OT on phone, told her about other priority with life in house , she says that when she needs to write a report on my mother needs for the now , the other house has been adapted for someone that need a wheelchair to get around inside a house, that people with AZ can walk for around inside the house they have the ability to walk forever .
,
Now sorry this is where I get frustrated angry, Confused , sad , so trap , in no one understanding where I am coming from, that they are stereotyping, decimating my mother disability, we understand that when you see one person with AZ you only seen one.
The system does not understand , my mother going to end up laying in bed all day , if I don’t motivate her , need a Zimmer frame , yes she going to need a wheelchair to get around near her ending of life , who know no one , but why can’t they give me that type of property that is already adapted , so I can care for her as long as I want to, I want that choice I’ll be saving them so much money , rather then putting mum in a care home.
I want choice , I just want that choice they can give me it , but they have rules .
My daughter say , don’t just say it’s the AZ , that my mother has other disability can’t spell it , something that make her bones swell up and it hurts her knees,
Mum just gone to daycentre, was telling a worker about it, he say that the hear now is important also, as long as the house can be adapted that also important, and should take the house anyway. I am going to take it that was not my point I have sigh for it. Sometime I feel I am losing a wining battle. can't even get that saying right now
anyway does anyone have any idea in what to tell OP to try to get my point over, sorry but I hate the system in how they stereotype people with AZ its llike saying my mother needs are not so high , other people have greater needs , god my mother got AZ what does she need to be on her death bed at home with me before they listen to me , seem that way to me .
Just don't want to bottle it all up cry , because I feel so angery and don't want to lose my temper when I try to explain it to them, so I share it all with you xx
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