I am new to DTP. My Dad diagnosed with Lewy Body Dementia 3 years ago.
I feel selfish even complaining after reading some of the posts! I am finding it quite hard to cope as there seems to be no let up
My Dad lives with my Mum she had a triple stroke 7 years ago and is not very well herself. (She has Aphasia) Communication between them is difficult, my Mum lost her speech, it would be quite slurred and under stress finds it very hard to speak. She had years of recovery. They both have individual needs. We have home help of 12 hours per week. My sister and I are over with them most of the week. There is at least 2 hospital visits every fortnight and one of us attends with my Dad. We have been told he can no longer be left on his own in the house at all or go anywhere on his own. We had to tell him again yesterday that he has dementia which was very upsetting as he thinks he only has Parkinsons. He now thinks we are plotting against him preventing him from doing things. We have also been told that we need to build a bedroom downstairs as he is finding the stairs difficult.
I work full-time and my sister has 2 small children, I am finding it hard to keep going. It's all I think about because I know there is no solution, things are just going to get worse.
I feel selfish even complaining after reading some of the posts! I am finding it quite hard to cope as there seems to be no let up
My Dad lives with my Mum she had a triple stroke 7 years ago and is not very well herself. (She has Aphasia) Communication between them is difficult, my Mum lost her speech, it would be quite slurred and under stress finds it very hard to speak. She had years of recovery. They both have individual needs. We have home help of 12 hours per week. My sister and I are over with them most of the week. There is at least 2 hospital visits every fortnight and one of us attends with my Dad. We have been told he can no longer be left on his own in the house at all or go anywhere on his own. We had to tell him again yesterday that he has dementia which was very upsetting as he thinks he only has Parkinsons. He now thinks we are plotting against him preventing him from doing things. We have also been told that we need to build a bedroom downstairs as he is finding the stairs difficult.
I work full-time and my sister has 2 small children, I am finding it hard to keep going. It's all I think about because I know there is no solution, things are just going to get worse.