Lila raises an interesting point, i.e. how much interest/support should we expect from professionals? Since my husband's official diagnosis four and a half years ago, I/we have had contact with several people, e.g. CPN, health visitors for older people and carer support workers from local charities. Unless I contact them, nobody ever calls me to ask how are things. Only exception is a twice-yearly (yep, you read that right) phone call from the CPN and that is only because I specifcally requested her predecessor to call me every two or three months.
We see the consultant twice a year and the GP when I think it's necessary. Am I being unreasonable/unrealistic to think that contact, from "carer support workers" in particular, might occasionally be instigated by them, rather than me on those occasions when I need specific advice or information? Of the four GPs in our practice, only one has ever asked me how I was. The others studiously avoid (it seems to me) ever mentioning "the elephant in the room" if I have occasion to consult them on some unrelated problem.
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We see the consultant twice a year and the GP when I think it's necessary. Am I being unreasonable/unrealistic to think that contact, from "carer support workers" in particular, might occasionally be instigated by them, rather than me on those occasions when I need specific advice or information? Of the four GPs in our practice, only one has ever asked me how I was. The others studiously avoid (it seems to me) ever mentioning "the elephant in the room" if I have occasion to consult them on some unrelated problem.
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