Tender Face said:
Right, 'K'. You are 'so into' your own problems..... who told you about 'mild genes'? Or 'mild' cystic fibrosis'? Genes are either defective or not. Infants/children/adults are either CF sufferers or not. How old are those children? Who is looking after them all the time you are worrying about yourself? (I guess it's your wife). What physical (e.g. physio) care do they need now apart from their emotional care? Have they not got to that stage? Is that what you are frightened of? How about looking up info about CF (concentrating on others who love you and need you) and planning a positive future instead of researching what you see as your own bleak one?
Are you actually sure that these two children have CF? Is that a definitive diagnosis or something you have determined for them and yourself from your research on medical and other help sites? You are clearly well able to research your own symptoms and try to self-diagnose. Is that what you have done for them? (I don’t think I want to know the answer).
Children in bed at 6pm? So you can concentrate on your own self-diagnosis? You are presenting very serious concerns - and not just about yourself - but the welfare of the children in your care. You MUST get some help! How many times does anyone round here have to say it to you????!!!!
I'm sorry if I sound angry (and this is me being restrained)! but you really have had a wealth of good advice, support and comments from this site for yourself which you do not appear to want to 'take on' - from which we can each individually draw our own conclusions.
I am sorry, my focus is on your children but your continuing posts are raising concerns for me that go beyond the realms of your own health and I fear for the environment your children are in….
Can you reassure me?
Sorry to appear so negative – I am only trying to prompt for a positive outcome for you and your family – you clearly cannot carry on as you are - not just for your own sake – but without a desperately negative impact on the children who rely on you.
They rely on US! They need a role model! What image are you giving to your young ones? Can’t you do it for them????? Is that the problem? You are so young with so much to cope with – perhaps you need the TLC….?
Sorry, I always seem to bombard with questions, they are not meant to be answered per se, just triggers for thought processes……
Wish there was some breakthrough for you…. TF, x
Now it's my turn to get really angry because there is only so much i can take from someone especially someone is butting into someone's personal life and butting into childrens lives when it is no concern for them.
At the end of the day tender face you have no need to poke into my private life and my children's lives this is not what i am on here for and that is not what other people are on here for.
For your information yes my 2 children were diagnosed with cystic fibrosis afew years ago, obviously i am not going to tell you their ages, they do have the cystic fibrosis genes but they have mild genes, as they inherited one severe copy of the gene and one mild copy of the gene and this was told to us by several doctors and consultants and a genetisit, they do not need much physiotherapy, they only need checkups 2-3 times per year, they are not like alot of other people with cystic fibrosis they are quite lucky that they are not severely ill.
Also you dont need to focus your concerns on my children, they are in a very loving environment and are very well looked after, my problems that i currently have are not known to the children and to them everything is normal.
So i have confirmed to you that my children have cystic fibrosis, this was confirmed with gene testing and as you now know for sure they have mild genes, they do not need any physical care as i have already said they only need alittle bit of physio now and again.
Also my children do not go to bed at 6pm so that i can concentrate on my own diagnosis at all, my children usually go to bed between 7pm and 7.30pm but on the occasions when they have been really naughty then they go to bed at 6pm but anyway that is not anything to do with you.
I came on this website for advice on my problems not anything else, to be honest my wife and children are nothing to do with anyone on here and you might think these kids are suffering but i can assure you that they are not and if a social worker or someone came round to access the situation then i am 100% sure that they would agree!!
Yeah it is hard for me sometimes as i am very young but i cope well and always try my best for the children and we have a very loving family!!
