What's next, coping day to day

[forbetterforworse]

Hello- I am happy to find this site, to make me feel not alone in this journey. My husband was just "formally" diagnosed with BvFTD, however i have known for over 10 years, there was something wrong. I feel i mourned our relationship years ago, as he withdrew, became unreliable, and did not provide any emotional/financial/intimate support for me. I love him, and will be there for the journey, however, i need to know that i can do this. By reading all these posts, i have found that comfort. Thank you all for your openess to share, your caring support is helping many who travel this road. God Bless

 

[canary]

Hello @forbetterforworse and welcome to DTP.

This is a very friendly site and Im glad that you have found it helpful just by reading posts.
The Alzheimers Society also has a range of factsheets, which you might also find helpful if you havent already found them
https://www.alzheimers.org.uk/get-support/publications-factsheets-full-list

Now that you have found us, do keep posting - feel free to ask anything - someone around will know the answer.

 

[Lindy50]

Hello @forbetterforworse and welcome to the forum. As it happens I care for my mum who has vascular dementia - but we all tend to share experiences, knowledge and feelings regardless of specific diagnosis.
Glad you are finding the site helpful - it’s been a lifesaver for me x

 

[nae sporran]

Welcome to the forums from me too, Forbetterorworse. you will find support and information here from others going through similar problems.
I have found carers groups and memory cafes to be good places for support and advice too, so type your postcode into https://www.alzheimers.org.uk/get-support/your-support-services and https://carers.org/ if you feel that will help you both.

 

[LynneMcV]

Welcome from me too @forbetterforworse - I know how big a blessing this forum was to me too when my husband was diagnosed.

I am sure you will receive much support here

 

[Lilstar]

Hello- I am happy to find this site, to make me feel not alone in this journey. My husband was just "formally" diagnosed with BvFTD, however i have known for over 10 years, there was something wrong. I feel i mourned our relationship years ago, as he withdrew, became unreliable, and did not provide any emotional/financial/intimate support for me. I love him, and will be there for the journey, however, i need to know that i can do this. By reading all these posts, i have found that comfort. Thank you all for your openess to share, your caring support is helping many who travel this road. God Bless

 

[Lilstar]

I am a newbie on this site with my husband just newly diagnosed with mixed and vascular, I have found comfort straight away with the overwhelming support you feel just posting a few lines from everyone on this site.I can’t give any advice as our journey is just starting other than welcome .

 

[marionq]

For those who are new carers the most important advice is to get all Practical stuff organised ASAP so as to Leave you free to concentrate on the development of the illness.

POA first and foremost either online or through a solicitor and registered straight away. Get the PWD used to doing things without you through joining Dementia groups and daycentres. Establishing these in the early days makes life easier later on. Go online and see what is on in your area and make contacts now so as not to be isolated later.

If you have specific questions then someone on here will have an answer.