I have had a good run of keeping patient and calm but I have had just had a couple of evenings of extreme exasperation. He just keeps getting deeper and deeper into his world, not even wanting to go out now so using very little energy and conversation, such as it is, almost nil. I think that this may account for his evening behaviour, trying to make a connection with me of some sort. I have tried everything but sundowning is defeating for me. Back to trying again from the beginning. The day bed idea is a good one
@Mudgee Joy which I have tried and will again but defeated by his fixation on his bed which has become his sanctuary, he is like a homing pigeon. From his point of view the only thing missing is that I am not there, but that’s pushing me too far at this stage because I can see deterioration month by month with more problems for me to deal with. Must try harder!
On the upside, which may be connected to the behaviour, I have been out quite a bit, twice over the weekend when my son came and all afternoon to the cinema with a friend on Monday when I organised lunchtime and teatime visits to keep him company. His extreme dependence must have been given a jolt, hence his evening wanderings to check back with me. We went to see the ballet Romeo and Juliet performed by the Royal Ballet and the balcony scene had me in bits as a reminder of the power of young love and our own youthful romance now in ashes. I am sure many of you will know what I mean. It was cathartic to be reminded and move on, a bit.
I am always worried about how everyone here is these days. Groundhog Day I suppose