I've intended for some time to start a thread of my own and update it from time to time which would serve as a journal of our journey with dementia. Back in August I posted about my husband always finishing his sentences with "Jim". He still does it and I'm still not sure if he's calling himself Jim or he's talking to someone else. When I posted about that
@Bunpoots came up with "It's life Jim - but not as we know it!" and said how that pretty much sums up living with dementia. So I thought that would be a good title for my thread.
For some time I've been aware of a few people posting on TP about having a bit of time on their own when their LO goes to bed, and I thought "why can't I do that". Usually at a certain time in the evening my husband will turn off the TV and hint that it's time for bed. I'm usually pretty tired by then and stop whatever I'm doing and hit the sack. But occasionally I'll want to carry on with what I'm doing, usually it's something I'm trying to read. I'll suggest he goes to bed but he always says he'll wait for me, so I stop whatever I'm doing.
But last night I decided that I
would finish what I was reading and he
would go to bed on his own. I've pretty much had to stop reading books as I don't get to concentrate enough, but this was an article that I really wanted to read. So I firmly told him that no he wasn't going to wait for me and that he was going to bed by himself. What a joke!. It was just like a child - "I need the toilet", "I want a drink". It went on for almost an hour by which time I was too tired and worn out to read.
I've tried going to bed early in the hope of having a bit of me time in the morning, but no as soon as I'm up so is he. I do enjoy crafting which is something I can do without the constant questions and demands interfering. But reading is something I haven't been able to do for some time. I just thought I'd start my thread with a bit of a moan.