So is this it...?
- Thread starter DesperateofDevon
- Start date
Do not berate yourself, no-one could/is trying harder than you to support not just your dad, but mum as well.
This won't have any bearing or help with your dad's case, but as a matter of interest, are there any other families having similar difficulties with the CH at the moment or in the past?
The CH general attitude seems so lax, it would seem likely that other people have been there before you, is so, are you aware of the details/outcome?
(I know you're in the depths of despair with your own problems, ignore my comment about other pwd residents).
This won't have any bearing or help with your dad's case, but as a matter of interest, are there any other families having similar difficulties with the CH at the moment or in the past?
The CH general attitude seems so lax, it would seem likely that other people have been there before you, is so, are you aware of the details/outcome?
(I know you're in the depths of despair with your own problems, ignore my comment about other pwd residents).
My daughter went in to see grandad & guess what slumped forward not able to eat as his chin was on his head. So much for safeguarding! They are a joke!
If it wasn’t for a couple of lovely carers who got him in his room reclining on his bed he wouldn’t have been able to eat anything- as it was it took my daughter over an hour to feed him a small amount!
no soft diet - roast dinner!
If it wasn’t for a couple of lovely carers who got him in his room reclining on his bed he wouldn’t have been able to eat anything- as it was it took my daughter over an hour to feed him a small amount!
no soft diet - roast dinner!
That is absolutely dreadful by the CH @DesperateofDevon - I don't understand their stance at all. He certainly should be on a soft diet if he is unable to eat. I just hold hope that you will get resolution with the investigation(s).
All of what you are having to deal with @DesperateofDevon just beggars belief!!!! ...your poor dad in pain so wrong.....your doing the very best you can ...Im sorry I have no useful advice but try just take care of yourself .
(((Hugs))) A x
(((Hugs))) A x
Today is the day that Dad is actually going to be assessed by SALT & O/T & I’m not going to be present.
My lovely daughter & my support worker will be there.
I am taking a step back & however difficult that maybe for me,it is in Dads best interests at this moment in time.
trying to sort out care for a loved one is an emotional experience at the best of times.
During stressful times & hitting brick walls it is near impossible.
yesterday my daughter went in to see her grandad, & found him slumped forward as usual chin on chest & eyes closed....- yes the safeguarding meeting was as helpful as a chocolate teapot.
So when lunch came he couldn’t open his mouth to eat in that position.
Thank goodness I wasn’t there otherwise I don’t think I’d have been able to contain myself.
Upshot was Dad was put into bed - reclining & became more alert, well his eyes opened & he was able to take some food, & protein drink when spoon fed in that position.
my daughter is only 22
I am so proud of the maturity with which she deals with a situation no 22 year old should ever have to deal with.
I haven’t heard anything from the safeguarding meeting ......chairperson, Dads social worker, social worker investigating the safeguarding nada.
Neither has my husband.
Incredible really as after I left the meeting apparently points to be addressed were made & communication was one of them!
if it wasn’t such an awful situation it would be laughable!
so I’m behind the scenes beavering away still compiling emails to reply to the GP’s unhelpful telephone conversation. Amazingly no one wants to commit to black & white apart from me. Even when requested to......
By stepping back from being Dads constant visitor & advocate I hope that my OH & daughter can actually be the advocates that dictate change.
we have offered to buy Dad a reclining chair, we have offered to fill in any forms required to provide the care he now needs, we have agreed to meet the home & discuss care needs.... no I won’t be there for that one folks.... I’m leaving it to my own Batman & Robin! Minus the Lycra in O/H case!!
My lovely daughter & my support worker will be there.
I am taking a step back & however difficult that maybe for me,it is in Dads best interests at this moment in time.
trying to sort out care for a loved one is an emotional experience at the best of times.
During stressful times & hitting brick walls it is near impossible.
yesterday my daughter went in to see her grandad, & found him slumped forward as usual chin on chest & eyes closed....- yes the safeguarding meeting was as helpful as a chocolate teapot.
So when lunch came he couldn’t open his mouth to eat in that position.
Thank goodness I wasn’t there otherwise I don’t think I’d have been able to contain myself.
Upshot was Dad was put into bed - reclining & became more alert, well his eyes opened & he was able to take some food, & protein drink when spoon fed in that position.
my daughter is only 22
I am so proud of the maturity with which she deals with a situation no 22 year old should ever have to deal with.
I haven’t heard anything from the safeguarding meeting ......chairperson, Dads social worker, social worker investigating the safeguarding nada.
Neither has my husband.
Incredible really as after I left the meeting apparently points to be addressed were made & communication was one of them!
if it wasn’t such an awful situation it would be laughable!
so I’m behind the scenes beavering away still compiling emails to reply to the GP’s unhelpful telephone conversation. Amazingly no one wants to commit to black & white apart from me. Even when requested to......
By stepping back from being Dads constant visitor & advocate I hope that my OH & daughter can actually be the advocates that dictate change.
we have offered to buy Dad a reclining chair, we have offered to fill in any forms required to provide the care he now needs, we have agreed to meet the home & discuss care needs.... no I won’t be there for that one folks.... I’m leaving it to my own Batman & Robin! Minus the Lycra in O/H case!!
Good Morning @DesperateofDevon, it sounds as though you have a wonderful caring and supportive family who are doing their utmost for your Dad. I really hope you get some resolution soon, I really can imagine how painful it is for you all.
My lovely daughter has done her Grandad proud, as has my support worker!
Finally a professional or two who see what we see - & how we have been suggesting that a different care plan is required to fit the current needs.
I am a very proud parent!
I wonder if the care home, district nurse , GP, social worker , social services & safeguarding team will be able to accept the diagnosis from two highly trained professionals?
still no office contact details for social services safeguarding team ....
Finally a professional or two who see what we see - & how we have been suggesting that a different care plan is required to fit the current needs.
I am a very proud parent!
I wonder if the care home, district nurse , GP, social worker , social services & safeguarding team will be able to accept the diagnosis from two highly trained professionals?
still no office contact details for social services safeguarding team ....
Daughter says a reclining chair on wheels is being provided , but it’s a 12 week wait. So going to see if we can hire one !!
So you should!!How marvellous that a few people had open vision and could see what you could..
@DesperateofDevon have you read the following article it might give you some leverage for getting some pain relief for your dad.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6234644/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6234644/
thank you x Dad has kidney function issues so paracetamol is a no go, plus liver function issues from previous meds ; it’s lovely of you to thought of us. Dads Butec patch & oromorph are a good option at the moment but it’s a fluid situation so all options are on the table.
I hope that the article might help someone’s else as well
X
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