Dad's cardiology appointment and I'm fuming !

Mumof3kids

Registered User
Aug 12, 2018
115
0
Really need to get this off my chest!

Dad (with VD) has been suffering with being very short of breath and he's been referred to Risperatory Clinic (he was seen 2 weeks ago and been referred to Oxygen Therapy and is due for a home assessment tomorrow). All of which he has no memory of and will object tomorrow when they call to the house. His Cardiology Clinic appointment was last night, so off we went. The consultant wasn't particularly over friendly, but this didn't bother me, at this point it was just an observation.

He then started to ask Dad questions. I could see Dad was unsure of the answers so I was trying to help him. One of the questions related to how out of breath Dad was when he woke up in the morning - to which his reply was 'oh I'm fine, no problems there' (when in fact he has to sit on the bed for 10 mins to get himself prepared to stand up). When I tried to 'help' by adding this to the answer I was instantly closed down by the Consultant, informing me that since I wasn't in the bedroom at the time how would I know?! OMG did he just actually say that to me? I replied that since you are asking a person with memory problems how they feel first thing in the morning, how is he going to remember that? He replied saying that if anyone had breathing problems it isn't something they would forget. OMG I WANTED TO SCREAM. I could feel my neck and face get hotter and redder and redder and just sat back in the chair. He continued with the consultation (pantomime is more of an acurate word) for the rest of the hour. Dad was doing that 'hosting' thing, and the Consultant was taken in by it. I think at one stage I heard him say to Dad 'the only thing stopping you getting on with life is you and pride' What the hell? Was he there at the house to see how agitated Dad was at just putting his coat and shoes on and asking 100 times 'So where are we going?' NO. I wanted to shout that Dad wouldn't even remember travelling to the hospital to see you, never mind this jolly bloody conversation you think you're having with him.

Dad's been referred to another specialist hospital, needs bloods to be taken etc so it was a necessary appointment for him to get the necessary meds needed, but dear God it was the worst experience I have ever encountered with anyone from the medical profession. I truly felt like he just thought I was there to dramatise the siutation and but obsticales in the way.

There was more rudeness towards me throughout the appointment, but too much to put down on here.

He may be a ruddy good Cardiologist, but he had no flipping clue how to speak to a PWD or their relatives.

There, I feel better for that offload. xx
 

Sirena

Registered User
Feb 27, 2018
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That is appalling, I think you would be justified in putting in a complaint. Not only was he rude, which is inexcusable, but his dismissive attitude had a direct impact on being able to correctly diagnose and treat your dad. I hope your dad will get the help he needs despite this experience. I know your dad was his patient but I can't help wondering if there was some misogyny in there too - talking to the man and ignoring the little woman.
 

Palerider

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Aug 9, 2015
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Was just having a quick look before I pop out. Its awful you were treated this way but unfortunately it doesn't surprise me. This is a problem system wide, professionals who may be expert about one thing but have absolutely no idea about dementia and what that means for the pwd and the carer.

I think I would as @Sirena has said complain, but further I would ask for a second opinion as the first one was based on a poor assessment of how your dad really is. Is there a cardiology nurse specialist you can go to? And it might worth chatting to this consultants secretary as they are quite good at seeing if they can get an appointment with another cardiologist -worth a try if you feel it would help....
 

Pete1

Registered User
Jul 16, 2019
899
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Hi @Mumof3kids, sadly not an uncommon experience, the PWD will nearly always say they are 'A1' too, nothing wrong with them! The Consultant sounds incredibly arrogant and also ignorant as it sounds as if he hadn't read your Dad's notes. Sorry you had to go through that, it's traumatic enough getting your Dad to the appointment I'm sure without being treated like that.

I remember a classic with my Dad in the Care Home a Social Worker came to undertake a capacity assessment (this is two years after being in care and Dad clearly didn't have capacity). Myself and the Home Manager explained it wasn't a good idea as it would cause him agitation as he wouldn't be able to answer the questions (that was the only time he actually got agitated - it was in the Care Plan). But, no, she was going to undertake the assessment, so myself and the Care Manager sat in. It started off with my Dad speaking in a welsh accent for some unknown reason (he isn't Welsh) - three or four minutes in her was calling her every name under the sun and she had to discontinue the 'assessment'. Although the Home Manager and I did get some satisfaction in Dad calling her all the names we wanted to, we then had to spend the next half hour calming Dad!
 

Mumof3kids

Registered User
Aug 12, 2018
115
0
@Sirena @Palerider @Pete1

Thank you for your replies. Yes @Sirena I would go along with the whole misogyny thing. And @Pete1 I have NEVER encountered such and arrogant man in my life, with such ignorance of the dementia that the patient in front of him suffers with. I wish my dad had taken a dislike to him like your mum did when being forced to undergo the assessment. It would have made my day to hear Dad call him the names I would have like to have called him. @Palerider I am still undecided whether to complain - I have Googled him and was hoping to find some reviews - there were 3 but I can't access them...... I keep talking myself out of telephoning his secretary to ask whether she receives many complaints from patients? I guess the fact that I know we will need to see him again is the reason I'm so apprehensive. But the more I go over the other stuff he said to me as well as that in my post, I can feel myself getting so angry again.....
 

Kennyboy

Registered User
Oct 31, 2019
50
0
Really need to get this off my chest!

