I feel like my life has existed around the PWD for years. I struggle to remember a time before this disease. Mum has never been formally diagnosed (how do they do this? who does it?) Everyone says she has dementia or Alzheimer’s but there was never a day when someone sat us down and told us what to expect.
She stopped eating 3 weeks ago but has just started again...small things. She’s in hospital following a chest infection. I’m struggling with how I feel about this. Obviously I want her to eat but witnessing her distress, confusion, anger, lack of cooperation with toiletting, inevitable mess and the difficulty in keeping her happy doesn’t make me want to prolong this. If we could make her happy and comfortable at least it would be rewarding spending so much time with her.
I’m an outdoors person and am struggling with the lack of exercise and being cooped up indoors. I feel guilty for wanting a life. I have no idea how much longer this will last for....weeks, months, years? Every option is distressing. I can’t bear the thought of losing her but I can’t bear the thought of many more months in this horrible situation. Not knowing what the future holds makes it hard to prepare yourself mentally.
Sorry...first post and a right old self indulgent whine
She stopped eating 3 weeks ago but has just started again...small things. She’s in hospital following a chest infection. I’m struggling with how I feel about this. Obviously I want her to eat but witnessing her distress, confusion, anger, lack of cooperation with toiletting, inevitable mess and the difficulty in keeping her happy doesn’t make me want to prolong this. If we could make her happy and comfortable at least it would be rewarding spending so much time with her.
I’m an outdoors person and am struggling with the lack of exercise and being cooped up indoors. I feel guilty for wanting a life. I have no idea how much longer this will last for....weeks, months, years? Every option is distressing. I can’t bear the thought of losing her but I can’t bear the thought of many more months in this horrible situation. Not knowing what the future holds makes it hard to prepare yourself mentally.
Sorry...first post and a right old self indulgent whine