Very Worried

[Norrms]

Hi, after reading one of the threads " Care homes for early onset) could somebody please try to put my mind at rest. As you know i am 51 with the early onset of AD. If i get worse over the next few years and to a poit where even my darling wife cannot cope where could i go?? The last thing i want is to be a burden on my famly and if i am in a home at least it will take a lot of pressure off them. i keep reding about the over 65s ect but what about the over 50s ? Anybody got any ideas ? i live in the Torquay area, thank you, Norrms and family

 

[Grannie G]

Dear Norms

This must be a terrible worry for you and I`m afraid I don`t have an answer.
The only information I can find about care homes for younger people with dementia is here;
http://www.dementiaweb.org.uk/younger-people-future-care-options.html
but it doesn`t cover your area.
However it is a point to start from and there is a link to the CQC website.
I hope you are a long way away from having to consider residential care Norms but I have so much admiration for you for thinking ahead.

 

[Helen33]

Hello Norrms

I can understand your worry Norrms and my first thoughts are that you might be in a good position to research the local options now. If nothing comes up to scratch, it might be something that you would want to address with the powers that be. Tackled early enough you could have something tailor made for if the time ever came that you needed it. If you didn't need it yourself, I am sure there would be others who would benefit from it.

Love and a big (((HUG)))

 

[gigi]

Hello Norrms....

I don't know what to say...

Sylvia has given you a link to look at...

I admire you for thinking ahead..and realise there are times when you will wonder about the future and what it will hold for you and Elaine....

None of us do know...

It's wise to look at options and plan...and prepare...and very brave too.

I hope you are a long way away from having to consider residential care Norms but I have so much admiration for you for thinking ahead.

I second that Norrms....

Love xx

 

[living in hope]

Hi Normms
My husband is 59 and has just gone into full-time care, he is a residential home for the elderly in our village. There is nothing in our area for younger people so this was the only option however on the whole he has settled well (thinks hes helping with the other residents) carers are very good with him, take him out for regular walks which most of the others are not capable of doing, his needs are met on an individual basis as they are different to the older residents, so I have no complaints and have found the staff to be very supportive of me as I have struggled to come to terms with this stage.
love
lorraine

 

[myheadisinaspin]

i have the same worries too mum is 62 and yesterday we took her to an alzheimers group to meet new people and socialise a bit with others who have the disease. i' sorry to say it was not what we expected at all. it was like a creche for the elder of the elderly if you know what i mean (dont wnat to offend people)mum looked like a toddler sat there she must of been 20-30 years younger and not as advanced as others in the group. why is there not social groups and care home for younger people, my mum actually said if she had to go anywhere like that at the mo it would make her worse. i know that when time comes (hopefully alot further down the line) she will benefit form it but not at moment. it would of been nice for mum and i to have gone to a group which caters for her needs and questions and mine too. it certainly woke me up to what will happen to mum futher down the line, thank fully hopefully she will be unaware- CRY xxx

 

[Brucie]

it would of been nice for mum and i to have gone to a group which caters for her needs and questions and mine too

Sadly it is common that those with early onset dementia have nowhere to turn for help.

I assumed it might have improved since we were in your situation ten years ago, but, apparently, not.

Try to enjoy each moment you can.

Meantime, there are many here on TP who understand exactly where you stand today. Please feel able to ask whatever you need, or simply to share your woes and fears.

 

[twink]

Hi, after reading one of the threads " Care homes for early onset) could somebody please try to put my mind at rest. As you know i am 51 with the early onset of AD. If i get worse over the next few years and to a poit where even my darling wife cannot cope where could i go?? The last thing i want is to be a burden on my famly and if i am in a home at least it will take a lot of pressure off them. i keep reding about the over 65s ect but what about the over 50s ? Anybody got any ideas ? i live in the Torquay area, thank you, Norrms and family

Hi Norrms, I very rarely get on TP these days, I had to start working again when my husband Steve went into a home. I gave up work to care for him and went back shortly after he went to the home.

Steve is 58 now and has been in a home for 2 years and in hospital being assessed for 6 months before that. I can't believe how lucky we are, I live in a small Cambridgeshire town and there is the most fabulous home here with a unit for under 65's. Nowhere near you unfortunately but we have been so lucky living near this place. It's in my town, about 2 miles from where I live. The residents are under 65 as I said and after 65 they go into the next part of the building. We have men who are 42, 44 and 46 in there. The staff are wonderful and it's a new home, really nice.

Sorry that's not helpful to you, I hope you will be a while before you have to think about a home.

Sue

 

[Norrms]

Thank you, its good to know that places like that do exist, its something to build on isnt it?

 

[Grannie G]

Hello Twink/Sue

It`s lovely to hear from you. I hope life is not too difficult.

 

[twink]

Norrms, it's a lovely place and apparently the only one for miles around here, we're 20 miles from Peterborough and 30 from Cambridge (stuck in the middle of the Fens!) and I know visitors come from Cambridge to see 'service users'. As they are called!!!

Hi Grannie G. I'm very well thank you. I'm just getting over a cold and cough so not been to see Steve for 2 weeks and then when I went yesterday, one of the carers was sneezing and she didn't even put her hand over her face. Why did I stay away! lol. I even said "hand!" at one point!!! I don't want to be the one who takes a cold in and them ending up with a chest infection or worse.

I'm working again now (Ofsted Registered Childminder) which I started in 1987 in Herts and have gone back to it. I do it part time so I have some afternoons to go and see Steve. We have to do lots of paperwork so that takes up a lot of time. Steve smiles when he sees me but he hasn't a clue who I am or my name. At least he smiles so he does know me - kind of.

Hope things are ok for you, sorry I haven't been on for ages so I'm really out of touch.

Sue x