Dad (with VD) has been suffering with being very short of breath and he's been referred to Risperatory Clinic (he was seen 2 weeks ago and been referred to Oxygen Therapy and is due for a home assessment tomorrow). All of which he has no memory of and will object tomorrow when they call to the house. His Cardiology Clinic appointment was last night, so off we went. The consultant wasn't particularly over friendly, but this didn't bother me, at this point it was just an observation.

He then started to ask Dad questions. I could see Dad was unsure of the answers so I was trying to help him. One of the questions related to how out of breath Dad was when he woke up in the morning - to which his reply was 'oh I'm fine, no problems there' (when in fact he has to sit on the bed for 10 mins to get himself prepared to stand up). When I tried to 'help' by adding this to the answer I was instantly closed down by the Consultant, informing me that since I wasn't in the bedroom at the time how would I know?! OMG did he just actually say that to me? I replied that since you are asking a person with memory problems how they feel first thing in the morning, how is he going to remember that? He replied saying that if anyone had breathing problems it isn't something they would forget. OMG I WANTED TO SCREAM. I could feel my neck and face get hotter and redder and redder and just sat back in the chair. He continued with the consultation (pantomime is more of an acurate word) for the rest of the hour. Dad was doing that 'hosting' thing, and the Consultant was taken in by it. I think at one stage I heard him say to Dad 'the only thing stopping you getting on with life is you and pride' What the hell? Was he there at the house to see how agitated Dad was at just putting his coat and shoes on and asking 100 times 'So where are we going?' NO. I wanted to shout that Dad wouldn't even remember travelling to the hospital to see you, never mind this jolly bloody conversation you think you're having with him.

Dad's been referred to another specialist hospital, needs bloods to be taken etc so it was a necessary appointment for him to get the necessary meds needed, but dear God it was the worst experience I have ever encountered with anyone from the medical profession. I truly felt like he just thought I was there to dramatise the siutation and but obsticales in the way.

There was more rudeness towards me throughout the appointment, but too much to put down on here.

He may be a ruddy good Cardiologist, but he had no flipping clue how to speak to a PWD or their relatives.

There, I feel better for that offload. xx
That is disgusting the correct thing to do would have been to tell your dad that he was going to include you in the discussions and addressed the questions to you both. Do they not train all doctors on how to deal with patients with Dementia if they don’t then they should. Funny you should mention the « hosting » thing my sons Nan does exactly the same thing, how the hell can they do that, they can go from speaking normally to the Doctor and 5 minutes after you get them out of the appointment the muddled conversation starts, it’s a really strange thing for which I have no explanation. Hope your dad gets the medication he needs take care x
 

Sirena

Registered User
Feb 27, 2018
2,326
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@Mumof3kids as @Palerider has said, you could ask to see a different consultant, your dad needs to re-assessed anyway because this assessment failed due to the consultant refusing to accept your input. But I know it's daunting when you don't know your way round the system.
 

Mumof3kids

Registered User
Aug 12, 2018
115
0
That was totally unacceptable and I agree with others that you should make a complaint.

I’ve no experience of this, as we don’t have it in Scotland, but I’ve seen other members on the forum suggest going through PALS - would this be an option for you?

https://www.nhs.uk/common-health-qu...t-is-pals-patient-advice-and-liaison-service/

Thanks @Izzy - I actually lodged a complaint a couple of years ago via PALS since after my Dad being admitted for a night's stay in hospital, when I went to collect my Dad the following day when he'd been discharged, he wasn't on the ward. He'd been allowed to wander off. After specifically giving my concerns about Dad's dementia and how worried I was when he was admitted. I was of course given reassurances that they would look after him. They didn't and for 45 minutes I felt sick worrying where he had gotten to. Luckily my youngest daughter was with me and she managed to find him in the hospital shops...... I had email exchanges and telephone calls with the promises of sending me their internal investigations which never materialised. Unfortunately due to the other million balls I was trying to juggle at the time, I let it slide and didn't pursue.

But it wasn't a great experience to say the least. But it's an option I can think about. Thank you.
 

Jale

Registered User
Jul 9, 2018
1,143
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Do you have power of attorney for health? If so I would be waving that under the consultants nose for starters. I think I would also be putting in a complaint. Mum had to see specialists before her POA was put into force and I was never treated like you were, in fact some of them seemed relieved that they didn't have to get the answers from Mum who like your Dad would have denied anything was wrong.

Hope you can get things sorted for your Dad, dealing with PWD is very often difficult enough without having to deal with people who think they know better than a family member
 

Mumof3kids

Registered User
Aug 12, 2018
115
0
Thanks everyone. I have just telephoned his office .....only to get through to voicemail. I have left a message with a brief outline of what a negative experience the appointment was and how I would like the opportunity to discuss this with someone..... let's see how (and if) they reply.....

@Jale no unfortunately I have POA for finance and property only. I am named on both my parents records at their GP so I can discuss their medical records on their behalf. To be honest, so far we have had the same experience that you have encountered. As soon as I (discreetly) advise of my Dad's dementia, the response has been a positive one and as you say, was welcomed that I could help with the answers required. I guess that's why I was so blown away at just how rude this guy was last night. I told him of Dad's VD diagnosis, what meds he is on (given it's Risperidone that should have resinated with him). When I worried that he just hadn't picked up on it, I mentioned that Dad had had mini strokes in his head - thinking come on - do I need to spell it out????? Unfortunately I think even if I had, he was happy to ignore me 100%.