Hello
I have now been living with my parents as their full time carer since May. Mum has Alzheimer’s and Dad is in a wheelchair and starting to become a little confused about dates and anything IT related.
The plan was for Mum and Dad to buy a flat in sheltered accomodation, but we realised just in time that this would not be enough, so we have rented a house together. We are now 5 with my husband and 14 year old daughter.
It’s been quite a rollercoaster.
I have given up my job and am gradually rebuilding a life, finding dementia cafés and local community activities to take my parents to.
What I really struggle with is how to respond to Mum’s unpredictable and very changeable states of mind. Sometimes she is afraid of getting into trouble and being shouted at. No one shouts at her. She will shout when she feels frustrated and angry. There are days when I just don’t find the right words. Whatever I say does nothing to calm her fear and the anxiety often turns into a resentment, where she will say that she is a liar and she’ll say whatever we want, then we return to the notion that she will not get into trouble if she says what we want.
I find this so hard to be with. I love my Mum but I run out of resilience and just want to minimise my interaction with her. Then I feel guilty for being so selfish.
I wish I knew how to be better for her.
I have now been living with my parents as their full time carer since May. Mum has Alzheimer’s and Dad is in a wheelchair and starting to become a little confused about dates and anything IT related.
The plan was for Mum and Dad to buy a flat in sheltered accomodation, but we realised just in time that this would not be enough, so we have rented a house together. We are now 5 with my husband and 14 year old daughter.
It’s been quite a rollercoaster.
I have given up my job and am gradually rebuilding a life, finding dementia cafés and local community activities to take my parents to.
What I really struggle with is how to respond to Mum’s unpredictable and very changeable states of mind. Sometimes she is afraid of getting into trouble and being shouted at. No one shouts at her. She will shout when she feels frustrated and angry. There are days when I just don’t find the right words. Whatever I say does nothing to calm her fear and the anxiety often turns into a resentment, where she will say that she is a liar and she’ll say whatever we want, then we return to the notion that she will not get into trouble if she says what we want.
I find this so hard to be with. I love my Mum but I run out of resilience and just want to minimise my interaction with her. Then I feel guilty for being so selfish.
I wish I knew how to be better for her.