I have Lewy Body Dementia

Dennisthehorse

New member
Jul 9, 2019
2
0
Hello. I was diagnosed with Lewy Body Dementia in Oct 2018. I am new to the group. It would be useful to link in with others in the same situation. I am feeling really sad today following double incontinence. I need a mattress cover that doesn't make me sweat. I am currently using the padded pants but when I turn in my sleep they leak.

Currently I spend many many hours asleep through the day. Does anyone else find this? I still sleep at night and frequently visit the loo.

I look for a timeline for the degeneration of my health, not because I am excited by it but because I need a handle for the future.

Oh by the way, Dennis is my tourney horse. I used to be very involved in Morris dancing and turned to Dennis the Horse to carry me around. (Carer comment - this is true)

Thank you for your time
 

Grannie G

Volunteer Moderator
Apr 3, 2006
81,449
0
Kent
. I need a mattress cover that doesn't make me sweat

Hello Dennisthehorse

I`m sorry you're feeling so low but it's not surprising when you have so much to face.

There are carers and people on the forum with Lewy Body Dementia and I hope when they come on line they`ll see your post and connect with you.

I might be able to help with a mattress cover which won`t make you sweat. I bought this one.

https://www.marksandspencer.com/qui...f-mattress-protector/p/p22476628?prevPage=srp
 

nitram

Registered User
Apr 6, 2011
30,081
0
Bury
Hello. I was diagnosed with Lewy Body Dementia in Oct 2018. I am new to the group. It would be useful to link in with others in the same situation.

There is a member @Norrms who has LBD and regularly posts.
You can read his posts >>>here<<<
As I have tagged him in this post he may reply to this thread or contact you by 'conversation' - private messaging between members. If he does you should get a flag alert and , depending on settings, an email.
 

LynneMcV

Volunteer Moderator
May 9, 2012
6,116
0
south-east London
A welcome from me too @Dennisthehorse ,

Re. the issue you raised about a mattress cover that doesn't make you sweat, I found that terry towelling waterproof mattress covers worked best for my husband.

They don't rustle noisily like a lot of waterproof bedding products do - and the towelling side was both comfortable to sleep on and he didn't overheat at all

I purchased ours online. Several companies produce them and they come in all bed sizes. Just Google terry towelling waterproof mattress protectors and you should find some helpful links.

I hope that helps a bit.
 

Dennisthehorse

New member
Jul 9, 2019
2
0
Thank you to everyone for their comments and ideas. We have just worked out that it is an Ikea bed and mattress so not standard size. They do do a mattress cover so we are going to try that. (Carer)